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Kindness for hospitalized husband's wife

(28 Posts)
Macadia Wed 18-Dec-24 04:12:31

My husband has been hospitalised for some weeks now because he unexpectedly began to become paralysed- all of his limbs. I am unable to see him because I am working and not allowed any time off. Everyone is asking me for updates so they can speculate and give uneducated guesses about what is wrong with him and what they're suggested treatment is.

I just had the nicest phone call from my sister asking if she could come to my home to take care of my work to allow me to see and visit with my DH.

No one has even offered that before. She must know how my heart is breaking. I'm not asking for your pity. I'm just advising those who want to help someone who's loved one has compromised health to put themselves in the place of the primary carer and then decide what would be the best plan to help the carer.

I don't know if I'm making sense but I thought I should post this because her actions really touched my heart.

Macadia Fri 20-Dec-24 20:28:04

Macadia

my DH is not going to get out of hospital soon. He loves me so much that he has asked me to find someone to take care of me in case he is unable. How do I even move forward with that request?

I know how to move forward with that request: ignore it.
I don't need anyone to take care of ME.

Macadia Fri 20-Dec-24 06:17:52

Thank you "Poppysmum". It is a strange time indeed.

Macadia Fri 20-Dec-24 05:54:24

He had a spinal tap, lumbar puncture and they are thinking GBS or thiamine malsbsorption. He is currently on a Suicide Watch by my request.

Macadia Fri 20-Dec-24 05:48:40

I finally got to see him last night. I bathed him in a chair. I soaked his tired feet in two bucket and scrubbed his tired soles. I washed his beard, his face, his hair. I changed his bedding, changed his clothes. I moistuized his old skin and he said he feels like he must be a king.

Macadia Fri 20-Dec-24 05:45:14

my DH is not going to get out of hospital soon. He loves me so much that he has asked me to find someone to take care of me in case he is unable. How do I even move forward with that request?

Allira Thu 19-Dec-24 21:18:14

Also it might be a reaction to his body not able to absorb thiamine.

Not heard of that but B vitamins are odd ones, aren't they.
I know a couple of people who have to have regular B12 injections.

Georgesgran Thu 19-Dec-24 13:38:48

I’m sure we do eddiecat78 but in the original post, Macadia said she simply wasn’t allowed time off and there was no mention of her profession - a dog sitting service.

eddiecat78 Thu 19-Dec-24 12:55:15

People who have never been self employed don't seem to realise that if you don't work you don't get paid and if you let people down you probably won't be asked to work for them again

poppysmum Thu 19-Dec-24 09:01:51

I think people are unsure what to do or say to be honest. I do hope you will soon get answers and can set your husband on the way to recovery. take care of yourself too

Macadia Thu 19-Dec-24 07:33:53

Thank you everyone for your concern but I am not suffering.(DH is).

Macadia Thu 19-Dec-24 07:32:40

Yes it might be GBS. Also it might be a reaction to his body not able to absorb thiamine. I was able to visit him today and it was so wonderful. I don't have an employer but work for myself taking care of people's dog while they go on holidays so I can't take time off when promised to be here. Now I have 3 days off. My DH will be home soon.

Macadia Thu 19-Dec-24 07:29:24

Thank you for your most kind and loving replies. I did not want anyone to think of me - I am fine - but to notice what my sister offered because a lot of times we want to help or don't know what to do and her kind offer hit it spot on so I only wanted to share with others this experience in hopes they take note and remember this if ever they find a dear friend in this situation. That's all.

Allira Wed 18-Dec-24 23:17:24

Not wishing to frighten you, Macadia, the recovery rate for GuillanBarre Syndrome, if it should prove to be that, is good although progress might be slower in some than others.

Allira Wed 18-Dec-24 23:12:46

Aldom

Whethertomorrow please note.... The OP is a regular poster.
It could be very upsetting for her to read what you have written. *GuillanBarre Syndrome*is a real
probability re sudden paralysis.

I do know of someon who suffered from a sudden paralysis after having the AstraZeneca Covid vaccine, the first one released. He had been a fit and active builder.
I met him at physiotherapy after he'd spent time in hospital.
We know another, older man, who suffered the same immediately after the vaccine.

Has your DH been vaccinated recently, * Macadia*?

Before anyone responds to me in a negative fashion I am not a conspiracy theorist nor an anti-vaxxer, having had some vaccines, but both cases gave me pause for thought.

Aldom Wed 18-Dec-24 12:49:25

Whethertomorrow please note.... The OP is a regular poster.
It could be very upsetting for her to read what you have written. *GuillanBarre Syndrome*is a real
probability re sudden paralysis.

crazyH Wed 18-Dec-24 12:40:37

Macadia’s lucky to have a kind sister. Sorry to hear about your husband

Georgesgran Wed 18-Dec-24 12:29:34

I was about to ask much the same as Sago. It’s a poor employer that doesn’t offer some compassionate or even unpaid leave. Perhaps the OP doesn’t have transport and he DH isn’t in a local hospital, but what about weekend visiting?

Very odd situation indeed, although kind of her Sister to help though.

dogsmother Wed 18-Dec-24 12:11:59

Whetertomorrow this sounds like guillain barre syndrome and not made up at all. It’s very frightening but totally recoverable with time and work, although it’s not a given.
So please don’t be to quick to judge.

FriedGreenTomatoes2 Wed 18-Dec-24 12:06:27

Macadia so sorry your situation sounds very frightening. What you need right now is tangible support. I’m glad you have it. I hope your husband recovers soon and you get answers about his illness so you know what you’re dealing with.

Allira Wed 18-Dec-24 11:35:36

Macadia has posted on other threads.

I'm really sorry to hear this, Macadia but what kind of firm would not allow compassionate leave or flexible working t such a time? Can you approach them to find out?

Your sister is very kind, can she manage your job or will she need to be trained?

A worrying time for you, I hope they can get to the bottom of it. flowers

Primrose53 flowers for you and hope your DH is recovering.

Whethertomorrow Wed 18-Dec-24 11:20:19

Message deleted by Gransnet. Here's a link to our Talk guidelines.

Lovetopaint037 Wed 18-Dec-24 10:18:47

Is the hospital difficult to get to. Do you drive? Seems strange that you are not allowed to have time off in such circumstances. Surely you could leave early so you can get there. I would just tell them you can’t come in or have to leave early as you must see your dh. Also you need to see a doctor or whoever can give you up to date information. Your dh needs you..

Redhead56 Wed 18-Dec-24 10:06:40

Macadia I hope your DH makes a full recovery and your DH Primrose53 and you both get support from family and friends. The support is what keeps you going at difficult times and it means a lot when you need it.

Sago Wed 18-Dec-24 09:48:10

What country are you in?
Why do you work all day and evening and are you not aware are employment laws.?

Primrose53 Wed 18-Dec-24 09:39:48

Macadia so sorry to read this and hope you get some positive news soon. Don’t you get any time off at weekends when you could visit? Your sister’s offer is a lovely gesture.

My husband is also in hospital (3 weeks today) following a bad stroke. I have had some lovely offers of help but so far we are managing but it is heartwarming that people offer.

Hope things improve soon. Xx