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Care & carers

Mother with advance dementia

(29 Posts)
Anne107 Sat 14-Jan-23 20:23:07

So difficult living with my mother aged 91 with advance dementia. I now regret agreeing to move in with mum full time and am really starting to resent. She suffers from what is known as ‘sundowning’ at certain times of day where she can become very argumentative and aggressive. She has had falls the last of which she dislocated her shoulder and was in hospital for 3 1/2 weeks at the end of which I decided to move in with her. I am finding it difficult and at times just want to cry and am feeling so low and depressed. I should not have decided to move In with her but should have let her in ward whereby a care home eventually would have been found. You cannot even have a reasonable chit chat because she just doesn’t make sense in whatever she is saying. She has lost interest in TV or radio. She has hallucinations seeing children and people. She asks same questions over and over throughout the whole day. She demands 24/7 attention. I am 69 with heart disease and diabetic. I just cannot keep living like this. Help!

Dillyduck Fri 20-Jan-23 03:27:30

Have you contacted Social Services for a Needs Assessment for mum and a Carers Assessment for you? Is mum getting Attendance Allowance? Claiming exemption from Council Tax? Formal diagnosis of dementia?

Redhead56 Fri 20-Jan-23 10:59:59

My mum developed dementia after a serious incident that happened to her aged 87. She stayed at home after hospital rehabilitation for a few months with around the clock care. When it was obvious that wasn’t working she had to go to a local care home.
Although nice surroundings she was very unhappy and had developed three distinct moods. One day laughing singing watching tv. The next day sobbing her heart unwilling to talk with anyone. The worse days she was aggressive abusive and would physically lash out at anyone including me. It was totally heart breaking to witness my lovely mum end up like that. She was in hospital with a combination of conditions and died after a few days age 94.
Get all the help you can do not try to deal with it on your own. Let the professionals deal with it they know how to ensure your mum gets the best care.

Witzend Sun 29-Jan-23 21:36:15

silverlining48

Just to clarify it is really not advisable to go it alone and place someone in residential care without first contacting social services fir a full assessment. Even if you pay the full rate you would then have security and some benefits not available to those who are just moved in by family.

We did just that twice, with my mother and my FiL, no SS input at all. TBH we didn’t see how anyone who had never met them before (since we’d never involved SS ) could understand their needs better than we did.

Especially since with strangers, people with dementia are often very good at what is called ‘hostess mode’ for short periods, i.e. giving a much better impression of how things are, than what the family see on a daily basis.

They were both self funded. We looked at many care homes for each of them before choosing, but the time and trouble taken was well worth it.
I don’t know what you mean about ‘having security’. There was never any question with either of them, of not having it. My mother was in her excellent care home (incidentally by no means the most expensive) for 8 years until she died at 97.

I don’t know what extra benefits you mean, either. They both already had Attendance Allowance, which we’d applied for some time previously.