I have had a look at this and it's untrue that the NHS are not involved. Its a partnership, of which the NHS is part.
I am all for scientific research, as long as rigorous protocols are in place.
Over the years I have been involved in various medical research projects.
Many years ago, I broke my spine in two places and was asked if I wanted to take part in an NHS project sponsored by the Mayo clinic, where bone cement would be injected into my spine. There would be two groups, once receiving analgesic treatment and one receiving cement.
It would be six months, before the patient would know which treatment they had.
DH didn't want me to do it but I insisted. Otherwise I would have enthalpy been in a wheelchair.
I received the cement and knew almost immediately, because my pain levels decreased dramatically. I was able to return to work in weeks.
That procedure eventually became common for patients with vertebraic fractures here.
I have no objection to my data being used to help others.
Secondly, at the moment I am part of a research project, sponsored by BHF and being carried out by the Glasgow University Hospitals Trust.
I have a heart condition, which for many years, hundreds of women have died from, due to that condition being difficult to diagnose.
As a result, new procedures have been developed to diagnose (it happened to me) and new medication developed. Previously there was no suitable treatment.
It has also been discovered that the condition is genetic.
That research has prolonged my life, it's a no-brainer for me.
Thirdly, recently I was asked to make my medical records available to Roche Pharmaceuticals.
I had experienced serious side effects from biologics and the company are legally advised to investigate.
I checked with my RA consultant and he stated that this is standard procedure.
How are medical treatment and procedures going to develop, if there is no research?
The NHS certainly doesn't have the funds to do so.
