Gransnet forums

Chat

my dad

(124 Posts)
granbunny Sat 21-Apr-12 20:34:58

not so much a discussion topic. just an off-loading of some thoughts.

my dad had his eightieth birthday yesterday. he is a full-time carer for my 77 year old mum who has both physical and mental problems. his daily life must be a living hell. his own health is failing now but the last 22 years since he retired could have been a time of happiness and relaxation for him and it hasn't been.

there are things he could do to help himself. my mum receives a carers' allowance - she could spend some of the money on buying in some care. but i think they might be spending it on household expenses - they live in the ranch-style bungalow they have been in since 1959. my mother's mental state would suffer if her routine or surroundings were disturbed.

i spend an hour or two with my mum on saturday mornings. dad used to go out but the weather has been bad and i think he's lost heart. he's gardening though, planting potatoes and blueberries, which i try to encourage by eating a lot of his crop...

i see them on wednesday evenings for an hour. i drink tea, eat cake and watch eggheads with them. my dad gives me a two-minute lift home which gives him chance to offload if my mum has been particularly awful.

i am going to start phoning during the week, as he needs more support. but there is nothing more i can do.

officially, we are estranged, my parents and i, due to them leaving their all to my brother in their wills. they have known for many years that i will not be taking responsibility for them. and my life is already a challenge, with the work i do and the commute, and my own health issues. but i feel sorry for them and wish things could be better.

i haven't said much about my mum. she was the most beautiful, lively, young woman - bit of a chav, but there you go - but damaged by her childhood. she was my (unstable and sometimes destructive) best friend in my youth and very dear to me until they drugged her into what was in effect a waking coma for eleven years. i did my grieving then, as i'd 'lost' my mum. my dad went against the psychiatrists and reduced her medication, thus keeping her out of a home for another ten years. her life is limited and her mind is unhealthy but she is calm and well-cared-for.

but i think dad is coming to the end of the line now. i don't think he can do it any more. he set himself a target of keeping mum at home until they'd been married sixty years (september 2014) but i could see yesterday that he doesn't think there will be another family birthday party (we spend 30 minutes to an hour together - we don't like a fuss!).

i know it is an incredible privilege to be a grandmother and still have a full set of parents of my own. i know i am blessed. but i wish i could wave a magic wand and make it all alright. make my mum fit to walk and pleasant to talk with and with her own interests. make my dad free to go about and enjoy himself - maybe get him a shed where he could meet with other old blokes and get up to naughty things like making wooden go-carts and 'saving' frog-spawn - the sort of things they like to do. having a brew and a gossip.

do your remember the puppet orville? 'i wish i could fly... but i can't'.

granknit Thu 05-Jul-12 08:40:45

Hope your situation has improved over the months.
No one mentioned Crossroads Care, your Dad would need to contact them through Social Services (Early InterventionTeam ?),i think you can have up to 12 visits free and then need to apply for funding. Idea is that you get someone who supports the carer by visiting the one needing care, so your Dad could get some free time.
The Alzheimers Society is also very supportive to those with all sorts of issues.
Best of luck.

bikergran Sat 16-Jun-12 12:37:25

granbunny just saying hello hope things will improve for you sooner than later.. smile

soop Sat 16-Jun-12 12:15:21

granbunny You've a huge amount of support from "us lot" on GN. You have done incredibly well. You now deserve time in which to be yourself. Many good wishes from Kintyre. flowers

glammanana Sat 16-Jun-12 08:08:00

granbunny such a well deserved break for you I am so glad you can relax at last,don't be a stranger and join in with the conversations it will be good for you to keep in contact with your friends here on GN Take care of yourself.flowers

granbunny Fri 15-Jun-12 23:22:32

thank you so much, everyone! i thought i was a bit cheeky coming back after such a long break - thank you for your kind comments. flowers

i've been with daughter and grandaughter tonight, and tomorrow, as i'm not sitting with mum for the first time in years - i'm going to work! i can't believe the luxury...
wink

i've told brother i'll do a four hour shift each evening while dad is in hospital, to let him have a break. but other than that...i'm keeping well away!

Ella46 Fri 15-Jun-12 07:41:58

granbunny I too was thinking about you yesterday,so glad to hear that things are moving for you.
Look after yourself now and let others take the strain for a while. It is incredibly stressful dealing with all this and you need a break.

nelliedeane Fri 15-Jun-12 07:35:03

So pleased to hear you have support at last granbunnyI too had been looking for your posts...have a rest now you deserve it,hoping dads treatment goes wellxxxx

Butternut Fri 15-Jun-12 07:19:38

gn It was only yesterday that I thought I hadn't noticed you on this thread for a while and found myself wondering how things were going for you.......same vibes as shysal.
So I am delighted to read things are easing up for you and hope you will find some time for yourself now.

