I was diagnosed in 2013. It took a long time to get the diagnosis and a persistent rheumatologist. There is no specific test so it is a process of elimination. I have ongoing symptoms which I manage but from time to time, usually following a streptococcal infection, I will have a full blown flare up. These are extremely debilitating and in my case can be 2 weeks before its under control. I hope this information is of help. If you need anything else let ne know. Have you been referred to a consultant rheumatologist?
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