Twitter is a pretty bad idea if they want to gather good information; Twitter limits characters so it is impossible to outline conditions, treatments, concerns and complaints - any attempt would look like we were not only ill, but that we would come across as semi-literate chavs! I could rant for ages about the problems associated with my G.P surgery but will try to just list some of the bullet points I can think of off the top of my head, as such (bad memory is just one of my problems!)
1. It is almost impossible to get an appointment when I need one (and I try not to bother the doctor with loads of minor ailments) - and I have struggled to the surgery even when in-patient at the hospice as I don't like to call the doctor out.
2. The receptionist are nosy and obstructive, have poor interpersonal skills, regularly breach confidentiality, gossip and fail to complete the simplest of tasks.
3. Even though my repeat prescription has been the same for a number of years now, every month they cock it up somehow! This often leaves me without medication and has even left me withdrawing from the morphine when they neglected to get my prescription done.
4. I have been chronically ill for years, just about weight 5 and a half stone, yet they don't see this as a problem (even though I look skeletal and dreadful) and always make me feel as if I am being a nuisance and rush through the appointment to get me out of the door ASAP I always leave feeling dissatisfied and rather depressed, and still have all the health problems I went in with.
5. My current dose of morphine is not enough and I still live with constant pain - I am cut off bluntly if I try to discuss this.
6. The surgery regularly changes times you are meant to call for certain things and receptionists are borderline rude.
7. The chemist is more helpful than the GP when I have queries about medications.
8. I don't think GPs really have any idea how hard it is living with chronic conditions and don't have the time or patience to get to the bottom of things - easier to brush me off.
All in all the years of poor treatment, no treatment, bad treatment, neglect, lies, messing about, wasted time, wasted doctor's and hospital appointments (and the cost of getting to all these) have somewhat soured my judgement - I know there are good doctors out there but invisible, chronic, multi-conditions etc do need more careful management and consideration.
Getting off soapbox and going to bed!
If CQC want good data, they should devise an anonymous questionnaire or form we could write our concerns, complaints etc on.