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Share your experiences of long-term condition with CQC - £300 voucher to be won

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EllieGransnet (GNHQ) Fri 15-Mar-19 13:20:00
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Living with a long-term condition whether that's yourself or someone you love can be very difficult both physically and emotionally. Which is why CQC (Care quality Commission) have launched their #DeclareYourCare campaign to encourage people to share their experiences of health or adult social care – not just poor care but celebrating good and outstanding care too!

Here’s what CQC have to say: “About 15 million people in England have a long-term condition - and this is rising, with people with long-term conditions now being the main users of health and social care services in England. From research we carried out, we found that 88% of people affected by long-term health conditions who have not made a complaint about poor care were concerned about being seen as a trouble-maker, in comparison to just 30% of those who are not affected by a long-term condition. Plus, people with long-term health conditions are 10% more likely to refrain from expressing concerns over poor care due to fears about not being taken seriously. Positively, the research found that when people did raise a concern or complaint, the majority found their issue was resolved quickly, it helped the service to improve and they were happy with the outcome."

Share your experiences of long-term conditions on the thread below and everyone who does so will be entered into a prize draw where one GNer will win a £300 voucher of their choice (from a list).

Thanks and good luck with the prize draw
GNHQ

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Janash Tue 31-Mar-26 14:58:17

I have 2 long term health conditions, one diagnosed in 2005 and the other in 2014. The first, a neurological condition needed frequent neuro physio sessions to try to aid recovery. When I came out of re-hab I was told there was a long wait to see a neuro physio so paid to see one which seemed to get me an NHS physio straight away! Over the years I have been on and off waiting lists for physio, but managed because the society for the condition that I has offers a bursary for 2 hrs specialist physio every 2 years. This has enabled my deterioration to be slowed though not stopped. Neurologists that I have seen have been very patchy. Some had no experience of dealing with the condition and frequently wanted to labvel me as having something more common! Arthritis, diagnosed in 2014 has been mainly ignored by everyone. I recently worked out a pathway to alleviate the pain which is 90% effective. I need a branded pain relief gel which I find brilliant - but my GP will only prescribe me a generic gel as it is cheaper - but doesn't work nearly as well!! They are more prepared to prescribe 3 tubes of the cheaper stuff than 1 tube of the more expensive stuff which I fail to believe saves any money at all!

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twaddle Wed 01-Apr-26 21:13:17

TwiceAsNice

I have Diabetes type 2 which zi take oral medication for and Spinal Stenosis which causes me pain and some problems with walking sometimes but I take no medication for as I have a high pain threshold. With my diabetes I have recently gone on a low carbohydrate diet and have lost a stone in weight so hope my blood sugars will be a lot better at my next check up ( it is already well controlled) and that may have a knock on effect to mobility as well. I would be classed as having two chronic illnesses but certainly don’t need any care at all. I am very independent and still work part time in my 60’s

But you do need care for your diabetes, if you take medication. You are entitled to annual reviews, including blood tests, which counts as care.

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Jaxjacky Wed 01-Apr-26 21:41:44

Old thread, 2019.

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