Way back in January I suffered 'Carer Breakdown' resulting in a 2 week stay for OH in Respite Care. Whilst there he was assessed as needing round the clock 24/7 care and as I was assessed as being unable to provide this consistently, urgent admission to a Care Home was recommended. Nothing happened for weeks, then I was presented with a list of 6 Care Homes, all in a neighbouring County, one 40 miles away, the nearest five miles away in the City Centre with no nearby parking nor direct bus route.
Meanwhile I knew that there were vacancies in the wonderful LA Care Home in our village. It is 5 minutes walk away from our house, at the other end of the same street. We know it well as my Ancient Uncle lived there for his last 7 years and we have kept up contact , helping out with fundraising activities, etc.
However, locally we are in the throes of the 'Integration of Health and Social Care'. This is still in its infancy a 'work in progress', which so far has produced reams of Mission Statements, long term plans, financial statements and protocols, the establishment of numerous sub-committees with representatives from local Councils, Carer's organisations and the Voluntary Sector, plus the appointment of Chief Executives and deputies, none of whom seem to have any local knowledge.
One of the pronouncements to emerge from this mish mash of governance was that the 40 bed Care Home in our village was to be closed, the prime site where it sits was to be sold and a replacement Care Home to be built nearby on land already in the ownership of the LA. The intention was that the existing home would continue to operate until the new home was ready, when the entire staff and residents would move to the new facility. Unfortunately, a clerk to the Committee, noted the intention to close and issued a 'No new admissions from 01/04/19 pending closure' notice.
IF our Social Worker had cracked on with OH's referral before 1st April OH would be there now, but she was off sick.
IF I our local Councillor had been aware of this we could have done something sooner but the relevant meeting was cancelled and reset for a month later so that the new CO would be in post. However Cllr L has lobbied and pushed and I (with the encouragement of Care Home and SW staff ( who are prohibited from making any statements) have contacted everyone I know with any influence.
RESULT! At last Thursday's meeting of the IJB the closure order was rescinded, SW rang on Monday to ask if we still wanted a referral [YES OF COURSE], Home rang on Tuesday to say they had the referral and came that evening to 'assess' OH, Wednesday they called to say that they were willing to admit OH and they will be back in touch with details prior to admission NEXT WEEK!!!!
Everyone seems to feel that I have achieved a Victory of reason over bureaucracy, but I do not feel victorious. I know that this is the very best possible outcome in the circumstances for DH (and for me and the rest of the family). However, all of a sudden I have to face the prospect of living alone (which I have never done) and handing over the responsibility for DH's care, safety and comfort to others - a failure to cope on my part.
To think that London, or anywhere else for that matter, does not belong to any one demographic
Baby Reindeer - anyone watched it?