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Care & carers

Community care officer costs

(29 Posts)
MyL0 Mon 03-Mar-25 02:11:04

I have multiple disabilities causing complex needs and get both higher rate disability components. I have needed to use an Advocate to liaise and try and get help put in place and have been fighting for years someone asked if I really need the help then but it’s no reflection of my needs. The advocate has stopped working with me, I had them for a long time and they understood me very well but I don’t want to get another one and go through the process of getting to know each other all over again. I have finally potentially had help put in place, I’ve been offered a community care officer assistant and have been advised that it’s a chargeable service at the council. They do an affordability check and ask what benefits I am on and decide I can afford to pay for it with the disability payment but if I do that I can’t cover the other costs incurred by my disability if that makes sense. I’ve had this problem before where I was given an affordability check for outreach counselling and they wanted my entire care component. I also get universal credit can’t work for the unforseeable. I use the money to buy crafts, books and music which give me some quality of life with hobbies at home that isn’t just sitting infront of a tv or just existing staring at the wall. I don’t know if there’s a way around this

MyL0 Tue 04-Mar-25 17:08:16

I sent too soon. I had a financial assessment a while ago asking me what my income is they didn’t ask me what I spend it on so I declined because I can’t see how I can afford it. So now it’s been a while and I have been referred there will be a new assessment where they will do the same thing and tell me to use my disability payment. But if there is an appeal for that I don’t know how to do one

Astitchintime Tue 04-Mar-25 17:19:38

BlueBelle

I don’t really understand some of this… grass cutting service £250 why don’t you get an odd job man/gardener /teenager ?

They won’t knock a school down and just leave the kids standing there will be alternatives in place

What’s your brown bin for? We pay an annual fee for our gardening bin but you don’t sound like a gardener!!

Don’t you get a free bus pass for being disabled or over retirement age I don’t drive either, but don’t use taxis

If it’s a PA you are needing then Notagranny is right there
will be a fee incurred but that s what your attendance allowance is for surely

Yes, I thought exactly the same as BlueBelle

Barleyfields Tue 04-Mar-25 18:28:40

Your disability payments (not your universal credit) are intended to be used to help you pay for things you need because you are disabled, such as getting a taxi or any help you need at home or with personal care that you can’t manage yourself. It seems you have been told you are entitled to some help but you don’t know how much it will cost. Am I right there? It’s worth seeing what’s on offer and what it would cost. You don’t have to accept it. I would suggest you find out exactly what help you can get and how much it will cost, then you can decide if it’s worth it. It sounds as though you’re managing well with getting your shopping delivered so you probably don’t need help with that, but perhaps a little help with your finances would be useful so you have a clear understanding of how much money you’re getting and how much you’re spending, and on what. For instance your phone costs £20 month and you could get it cheaper than that. Don’t be afraid to see what’s on offer, you might find something very useful that’s well within your means. Remember nobody can make you use a service if you don’t want to.