travelasafar, you post has resonated so much with me, chronic pain impacts on your abilty to cope. ?
Unlike you, I still have my husband, (your loss must be unbearable), but after a number of medical incidents, I have been advised time is running out for me.
I too have put my house in order, however, trying to talk to my husband and children has been so difficult. They are all burying their head in the sand, because I always pick up, don't I?. What makes things more difficult is that I look very healthy and I have to explain to people why I can't do what they are asking.
Like you I would prefer to die peacefully at home (probably unlikely) and I have begged my husband not to allow me to go into a home if I need care, no intervention, just to let me go.
However, my attitude is different from yours. I am so angry that this has happened to me and I have absolutely no control over my body. It's the unpredictability of it all, which gets me. No plans can be made, as I never know from one day to the next how I will be. Planning only results in disappointment.
I will fight to the bitter end to enjoy and make the best of my life and not wishing be a burden on my family, I cover up a lot. However, this bl***y pandemic and shielding has scuppered all my plans. However, although resigned, I'm not ready to give up yet.
I have thought of you often after I read the thread you started about your dear husband going to hospital by ambulance.
My feeling is that you have to talk to someone about how you feel. After my heart diagnosis, for months, I resisted talking to a cardiac psychologist, because I was ashamed of how angry and resentful I was. In the end I gave in. It was cathartic and I found peace. I was able to open up because she was a stranger, saying how afraid I was, angry becuse it wasn't my fault and despairing because nothing could be done. It ceased due to the pandemic, because she began counselling NHS staff, and rightly so.
Sorry this has turned into one of my novellas! 
Take care, travelsafar., I hope you find some peace.?