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Share your experiences of long-term condition with CQC - £300 voucher to be won

(128 Posts)
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Teetime Fri 15-Mar-19 14:24:00

I used to manage a Long Term Conditions community nursing team which included Diabetes, Heart Failure, COAD, Macmillan, Respiratory as well as a raft of other multiple pathology conditions. I have an LTC myself - Systemic Lupus erythematous I could write you a book but I will distill it to one comment which is this. In my experience Highly trained Specialist Nurses understand and deliver this complex care and management best and its best done in the community rather than in hospital.

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M0nica Fri 15-Mar-19 14:01:47

A bit worried about your statistics, Does the 15 million include all those taking medication for high blood pressure, statins and other conditions that they have but actually cause them no problems, pain or need for care and are unlikely to ever do so.

I think it does a disservice to those who do have difficulty, who are in pain and do need care to use these huge meaningless statistics.

15 million people needing care is 1 in 4 people, man, woman, child and all the rest. and I just do not believe it.

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EllieGransnet (GNHQ) Fri 15-Mar-19 13:20:00
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This thread is now closed

Living with a long-term condition whether that's yourself or someone you love can be very difficult both physically and emotionally. Which is why CQC (Care quality Commission) have launched their #DeclareYourCare campaign to encourage people to share their experiences of health or adult social care – not just poor care but celebrating good and outstanding care too!

Here’s what CQC have to say: “About 15 million people in England have a long-term condition - and this is rising, with people with long-term conditions now being the main users of health and social care services in England. From research we carried out, we found that 88% of people affected by long-term health conditions who have not made a complaint about poor care were concerned about being seen as a trouble-maker, in comparison to just 30% of those who are not affected by a long-term condition. Plus, people with long-term health conditions are 10% more likely to refrain from expressing concerns over poor care due to fears about not being taken seriously. Positively, the research found that when people did raise a concern or complaint, the majority found their issue was resolved quickly, it helped the service to improve and they were happy with the outcome."

Share your experiences of long-term conditions on the thread below and everyone who does so will be entered into a prize draw where one GNer will win a £300 voucher of their choice (from a list).

Thanks and good luck with the prize draw
GNHQ

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