Gransnet forums

Health

Irregular heartbeat /leaky upper valve

(33 Posts)
annep1 Tue 19-May-20 23:21:41

I've been told I have these and that a letter is being sent to the doctor to issue beta blockers.

This was a telephone call from the cardiologist two weeks ago. If I had been able to have a face to face appointment I could have got more information.

The echocardiogram was done in January 2019 and she said it needs to be repeated and monitored. The 24hour monitor showed the irregularity. I only got results last week. I wish I had gone private, would have been quicker.

I rang the surgery today and the letter hasn't reached them yet. Can anyone throw any light on this? I can't find much online.

Jabberwok Wed 03-Jun-20 19:09:11

annepl ?? ☀️☀️.

annep1 Wed 03-Jun-20 18:33:05

Hi Jabberwok I'm glad to hear the betas are helping you. I hope it continues that way. You are getting very good support too, which must be reassuring.
I did see sense eventually and started mine on Monday although I cut the pill in half and took 2.5 mg. I think I will do that for a week and then increase it.
Sending you best wishes.

Jabberwok Wed 03-Jun-20 12:21:32

Hi annepl. Good to read your post. As a follow up, blood tests for potential kidney and thyroid problems came back negative which was good, another protein (?!!) that affects heart function was a bit down but not enough to cause a heart attack. My heart rate has certainly stabilised, but to be on the safe side I was fitted with a heart monitor for 24 hours to check for any hidden abnormalities. I had this take off yesterday afternoon and the GP is ringing me on Friday for a chat!!
I'm on a very low dose beta, and although it's early days so far I've been fine, and its certainly calmed down my over enthusiastic heart beat which fingers crossed, appears to be normal! It was a frightening episode and although I can understand your reluctance , for me the beta did the trick!

annep1 Sun 31-May-20 22:53:58

Having said that you have made me realise how important it is to start them.

annep1 Sun 31-May-20 22:52:23

JabberwokGoodness that was very scary. I've neever had anything like that. I'm glad you acted quickly - and the doctor too. A follow up appointment, we don't get many of those nowadays!
I got my betablockers yesterday and haven't started yet. I'm nervous about side effects, I often get them with pills. How have you been with yours? I'm glad they're helping.

Jabberwok Sat 30-May-20 15:10:47

I too have found this thread very helpful and reassuring, I've periodically had an irregular heart beat for many years. It usually clears itself and doesn't cause trouble, but three days ago I woke feeling lightheaded and soon after registered a heart beat of 92! By the afternoon it was 104 at which point I rang the surgery spoke to the duty Dr who had me straight down for an emergency ECG. This showed a racing heart, arrrhythmia, missed heart beat and a beat that thumped!! I'm now on a beta blocker which has certainly steadied things up! heart rate now 73! Appointment on Monday for another check and a chat?!! At least reading these posts I'm not the only one which has made me less anxious! Thank You all.?

annep1 Thu 28-May-20 09:12:57

Thanks Puzzler for your kind words.

Thanks Lemongrove. And yes it is good to ask It took me a while to pluck up courage, but every single person understood and was more helpful than I expected. A lesson learnt.

lemongrove Thu 28-May-20 08:43:18

annep1 ?That’s reassuring for you, isn’t it.Sometimes good to be quite proactive about these things and push for information/action on them.
Hope all will be well for you.?

Puzzler61 Thu 28-May-20 08:31:18

*face , not deface

Puzzler61 Thu 28-May-20 08:30:48

Hope your mind is at rest now Ann and you realise you’re not in imminent danger, and you now have a prescription.
The diagnosis of a new condition is always scary - even more so when no face to deface appointments are available right now for reassurance.
Carry on enjoying life, and remember there are always kindly folk on gransnet happy to chat and help share your worries. Take care ?

annep1 Wed 27-May-20 23:42:42

Just an update in case anyone is interested. I rang the practice and the receptionist was so helpful when I said I had been waiting for them to receive a letter from cardiologist since 7 May which still hadn't arrived. Long story short, my prescription will be ready tomorrow.
Lucky girl and Pat I did what you suggested and rang the consultant's secretary today. She rang me back very quickly trying both mobile (didn't hear for some reason) and landline. She was really nice and took time to explain and answer questions. The faulty valve is the mitral, unfortunately one that can cause problems - the tricuspid is the one that doesn't. But many people don't get worse. She said it had been classed as mild to moderate but she thinks its mild and a review in 2 years is ok. Irregularity in heart rhythm is common and not concerned. The one thing to watch for is breathlessness with activity, and to report that. Also if I was concerned I could have the review quicker.
It was good to get more info and I couldn't ask for more. None of us are guaranteed perfect health. (I hope the beta blockers are ok. I have M.E. and I'm not great with pills.)
So thanks everyone.

It makes you think though, how precious life is and how we should spend our time wisely and appreciate our family and friends and make good memories.

annep1 Fri 22-May-20 19:35:03

That's good EllanVannin, thanks. I'm hoping to speak to the GP tomorrow morning. No letter yet for prescription.

EllanVannin Fri 22-May-20 11:48:39

Might I add that Atrial Fibrillation itself isn't a killer, but obviously as you get older there is a risk. Other than that, keep taking the pills.

annep1 Fri 22-May-20 11:35:37

Thanks. Nannatwiglet. Will do.

