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AIBU

Disappointed son

(33 Posts)
ninathenana Sun 18-Aug-19 09:20:17

Yesterday was our local carnival parade. The group for adults with special needs that DS attends gave out letters 2 wks ago saying they were entering with their decorated mini bus and if your coming please wear carnival outfits and lots of glitter (think Rio) letter gave a time and meeting place, where two members of staff will be.. Son dresses in his specially bought outfit and goes of excitedly to meet the others. He waited half an hour, nobody there. He walked to the starting place for the parade, no mini bus and no staff or anyone. Did they cancel and nobody told son ??
He rang home quiet agitated, as his autism can give him high anxiety levels.
DD and family were here and were going to watch parade so arranged to meet in town.
The mini bus was not in the parade and nor was anyone DS knew.
AIBU to think this is a very bad way for a branch of a national charity to treat vulnerable people ?

eazybee Fri 23-Aug-19 15:11:53

Have you discovered if the minibus in the parade was cancelled, and if so, why?

vickymeldrew Wed 21-Aug-19 18:36:55

Nina- come back and tell us what the charity said ?

HazelG Mon 19-Aug-19 21:21:43

This just broke my heart ninathenanna you are definitely not being unreasonable, I would be livid and they would need a police escort and barricades.
At least until I calmed down, which might take a very long time. angry

kittylester Mon 19-Aug-19 12:19:21

An apology is much use. Awareness raising would be better to try to prevent it happening again.

moggie57 Mon 19-Aug-19 11:50:29

i would contact the organisers and demand an apology..

Day6 Sun 18-Aug-19 22:28:17

Nina, I am SO sorry your son was let down so badly. He may have special needs, but any of us, expecting others in support, would be so disappointed, and feel abandoned if people ditched an idea at the last minute without ensuring our group knew it was not going to happen.

I'll just add a big 'well done' to your son for entering into the spirit of the event, I do hope he has got over feeling abandoned, because that was what the group did. They allowed one vulnerable person to feel alone.

Shame on the group for pulling out without notifying your son. Your son made the effort nina, For that he should be very proud. Good on him!

The group has questions to answer.

Tangerine Sun 18-Aug-19 22:18:21

You are definitely not being unreasonable and I am very sorry for your son and you.

kittylester Sun 18-Aug-19 21:37:37

And, nina, maybe likes to encourage her son to be independent especially as it was an event organised by people he knows.

BlueBelle Sun 18-Aug-19 18:52:24

Poster has already said there is no one at the charity to answer questions until Tuesday *gabriella
As her son is an adult perhaps he wanted to go on his own and as no one was expecting anything untoward there was no need to worry about accompanying him I m guessing

GabriellaG54 Sun 18-Aug-19 18:36:53

woud would

GabriellaG54 Sun 18-Aug-19 18:35:59

I'm pretty sure no-one would think you're being unreasonable. Woud you really expect some of us to say ' Yes, you're unreasonable to expect to be informed' ?
What youthink is what matters, not what we think.
It goes for anyone, not just persons who have unseen disabilities.
Why, when you know he gets anxious, didn't you or another family member go with him to see he was met, as they were going to the parade anyway?
Have you rung the charity or any of the other people who were going to see if they have answers?
The parade organisers would have had a list of entrants and they'll have answers as to why the charity pulled out even if no-one else has.

4allweknow Sun 18-Aug-19 15:24:20

YWNBU to be an annoyed. Terrible way to treat you and your son

Lock Sun 18-Aug-19 15:06:12

As a volunteer for a tiny local charity, we organise our events for the year at the annual AGM. Everything we attend is sorted out months in advance. I find it very odd that your son was only informed of something a fortnight ago, especially as it involved effort and money on his part.
I also find it odd that there was no emergency contact number for the day. I would have thought that was standard protocol for any organisation.

I would want to know their protocols and procedures.

ninathenana Sun 18-Aug-19 14:08:40

jaylucy it's my adult son not my GS

BlueBelle Sun 18-Aug-19 14:03:59

Personally I think it’s unforgivable to not have had direct contact with everyone believed to be involved especially with special needs people, messages can get lost so EVERY.person expected to attend should be personally contacted I feel it could have been a bit like Chinese whispers ‘oh could you let so and so know as well, Mrs P’
It will be interesting to hear what excuse they come up on Tuesday I feel so sorry for your lad

NannyC1 Sun 18-Aug-19 13:59:45

Hazeld. That's because Ageuk can recoup what they give when the house is sold. My Mum got new Windows and her central heating fixed. They took the cost of it back when her house was sold.

Esmerelda Sun 18-Aug-19 13:32:18

That has made me feel very sad, ninathenana and Riggie ... nobody, least of all someone as vulnerable as your sons, should be made to feel abandoned in this way.

Meanwhile, I do hope you keep us advised of what happened when you speak with them on Tuesday so we can find out why this happened (and I hope they too don't blame "everyone except themselves").

Hetty58 Sun 18-Aug-19 12:46:33

I'd be hopping mad too but maybe it was just down to an administrative error. These things do happen, however well organised people are. The aim of giving them detailed feedback should be so that they can minimise the chances of it ever happening again.

Riggie Sun 18-Aug-19 12:35:50

I had something similar happen with a national childrens charity that organised an event for SN kids that I had BOOKED ds into. Arrived and the place was deserted. Went totally mad at them and they blamed everyone except themselves....
It was a charity that I had a regular donation set up with. Which I promptly stopped

Hazeld Sun 18-Aug-19 12:17:14

Nothing to do with disability charity but Age UK. My mother who lived in a rented bungalow was in need of some help and I contacted Age UK to see if they would help and the first question they asked was ' Does she own her own house?' And when I said no, they didn't want to know. So much for charities. I wouldn't give them the time of day any more.

jaylucy Sun 18-Aug-19 11:47:57

I feel for the poor lad. Surprised that his parents were not given a mobile number to contact in any case. Also surprised they only organised it 2 weeks ago!
Maybe on the Thursday they were told that either because the weather forecast was bad, that they would not take part or if it was wet, they wouldn't take part ?
Hope it will be sorted out on Tuesday but in the meantime maybe you could take GS out for a special day to try and make up?

TrendyNannie6 Sun 18-Aug-19 11:42:06

This is really sad to hear poor lad. I agree you need to call them and find out all the facts if they had to cancel everyone should have been informed

fizzers Sun 18-Aug-19 11:07:24

It seems as though your DS was somehow overlooked and it appears that everyone else had notification except him. I'd be asking what happened.

ninathenana Sun 18-Aug-19 10:56:03

glamma it was a sunny day here smile the carnival went ahead and there were crowds watching.
The last meeting he attended was Thursday and he says nothing was mentioned then.
Yes, I have phone numbers and e-mails but only for staff. DS does not have any of the group members numbers.
They open Tuesday and I will call then.

glammanana Sun 18-Aug-19 10:47:53

nina Do you or your DS not have the phone no. of anyone who was at the meeting on Tuesday to find out if they know what has happened.?
It seems very strange that only your DS was not notified if the event was cancelled,could it have been cancelled due to inclement weather.