Gransnet forums

Ask a gran


(9 Posts)
hildajenniJ Thu 04-Sep-14 18:29:19

Does anyone have a grandchild with the condition Pathalogical Demand Avoidance. It was identified as part of the autism spectrum in the 1980's. My DGS1 has all the characteristics of this condition but has been diagnosed with Aspergers Syndrome. PDA is becoming more widely recognised but the psychologists and child behaviour specialists where GS lives have no tests for this condition. My DD and SiL need some strategies and advice on how to parent him. Any help would be gratefully received.

Nelliemoser Thu 04-Sep-14 18:34:32

Can you give more information about the nature of PDA by a link or such.

specki4eyes Thu 04-Sep-14 18:35:24

What are the symptoms?

Tresco Thu 04-Sep-14 19:25:50

When I was teaching I had one child diagnosed with PDA, and I also knew a head teacher who had a child with it. I believe it is usually diagnosed at the centre in Nottingham founded by Elizabeth Newsom
Not all pyschologists accept it as a distinct condition. There is a web site with inform
ation for familes here

hildajenniJ Thu 04-Sep-14 19:35:04

Sorry Nellie can't do a link, but in a nutshell kids with PDA avoid the demands made by others, due to their high anxiety levels they feel they are not in control. They obsessively resist ordinary requests and demands. They appear sociable on the surface but lack a depth of understanding. Have excessive mood swings, often switching mood suddenly. Very comfortable when doing role play and pretending.Some parents describe their child as a Jekyll and Hyde character. Here is a recent example of my GS's behaviour.
He's five years old by the way.
In the playground the children were asked to put away the games equipment my GS had a tennis racquet, an older child who was supervising him asked him to put it in the box, and when he didn,t the other child tried to insist. GS apparently wanted to do it in his own time so swung the racquet hitting the other boy and another little girl who was standing by. He became very upset and when others tried to comfort him he lashed out at them. These children come across as naughty and poorly parented, but their brains are wired differently to the rest of us.When he had calmed down he put the racquet away, but it was on his own terms. I don't think I've described it very well but if you google Pathalogical Demand Avoidance there are goo sites to look at. He's a lovely little boy most of the time but when I read that the "meltdowns" are a manifestation of panic attacks in young children with PDA I was in bits. Long post, sorry.

hildajenniJ Thu 04-Sep-14 19:37:05

goo ? my brain has gone to mush.

hildajenniJ Thu 04-Sep-14 19:58:06

Thank you very much Tresco the pdasociety website is very helpful. I am going to look after the DGC when my DD goes for her physio appt. and need to know how to get the best behaviour possible from GS if I have to take him to the shop etc.

Tresco Thu 04-Sep-14 22:01:13

One message seems to be that you have to keep changing tactics as they get wise to each one. It can be pretty tiring, thinking up new ruses for not asking directly for the behaviour you want. Good luck with it.

trendygran Fri 05-Sep-14 20:56:12

I recommend that you read 'Understanding PDA SYNDROME in children.' by Phil Christie and others. It is published by Jessica Kingsley and is excellent! He worked alongside Elizabeth Newson, who first recognised PDA and all the authors are experts in the field,
TRESCO is correct that diagnosis is made at the ELIZABETH NEWSON Centre in RAVENSHEAD ,Nottingham.
I hope you can get as much help as possible as, having worked with such children , I know there is still a huge gap in recognition and guidance. Very good luck in your search!