Nannatwiglet Fri 22-May-20 08:46:54

Forgot to add....annep1...I was prescribed Propranolol for anxiety. To be taken as and when required.

Do ask your GP for advice.
Good luck!

annep1 Thu 21-May-20 23:22:37

Nannatwiglet sounds like you had an acute attack of some kind? I'm glad you're feeling better. That's a long wait for tests. It's not a good time to be ill!
Thank you for reassurance.

Nannatwiglet Thu 21-May-20 23:08:54

Don’t worry Annep1....This happened to me at the start of lockdown and I was taken into A&E. I didn’t need to stay in hospital,but was put onto an anticoagulant and beta blockers. (Same as EllanVannin!)
After 8 weeks, I am feeling so much better...I am still waiting for tests(ECG etc)I was dealt with by an NHS doctor and I also managed to find a private cardio one. He has been keeping in contact with me by phone, as there are no consultations in private hospitals where we live due to the Covid problem.
Speak to your own Gp about any problems...Atrial fibrillation is so common nowadays and people cope with it with the correct meds.. It has been an anxious time, but I am sure like me, you will be fine soon...Try not to worry...! The medication takes a while to get into your system remember....

annep1 Thu 21-May-20 22:52:45

Sorry if I seem overly concerned. I know there are people with much more serious health problems to worry about.

annep1 Thu 21-May-20 22:48:13

Ginny42 thank you so much for taking the trouble to speak to your friend, and for all that information. I too think and hope that the consultant would have got back to me quicker if it was serious but I think it's meant to be monitored yearly and it's over a year now. Also waiting time targets are not being met in my area.

Thank you also Ellanvannin It's good to get that information which is very useful.

I really appreciate you both taking time to write such detailed responses.
I now know that it's not possibly as bad as I thought.
I rang the cardiology clinic today and asked if it would be possible to have an appointment to speak to the consultant to get more information. . I was told that I would have to speak to my GP. I explained that the GP had been waiting two weeks for a letter and I was concerned as I was supposed to be given beta blockers and also a further echocardiogram was due. I was told that I would have to ask the GP to ring the clinic and in any case they weren't doing any tests at the minute. (The private clinic is also running slower with tests at the minute)

So I shall ring the GP tomorrow and see if he can chase up the letter. I do wish the cardiologist had explained more on the telephone.

Perhaps hopefully the consultant thinks everything I have is mild and nothing to worry about. I just don't know. I will report back.

EllanVannin Thu 21-May-20 21:20:38

I'm diagnosed with Atrial Fibrillation and had extensive tests in the past which didn't throw up any abnormality with the heart as an echocardiogram showed that everything was working fine.

I've actually had this condition for over 30 years and take Bisoprolol and Warfarin which keeps it ticking over, though saying that, I had 2 episodes last year, one in September when I had to be admitted into resus for a cardioversion by a drip to bring the heart back into sinus rhythm. I was allowed home after 8 hours. Then again in December where it stabilized in 6 hours without treatment, just attached to monitors.

My medication was increased from 3.75mg to 5 mg Bisoprolol.

I think my problem is anxiety-related but because of my age the A/Fib could cause a stroke or heart attack which is why I get admitted.
I've never had pain nor breathlessness, just a rapid pulse of 180 beats per minute which makes you feel as though you've been through the mangle. It's my electrics that misfire.

Ginny42 Thu 21-May-20 20:15:40

Hello Anne,
I had a chat with my friend who has a leaky heart valve to ask if she could tell us about the condition and what treatment she has. She does not have the arrhythmia, but they did find angina, so she has meds for that too. She said her consultant told her that hundreds of people have been living with the condition for years unaware that they have it.

She said that each time she had a blood test done it showed that she was anaemic so her GP decided to send her for tests. She had a scan and as she's far braver than I, she watched the screen and could actually see the leak. She was told there are degrees of severity from mild, to moderate and one stage between the two and severe. She is mild to moderate. Surely if yours was severe they would have called you back quicker?

Her consultant put her on what he called preventive medication of anti-cholesterol tabs, BP meds and Ramipril.

As Luckygirl and Patlsuggest why not call the consultant's secretary for a telephone consultation?

I'm glad you are feeling more confident and hope can get some answers sooner rather than later.

annep1 Wed 20-May-20 13:12:33

Thanks Pat.

Pat123 Wed 20-May-20 10:31:05

Check out atrial fibrillation on BHF British Heart Federation website. Also lots of helpful videos from BHF on Youtube. AF or Afib is a common heart condition where heart beats irregularly. You can have a telephone consultation with your GP or privately with a good cardiologist who can answer all your questons

annep1 Wed 20-May-20 09:39:40

Goodness Lemongrove that sounds scary. I'm glad they've found what was wrong. Thanks everyone for your information and advice. I feel more confident about asking for a fuller explanation now.

Esspee Wed 20-May-20 07:38:29

I have had an irregular heartbeat for the last 71 years. Initially it was treated with phenobarbitone but in my teens I was switched to beta blockers which I have been taking ever since.
I remember being told by my doctor that Churchill used to take them before speeches, appearances etc. to control his heart rate. (No idea if that was true) but I can assure you they work.
When we get stressed we produce adrenaline which raises our heart rate. Beta blockers open up the veins to increase blood flow and blocks the adrenaline surge thereby slowing your heart rate. It is a simple and very effective solution.