Ariadne Thu 14-Jun-12 21:43:11

granbunny time for you to rest, now! flowers

shysal Thu 14-Jun-12 21:39:08

I must have conjured you up granbunny! I was wondering how things were going for you and your family. What a long time it has taken to reach this point. I don't blame you for stepping back now. flowers

granbunny Thu 14-Jun-12 20:29:33

social services finally got to parents' house yesterday. mum can go into respite, any time, drop of a hat, they'll keep her details on file. gp says primary care will cover the cost as she's been sectioned in the past but she'd have to be assessed by a consultant (though he thinks the outcome of that meeting will be predictable - she's barking!).

brother is caring while dad goes back into hospital, end of next week, i think.

currently, i'm not speaking to either parent (dad said he'd rather commit suicide than spend any of his money on care! i said 'how much of this money can you take with you when you go, dad?') so i'm having a welcome break. go me. ;)

glammanana Sat 26-May-12 18:17:47

I was pleased to read your latest post but not amused by the help you are not receiving from SS,they should have sent someone out to access your parents by now I have a feeling that they realize that you and your brother will pick up and deal with the problems yourselves,sometimes I think that unless you really shout loud and long nothing gets done,are you off at all during the next week or so (do I remember you being a teacher)if you are then spend every day on the phone to SS and start at the top if you can find out who is head of SS.Very best of luck and (((hugs))) for you,you need one.

granbunny Sat 26-May-12 17:20:45

thank you, both.
i'm trying not to take any leave yet, though i did have permission to leave ten minutes early one night last week. dad will go into hospital probably around the end of june, and if there is no other way to care for mum i will have to take time off.

greenmossgiel Sat 26-May-12 17:05:33

granbunny, you're doing a great job. You'll be exhausted and weary with all the worry. Be kind to yourself and take care. Keep hassling the Social Services. Is their any chance of your being able to take time off from work (compassionate leave) until things are sorted out for your mum and dad?

soop Sat 26-May-12 16:57:44

grannybunny I can sense your utter frustration. Well meaning words from SS and the likes are all very well and nice. For crying out loud...it's action that you want...ASAP!

granbunny Sat 26-May-12 15:46:14

thank you! flowers

Ella46 Sat 26-May-12 08:40:56

Granbunny Take care of yourself,((hugs)) [flowers]

( I'm nanachrissy) xx

Sorry the emoticons aren't working at the mo!

granbunny Fri 25-May-12 20:52:11

social services said they'd come round but haven't. hospital sends letters and nothing more. gp sent a commode chair - useless as its the getting in and out of bed that's a problem for mum, and emptying the chamber pot would just be another unpleasant job for dad or one of us. i'm over-worked and still spending odd nights on mum's bedroom floor so dad can get some sleep. brother is doing the rest. but i've been at their house three nights this week when i didn't stay, for various errands. and tonight i'm going back, to stay over. ah well. dad feels well-supported, which is nice!

glammanana Sat 19-May-12 23:31:02

So glad that things are easing up a wee bit for you just keep pushing for respite care and any other help they can come up with as you need some respite also,I honestly don't know how you are all managing under the pressure,keep on at social services every day and they will listen in the end I know as I had to do it for my dad it is not pleasent to do but you have to think of yourself and you own health.flowers

granbunny Sat 19-May-12 10:41:45

thanks again, everyone! we are hoping social services will be able to help. mum might need respite care while dad is in hospital, even if she doesn't need it permanently. or, maybe, she will need long-term care. we don't know.

dad is very emotional. a friend from his youth died this week. has heard from neighbours and his two younger brothers (one previously estranged) since coming out of hospital, which has made him happy. he says 'life is too short for arguments'.

i'm on a mobile phone quest this afternoon. i've found big buttons and extra amplification so i think i'm onto a winner grin.

greenmossgiel Fri 18-May-12 20:38:28

granbunny, warm wishes. What a hard time for you all. I've never had to deal with the type of thing you're going through, but my heart goes out to you. You're stretching yourself as far as you can, so try and take care of yourself. flowers

nanachrissy Fri 18-May-12 20:04:41

Granbunny I'm also pleased to hear your dad's home and there will be help for them both. Say yes to anything the social services offers!
Look after yourself too. ((hugs))

nelliedeane Fri 18-May-12 19:44:04

Granbunny I am pleased things seem a little brighter for you and your family,and the pressure is easing a little bit,it does help to know you have the help and support on board now and you wont have to struggle on your own,best wishes to mum and dad and the rest of the family flowers

nightowl Fri 18-May-12 19:07:09

granbunny I'm so glad things seem to be looking up at last. I don't know whether this is relevant but if your mum has ever been 'sectioned', specifically under Section 3 of the Mental Health Act, she will be entitled to free aftercare which should include any care package and even respite care if that becomes necessary. I only mention this because I know you said your dad is worried about running out of money. Of course you may already be aware of this.

I do hope things will continue to go well, and don't forget to look after yourself flowers

granbunny Fri 18-May-12 18:45:59

thank you, so much, all of you. flowers

better news! dad is now home - brother sprung him this morning - with a few weeks to wait for his op. the operation might not make any improvement, but it's worth a try.

brother went home mid afternoon because he's exhausted and knew i would be there at five. dad fell asleep in a chair and didn't wake up when mum called him or when the phone rang. mum thought he was dead, and stuggled to move her wheelchair a little but couldn't reach him to give him a prod. she realised she had no way to contact anyone and was totally alone. she's very shaken. dad, fortunately, woke up! they've both agreed to have mobile phones smile

the hospital (salford royal/hope) and staff were great and very supportive. their social workers contacted local ones who will come to make an assessment for a care package. there should be no charge as both are ill and mother is registered with them as bi-polar.

i am going back at 8.30 to do the overnight, so dad can get some sleep.

feeling very glad and grateful to see them together again.

thanks again for your good wishes and supportive comments. smile