I cared for my first husband and carried on working for a year, then full time for a year until he died of a rare lung disease. He needed oxygen 24 hours a day. Our GP, district nurses, palliative care consultant, Marie Curie nurses, even the chap who delivered his oxygen bottles and maintained the oxygen condensers, all gave us both outstanding care, and he got his wish to die peacefully, and pain free at home. The nurses came daily to dress his small wounds which wouldn't heal, and they anticipated our every need, arranging equipment to make our lives easier just at the point where it became necessary. Our GP called regularly, and kept a caring eye on me too. When I look back I don't know how I did it! DH had always been one to go to the pub, and I took him every day, even when he could only sip iced water, I sat in the corner with coffee and the paper while he sat at the bar with his morphine syringe driver in his top pocket and his ambulatory oxygen under his barstool and talked the usual old socks with his mates at the bar! We only stopped going a month before he died, when I really feared he would fall and some kind soul would of course ring for an ambulance, then he would end up in hospital. I did ask the palliative care consultant if the paramedics would be allowed to bring him home if he fell away from home, he said he would raise the issue at the next multi disciplinary meeting, so maybe my DH has made a change there. Apart from a very distressing stay in hospital, when the staff concentrated on his unrelated condition, and didn't notice he was blue when his oxygen ran out, ALL the care we had was outstanding, I couldn't have wished for better. Thank you all.