I did read an article that said that, had treatment being offered earlier [before he had seizures] his prognosis would have been much better. It sounds like quite a complicated, rare case. I keep thinking, though, of the family that 'kidnapped' their child from a hospital couple of years ago and took him for treatment abroad when there appeared to be no hope for him here. Does anyone know what happened? I believe the treatment was successful. None of us know how we will react in certain circumstances, do we? However, I do feel that, in Charlies case it seems wrong to prolong any pain that he may be in. Terribly sad case, though.