My wife and I look after one of her grandson who has PMLD. He’s non-verbal, needing 24/7 care and help with everything. We have just stopped using an agency to provide us with help because the so-called expert carers they sent were mostly awful...
They left more work for us-well for my wife really because I can’t do much these days - they’d leave him on wet sheets, a dirty bath, water on the floor and much worse. Two of them were aggressive towards me because I would question the standard of their work.
Agency managers don’t believe us if we complain to them and they can stop sending carers if they want because they are private businesses.
This was the third agency we’ve used in times when we don’t have our own PA’s, and they have all been the same.
You are right Raniog, they don’t care because they don’t understand what it is to have PMLD or something similar.
We are lucky that we have just found one person to work as his PA. But if we ever need help from an agency again, we’ll have trouble getting one!!
Hope you have better luck now