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Is this fair ?!

(108 Posts)
Lucca Tue 26-Jul-22 15:37:21

As some if you know I have terminal cancer. I want t go abroad for a holiday. I have my oncologist approval. Travel insurance though ….. a lot of companies will not insure me because I took part in a non invasive trial recently. No Follow up procedures, no medication. I did it mainly to help future patients as it can’t save me.

Lucca Tue 26-Jul-22 19:52:32

Madgran77

blogs.bournemouth.ac.uk/research/2019/01/23/hra-update-travel-insurance-and-participation-in-clinical-trials/

Think there might be advice out there

Stay Sure does over with cancer and appears not to be concerned about clinical trials.

Hope that you can get what you need Lucca flowers

No. Stay sure we’re the first ones I tried and they said absolutely not to clinical trials

volver Tue 26-Jul-22 19:29:55

Its certainly not fair. Have you tried talking to the trial people? Can they help?

ixion Tue 26-Jul-22 19:19:42

Feel helpless, Lucca, except to send you love and hugs.
I am sure there is help here somewhere for you.
?

Blinko Tue 26-Jul-22 19:14:37

I too have cancer and am currently receiving treatment to contain it. So I'll be following this with interest. Thank you for raising this issue, Lucca. I do hope you manage to get to Dubrovnik.

LauraNorderr Tue 26-Jul-22 19:08:36

None of it is fair Lucca, it stinks.
Lots of good links and advice here, hope you find a fair and reasonable insurance company and have a wonderful time on that cruise.

Madgran77 Tue 26-Jul-22 18:19:18

blogs.bournemouth.ac.uk/research/2019/01/23/hra-update-travel-insurance-and-participation-in-clinical-trials/

Think there might be advice out there

Stay Sure does over with cancer and appears not to be concerned about clinical trials.

Hope that you can get what you need Lucca flowers

BlueBelle Tue 26-Jul-22 18:15:14

Just wanted to add my heartfelt thoughts and love Lucca
I haven’t any knowledge but hope some of the information given by others will help and that you get the holiday you want and deserve

Grammaretto Tue 26-Jul-22 18:10:46

When DH had stage 4 cancer we were given a list of insurers at The Maggie's centre.
www.maggies.org/
We couldn't go in the end due to covid (ironic) but we enjoyed a few days at a Landmark Trust cottage by the sea which we really loved. www.landmarktrust.org.uk/

I hope you have the holiday you want and yes I do think it very unfair. Can you go without insurance? or is that reckless?

SueDonim Tue 26-Jul-22 18:08:49

I’m so sorry about your diagnosis, Lucca. flowers

That’s very unfair indeed. I recently declined to take part in a Covid trial t the last minute because I was warned it could affect travel abroad. It’s rotten that anyone who wants to do a good thing is penalised for it.

I hope you can find an insurer somewhere. Xx

crazyH Tue 26-Jul-22 18:08:44

How awful for you Lucca
I really can’t understand it. It’s not the terminal diagnosis that’s in your way, but the fact that you are on a ‘trial’ which could save lives.
As has been suggested, please get in touch with MacMillan.
All the best flowers

JaneJudge Tue 26-Jul-22 18:04:33

sad this is ridiculous

Grandmadinosaur Tue 26-Jul-22 18:00:01

No it is most certainly not fair. I really hope you get on your cruise to Dubrovnik area.

Beautful Tue 26-Jul-22 17:59:43

Just googled ... this may help or not ... sorry to hear about your cancer, bless you ... also you are a star in doing this to help others thank you ... God bless

Auntieflo Tue 26-Jul-22 17:59:10

Oh Lucca, how I sympathise with you. I am in the same boat as it were, and as soon as you tick the terminal prognosis box, everything grinds to a halt. My cancer is stable and being controlled with chemo tablets.

We just want a short UK break, but you can bet your bottom dollar, Covid could raise it's ugly head. Can you get cover just for Covid? not as far as I can make out. So, like you, I am still looking, and I expect the cost would be as much as the holiday.

Best of luck, and if you find something, would you give a heads up on here please?

cornergran Tue 26-Jul-22 17:57:13

I’m furious on your behalf lucca. Very unfair. Can only hope there is one insurer with some common sense.

growstuff Tue 26-Jul-22 17:52:27

PS. Have you asked Macmillan? I think I was given something about travel insurance in all the stuff I was given.

growstuff Tue 26-Jul-22 17:51:09

That's disgraceful Lucca and I hope you find somebody to insure you.

I'm going to follow this thread because I've agreed to take part in a cancer trial too - and I'm going to ask loads of questions beforehand.

flowers

Lucca Tue 26-Jul-22 17:46:18

winterwhite

What a terrible thing.

How do they think the trial is relevant, Lucca? Do they classify it as an ongoing procedure?

Honestly don’t know! It was a non invasive procedure too.

I’m currently dealing with a broker who is moving heaven and earth to get me sorted. It does seem unfair, it kind of means nobody can do a trial which might prolong their life if then Their life is restricted.
I know I could holiday in the UK but I really am desperate to go abroad and see somewhere different.
We were planning a cruise Dubrovnik to split on a very small ship. Just for a flipping week !

winterwhite Tue 26-Jul-22 16:56:28

What a terrible thing.

How do they think the trial is relevant, Lucca? Do they classify it as an ongoing procedure?

Namsnanny Tue 26-Jul-22 16:51:12

Very unfair. flowers

I hope the links posted offer you something.

Where were you thinking of going?

FannyCornforth Tue 26-Jul-22 16:49:42

And you did such a wonderful thing taking part in the trial

NotSpaghetti Tue 26-Jul-22 16:48:55

I do hope you find an insurer and get to have uour holiday.
flowers

FannyCornforth Tue 26-Jul-22 16:48:42

That is totally bloody awful Lucca.
I really, really hope that you manage to go on your well deserved trip very soon thanks ? ✈️

Galaxy Tue 26-Jul-22 16:48:33

No it's not bloody fair. I hope some of the links are helpful.

Luckygirl3 Tue 26-Jul-22 16:46:12

Very unfair indeed. I am glad others have found helpful links. I am sorry to hear the prognosis. You need to get that holiday!