Grandson has rare leukemia. Not sure how much longer I can hold up.

I've been thinking about him all morning, feeling so ill, but so bored.

I've just joined Snapchat where you can put filters on your photographs, that might be fifteen minutes of 'techy' fun.

Not sure how many drips he has in, can he move his hands easily Mebster? Could you get him an old fashioned gameboy or Nintendo DS? Just for something different that he wouldn't normally use with his friends. My son learnt to read as he wanted to play his Gameboy.

When my husband was in hospital he liked to play cards and taught me every game he knew, I always lost ;)

I love the robot idea.

Sending you all my love and ((hugs)) to you and your family at this sad time xx

Oh how awful for you all, I am so sorry to read this but hope all the support on here will give you strength.

I am wondering if the parents trust you so much that they feel you are doing such a good job by sharing the load. Perhaps you are better at finding interesting things to do with him than they are? It is lovely that they allow you to send so much time with him.

Last night on the local news there was a young lad in hospital for a long time and someone had provided a robot for his class at school so he could interact with them all. It was so lovely and made me cry. Does he manage to video call his friends, Skype, Facetime, WhatsApp etc.? Perhaps other Gns could think of different things which could entertain him?

Having worked in Haematology/Oncology, I would just say that cure rates for children with leukaemia are really encouraging. I know it’s so difficult, but please never give up hope,
My heart goes out to you and your family xxx

What an awful thing for you all to be going through . Are there any services you could access through the hospital? Our Spiritual Care team is great at supporting families going through difficult times and offer a quiet area for reflection, and you don't have to have a religion to use them - maybe there something similar at your hospital?

Sending you positive thoughts and much courage

I hope he is comfortable Mebster, poor boy having to go through this. Big hugs to you all x

Just can't even begin to imagine what you are going through. I am so so sorry, and hope he will get better <3

No wonder you're heartbroken, Mebster. That's tragic.
As the last poster said surely there are support groups for families. You and your husband need to stay strong ..

Is there support for the families going through this?
Ask at the hospital - I think it would be useful to have someone to share this pain with, someone who has been there. It might also help him, his parents and even his sibling...

Sending love.

Gonegirl, thank you. We were some of the lucky ones and I am so very, very aware of that.

mobster I am so sorry about your lovely grandson- I am thinking of you both.

Apricity

Oh God. That must be the worst thing. I am so sorry.

God bless you and your little grandson. And all your family. x

Sorry to read about your grandson, Mebster I do understand about not being able to face friends. Messaging people is one way of keeping in touch without worrying you might break down in the middle of a conversation.

Sending my best wishes.

Mebster sorry to hear your Grandson is poorly, sendind love and hope to you all ?

Mebster I am so sorry to hear this about your grandson. My very best wishes to you and your family.

Dear Mebster, my thoughts are with you. Hopefully, this is the type of leukaemia that can be treated and cured.
Hugs for you all

I can't add any more to Twiceasnice post. Only to say you have my sympathy and I know you will be able to help your grandson through his illness. God bless you all.

I have nothing to add to the replies already given.
I just wanted to send love to you and all your family and strength to cope with this sad situation.

I feel for you very much . My son was diagnosed with acute myeloid leukaemia in the 80s. He spent a long time on hospital and we had a lot of support from grandparents and friends. Grandparents actually moved onto our house whilst we were living at the hospital as I had an 8 month old baby and his other sister was 7, he was 4.

It was a terrible time although the hospital we were in was wonderful to us all. He knew very much how I’ll he was, they have a sixth sense. Please keep your grief to yourself when you see him don’t let him see you cry. As bad as this is you and his parents must dig into your inner strength and put him first always. Do all you can to distract him and find fun ways to engage when he is well enough. One of the cancer charities may well give you extra support but only fall apart on private. Treatment is much more advanced now take a day at a time and have hope. I send you my prayers

Mebster...I cant begin to understand what you are going through, but I can send you and your beautiful gson my sincere and heart felt good wishes.

If you can please use gn as an outlet for your pain and try to keep smiling for your lovely gs , not forgetting his brother and mum and dad.

Good luck

My prayers for all of you.

Sending you my sincere good wishes . I hope the little chap makes a full recovery. I am glad you are able to be with him.
I spend some of the time when my DH goes for cancer treatment at the Maggie's Centre. Is there one near you? They are such a support and a peaceful retreat for anyone affected by cancer.

Mebster - can only wish you all well and pray that your little DGS comes through this terrible illness.