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Grandson to have a stoma bag fitted

(15 Posts)
089fraZZeledApricot Wed 26-May-21 19:02:50

My 9yr old grandson is to have a stoma bag fitted for possibly 2 years. Does anyone have experience of this in children?

BlueBelle Wed 26-May-21 19:32:32

I m sorry I don’t have any experience but just wanted to say
I m sorry to hear this and I hope you get some good advice Poor chap children are usually very resilient though and handle these things much better than we expect x

greenlady102 Wed 26-May-21 19:35:13

My late husband had one. it takes work to get used to it but nowhere near as bad as we thought x

SueDonim Wed 26-May-21 19:44:45

A friend’s 11yo daughter had a stoma to deal with colitis. She eventually had it reversed with what was a major, pioneering operation at that time. That has been very successful.

To be truthful, coping with the stoma wasn’t easy for her at all, psychologically rather than in practical terms. I think maybe today, 30 years on, things are more sophisticated and there is more help available so I hope your GS comes through it ok.

Urmstongran Wed 26-May-21 20:24:58

Ah 89 I didn’t just want to read & run.
Wishing you & your family all the best. 9y must be so hard to bear for you all.
I hope all goes well for the lad. I’m sure he’ll have the best of care. x

annodomini Wed 26-May-21 20:36:49

When DS2 was just 2, he had a major operation to remove a section of bowel and was fitted with a colostomy to allow to operation site to recover. Not easy with a very active and mischievous toddler. No district nurse or health visitor came to see us. Two or three times he fell flat on his face, the stoma prolapsed and I had to take him to hospital to have it put back under anaesthetic. Eventually, after two months, they decided enough was enough and closed it. There were one or two setbacks but he was a robust child and is now a 48-year-old dad, still taking part in running, cycling and hockey.
So your grandson should be fine as he is old enough to be careful and not let the thing prolapse. He might not be able to do all the activities that he peers take part in, but perhaps by the time he is a teenager, he will be able to live a more normal life. Good luck to him.

MelBB Wed 26-May-21 21:46:19

I think it's more scary for adults sometimes - kids are very good at accepting things as they come. I'm sure that if it's talked about in practical terms, he will hopefully feel responsible in managing it, with a bit of help. It is his 'special need' and he will probably do well to understand how it will help him - a super bag, of sorts. Maybe call the bag a friendly name of his choosing - just a thought because of his age. Perhaps consider school and activities, also whether he will tell friends and how because kids do tend to share things. I think it'll be his 'normal' and it'll be good to treat it as such - normal. Good luck. xx

Atqui Wed 26-May-21 22:01:41

Do hope all goes well .

crazyH Wed 26-May-21 22:19:45

089, I don’t have any knowledge or experience, but take comfort from Annod’s son. I’m sure your grandson is going to be fine. Children cope better than the loving adults around them. Hope all goes well and the future looks bright for the little soldier. I note that the stoma is only for 2 years, so he will be fine and things will be back to normal xx

Chardy Wed 26-May-21 22:27:45

As a Y7 tutor a while ago, I had a kid in mybtutor group who'd had one fitted the previous year - he was very together with it.

harrigran Thu 27-May-21 08:16:53

We had a friend that had a baby born without a rectum and anus so has had a stoma since birth. He has not known any other way of life but children are more resilient than a lot of adults.
I understand your concerns but as I have a stoma too.

harrigran Thu 27-May-21 08:18:06


089fraZZeledApricot Thu 27-May-21 21:07:54

Thank you all for your kind and supportive messages ❤️

CocoPops Thu 27-May-21 22:41:54

Stoma care nurses are trained and will look after your grandson's needs and maybe able to visit him at home.

welbeck Fri 28-May-21 00:27:54

yes, i was just about to say, there are specialist nurses who will be able to help the patient adapt and cope with it.
i think the adults around him should try not to communicate any negative feelings or fears about it.
just regard it as a practical issue, to learn about and get used to.
all the best to him and family.