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Charlie Gard

(742 Posts)
devongirl Sun 09-Jul-17 18:18:35

My heart absolutely bleeds for his parents, but I can't help thinking it's time to let him die in peace..

Rigby46 Mon 10-Jul-17 21:52:14

I'm not being goady but do we really know that this information is true? Reported in the media does not automatically = true.

Coco51 Mon 10-Jul-17 21:54:43

It is a terrible thing to lose a child, but surely the love you have for a child must be strong enough to let go and stop his suffering. I do feel this is more about the parents than the child, but will the treatment they are seeking allow him to have a happy and fulfilled life, or will he always be so disabled that he needs 24/7 care? And if that is the case, who will give him that care if he outlives his parents? Will the parents' relationship be strong enough to survive the demands of constant care? It is a heatbreaking situation however you look at it

gillybob Mon 10-Jul-17 21:57:18

It could have been leaked via the courts Anniebach .

Rigby46 Mon 10-Jul-17 22:00:38

I think it's incredibly unfair to jump to the conclusion that GOSH have leaked it - they have behaved with incredible dignity and constraint in the face of the most dreadful and wicked provocation from the truly awful 'Charlie's Army'.

Iam64 Mon 10-Jul-17 22:04:51

I googled and the only reference I found to this baby being given morphine was on one of the Charlie Gard Facebook sites. The suggestion there is that the information was given in Court by the legal representative for GOSH. The comments on the page accused GOSH of starting Charlie on morphine in order to somehow cover up, and convince the Court the baby is in pain. I won't repeat more but I can't believe the type of comments being made will help anyone.

Iam64 Mon 10-Jul-17 22:06:10

Xposted there Rigby, don't know if you've seen the Facebook page but your phrase 'truly awful ' sums it up.

Ana Mon 10-Jul-17 22:06:23

TBH I have no idea whether it's true or not, I was merely answering Annie's question.

gillybob Mon 10-Jul-17 22:07:28

There really are only three possible sources of leaks aren't there Rigby46 ? The parents themselves, the medical team or someone present in court.

annodomini Mon 10-Jul-17 22:07:47

A summary of the available information:

www.theguardian.com/uk-news/2017/jul/10/charlie-gard-key-questions-answered

Rigby46 Mon 10-Jul-17 22:13:07

I agree gb ( if it's true) I was just irritated that ab jumped to the conclusion it was GOSH.

Ana Mon 10-Jul-17 22:13:24

I found more references than you did when I googled, Iam64. Mainly to daily newspapers, admittedly (but not the DM)

Anniebach Mon 10-Jul-17 22:17:33

Thank You Ana, Iam.

Rigsby I can't agree with your mocking of the people supporting the parents request , some who are genuine Pro Life campaigners have flown here from America, they are no different to those who campaign for causes they believe in , are those who csmpaign against fox hunting, which I have done but many support the sport. And I am not comparing the child with an snimal , just believe in people's right to campaign for causes which are their beliefs .

I don't defend the shooting of staff at an abortion clinic, hypocritical to take a life if one is Pro life .

annsixty Mon 10-Jul-17 22:24:51

I feel now that the child should be offered any treatment available or GOSH and the medical team will actually be accused by some of killing him.
This is a very sorry state to be in but things have now gone too far. I think that like animal activists, some people will respond in a dangerous way if he is allowed to die.
I say this with a very heavy heart.

phoenix Mon 10-Jul-17 22:25:21

So sorry if this has already been covered, can't read every post.

But if so much money has been raised, which I believe it has, and GOSH are reluctant to release the little chap, then why not let the American doctors come to the UK to try the treatment?

Rigby46 Mon 10-Jul-17 22:27:39

If you had the slightest idea of what CA was posting on Facebook ab - it's not about supporting the parents but about lying, libellous, wicked, evil, unfounded comments about GOSH and the staff there. That is NOT acceptable

Rigby46 Mon 10-Jul-17 22:29:19

GOSH can't release him, only the courts can order that. As for the US doctors coming here, I don't know but I guess it would be a legal and ethical minefield.

gillybob Mon 10-Jul-17 22:32:39

Plus a team of American doctors coming here could cost the lives of American children.

Rigby46 Mon 10-Jul-17 22:34:22

ann the staff are already being called murderers and worst online by CA - however most of them are archetypal key board warriors although it would only take a handful to behave badly I agree. The hospital will not win whatever now - even if the treatment happens and almost surely fails, it will be said that if only he could have had it sooner etc etc.

gillybob Mon 10-Jul-17 22:38:10

This is terrible for the dedicated team at GOSH.

merlotgran Mon 10-Jul-17 22:42:23

Surely the only answer to this awful tragedy is for the court to allow GOSH to release Charlie to the care of wherever it is the parents decide to take him?

The parents have raised the money and they are determined to keep trying so GOSH are on a hiding to nothing.

If/when the poor little boy dies at least it won't be on their watch. They've done all they can. sad

Anniebach Mon 10-Jul-17 22:47:12

Did the parents exploit social media ? They did run a campaign to raise the money to take their child to America, I hadn't heard of it, I knew nothing until the hospital decided to go to the courts for the right to allow the child to die, since then the parents quite naturally put their side of this deeply sad case

I don't think they are putting themselves before their child, obviously they carried out seeking information on the Internet and doing this have been given a glimmer of hope, I still cannot come down on one side or the other because I don't know if I would do the same or accept the hospitals decision,

I don't think the court will change the decision to allow the child to die here, I do think if they did overturn the ruling it will cause many problems for the hospital , there could be other parents who may question the diagnosis given by the hospital.

As they are giving the little one morphine I think they were mistaken to delay ending his life

Nelliemoser Mon 10-Jul-17 22:55:47

Thanks to Annodomini for the information in the Guardian article.
What is the damage to Charlie?

(This is the most comprehensive information I have seen.)

Charlie is in intensive care at Great Ormond Street hospital in London, the leading children’s hospital in the UK. Life support machines are keeping him alive. The hospital says that he has severe brain damage, cannot move or breathe by himself, is deaf and has epilepsy. It says his heart, liver and kidneys are also affected. His eyelids cannot stay open and because of the weakness of the muscles, his eyes point in different directions and the damage to the brain will not allow his sight to develop.

This in a nutshell is what this poor child is up against. A genetic failure that causes a wide range of extremely serious health issues which at its worst affects almost every cell in the body.
Poor lad and poor parents but the appearence and behaviour of what has been called by protesters "Charlies Army" is totally disgraceful.

Rigby46 Mon 10-Jul-17 23:01:37

But merlot the courts have to act in the best interests of Charlie - they can't just wash their hands of him. The judge is considering the 'new' evidence and will then decide

Welshwife Mon 10-Jul-17 23:06:12

I feel sorry for the Judge!

merlotgran Mon 10-Jul-17 23:06:58

I don't see it as washing their hands though.

GOSH have tried to act in Charlie's best interests so if the courts insist they are right and life support is withdrawn they'll still be seen as the guilty party.

It's a mess.