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Recurrent postmenopausal bleeding

(18 Posts)
MaggieTulliver Fri 27-Jul-18 14:18:42

Sorry if this has been covered already! I'm 60 and 10 years post-meno and have had several episodes of postmenopausal bleeding. I'm sensible so always get myself to the GP who refers me for suspected cancer which is pretty scary but is standard practice. Each time I've been investigated with transvaginal ultrasound (my womb lining is very thin and >4mm) and hysteroscopy and the diagnosis is always endometrial/vaginal atrophy. They've never been able to do a biopsy because the lining's too thin to yield any tissue.

Now it's happened again (less than a year after the last episode) and I'm fed up. The GP says I'll need to get it checked out again even though it's likely to be atrophy but I dread having to go through this time and time again as I get very anxious. Am wondering if I should just ask for a hysterectomy so I don't have to worry anymore. Does anyone else have recurrent PMB and if so, how do you manage it?

Teetime Fri 27-Jul-18 14:29:00

Hallo Maggie I have been through the hysteroscopy thing but only had to do this once. It might be a good idea to discuss a permanent solution with your gynaecologist now. Good Luck xx

petra Fri 27-Jul-18 14:33:03

MaggieTulliver
You have my sympathy. It was happening to me around the same age. I had 2 procedures done at the hospital and nothing was found.
At about this time I moved to Bulgaria and it happened again.
I took my self off to the local hospital ( you can do that there)
Saw a gynachologist the same day. She examined me, gave me pills to take for a week, and it's never happened since. That was 11 years ago. I've no idea what I took grin she had no English and I only had very basic bulgarian.

shysal Fri 27-Jul-18 14:34:30

Have you been offered Vagifem ? I was prescribed it after my one episode of PMB which was found to be due to atrophy.

MaggieTulliver Fri 27-Jul-18 14:42:38

Wow ladies, thanks for quick responses. I think a permanent solution is what I need Teetime - be that a hysterectomy or something less drastic! Just a bit concerned about Vagifem Shysal because it's hormonal but I don't suppose it gets into the womb much. How long did you use it for?

Sparklefizz Fri 27-Jul-18 16:04:40

MaggieT I have been using Vagifem for years even though I've had breast cancer twice. I suffered bad side effects from Tamoxifen and my GP and also consultant have said that the hormonal dosage is so small, and also only applied topically, that it is safe even for ME. It has done the trick, I use it twice a week and it comes in a pre-measured applicator so no worries about using too much of it, and in between I use Replens which is also prescribed.

Surely this is much better than going through the ordeal of major surgery?

paddyann Fri 27-Jul-18 16:33:38

I bleed ,sometimes monthly.I'm 64 ,have been checked for everything known to woman and found OK.I do have a fibroid and endmetriosis though ..oh and cysts on my ovaries and the neck of my womb.Thats what they generally put the bleeding down to .I'm on HRT which has made the bleeding lighter and I'm willing to put up with it as I dont want surgery.My gynaecologist and oncologist have said if I change my mind they can give me surgery within the week .
My sister who is 69 has the same thing ,she opted for surgery in March ,she started bleeding again last month so she either has to have the full hysterectomy or live with it
As long as my results come back clear I'm happy to go on as I am,I do get checked regularly and scanned .

Greyduster Fri 27-Jul-18 17:40:40

Like sparklefizz I use a topical oestrogen cream - Estriol - twice a week to combat the effects of atrophy after I had a bleed. It is such a low dose that it is considered by most gynaecologists to be safe. Might be worth discussing with your GP.

MaggieTulliver Fri 27-Jul-18 17:51:04

Thank you so much, I'll discuss the topical treatment with the GP who I'm seeing next week. It was recommended to me before by gynae to prevent recurrence so I suppose I could just use it for a while and monitor things. I'd rather not have a hysterectomy - I'm very active and don't much like the idea of being out of action for any length of time! I'm very grateful for such useful feedback, what a great community.

MaggieTulliver Sat 28-Jul-18 15:27:46

One more question Greyduster - I assume you've been advised that the bleeding is always down to atrophy and that you don't need to have each episode investigated. How often do you bleed? My consultant told me to only get re-referred if a year had elapsed since my last bleed so I assume if it's less than that, they don't need to see you.

Greyduster Sat 28-Jul-18 19:55:00

An internal examination ruled out anything else that might have caused the bleeding. I have regular examinations because I have to have a ring pessary changed every six months. I have not had another bleed since I started using the oestrogen cream. I can’t see that you have anything to lose by asking your doctor if you can try it and see if it makes a difference.

GrandmaMoira Sat 28-Jul-18 20:40:59

I had a hysterectomy for prolapse and was diagnosed with atrophy at the same time and have used Oestriol cream since then. You may need a hysterectomy but it is worth trying oestrogen cream..

humptydumpty Sat 28-Jul-18 21:09:56

TBH I think I would prefer a hysterectomy - but am I missing something in terms of after-effects which would be worse?

Marydoll Sat 28-Jul-18 21:46:28

I had a hysterectomy and pelvic floor surgery at 55, due to a prolapse and heavy blessing.
As I can't have a general anaesthetic, I had a spinal block.
My recovery was a bit longer than normal, due to my health conditions, but it was one of the best decisions I have ever made. I was a high risk case and I had to be assessed by a number of doctors, before they agreed to go ahead.
I got my life back. At work I was permanently checking that there were no leakages and always wore dark colours. I was absolutely miserable and suffered lots of discomfort.
It's a decision not to be taken lightly, you have to weigh up all the pros and cons.
One the plus side, I will never need a smear test ever again, I used to dread them.

Pamboo64 Wed 24-Oct-18 13:36:40

Hi just joined the forum. I’m terrified as I’ve had Pmb and got to be checked this afternoon. Feel as though my negativity is bad in terms of anticipating the worst but finding it hard to anticipate the best. Sorry. Feeling messed up

paddyann Wed 24-Oct-18 13:46:17

I've just come back fro the GP after 4 weeks of continuous bleeding ,still ongoing.I've been referred again for scans etc .After googling I think it might be my fibroid breaking down due to my weight loss...no belly fat to feed it .I'm trying not to worry.It is what it is so I'll see what the gynae man says and take it from there.I am very tired though and light headed so GP took blood tests to check if I need an iron supplement .I do envy folk who say they sailed through menopause with no problems ,I'd be happy to have even a year without any

Nicenanny3 Wed 24-Oct-18 15:19:22

My friend had postmenopausal bleeding aged 58 saw various doctors and had tests etc but was always palmed off saying it was nothing serious, decided to go private and unfortunately it turned out to be kidney cancer and she died at 60, if they had found this earlier she might still be here.

paddyann Wed 24-Oct-18 17:11:35

Thanks for that nicenanny3 and here was I trying not to worry while waiting for my tests .