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Coronavirus

Long Covid - a growing problem

(41 Posts)
FarNorth Sun 24-Apr-22 19:19:52

"Only 29% of UK Covid hospital patients recover within a year.

Of the 750,000 hospitalised, many still report fatigue, muscle pain, insomnia and breathlessness, with women worst affected"

www.theguardian.com/world/2022/apr/24/only-29-of-uk-covid-hospital-patients-recover-within-a-year?CMP=Share_iOSApp_Other&fbclid=IwAR165Oy7Yc4d7SyxIfDySODlikQREk3XYCJ5JdWK6MtV-IGLhxIn_IuWcyw

FannyCornforth Sat 05-Nov-22 06:38:58

You should contact your GP polin
It will depend upon how long ago he had Covid, I should think

polin Sat 05-Nov-22 06:32:35

My husband had covid and is left with a cough ,can he still have his covid booster

rosie1959 Tue 03-May-22 13:09:34

Difficult to put into words but I do think it's important that all symptoms after having Covid are not ignored it could be something else totally unrelated.
My husband and I have lead pretty normal lives for the last 11 months or so deciding once vacinnated it was of little point worrying if we caught Covid or not. We both did catch it but it was a bit of a non event with very mild symptoms and worrying too much about long covid seems fruitless as it may never happen.
There does seem to be many bugs about at the moment which mimic Covid my daughter is suffering one now and waiting for a GP to call her.

Nannee49 Tue 03-May-22 12:39:47

Joane123 I've posted the FB address of my long covid support group previously but I'll pop it here again, it's helped me a lot -
Post Covid19 Syndrome Support

Having just googled it, I think it is only accessible on Facebook but might be worth a look if you are on it.

Nannee49 Tue 03-May-22 12:16:14

If it's of any help, two of my close friends - in their 70's, fully vaccinated and extremely careful throughout- have both come down with covid over the last couple of weeks, both completely seperately and both involving all 3 & 4 generations of each family.

They all said it was like a bad bout of flu at first but have all recovered with seemingly no ill effects.

I suppose it is possible that's it's mutated into something handleable and perhaps would help you decide to find a different balance, as Pepper says, Maybee.

Hope you find a way through.

Pepper59 Tue 03-May-22 11:45:56

Maybee, it's very difficult isn't it. I feel you have to try and strike a balance somewhere. I still wear my mask, no one seems to bother but I have noticed nobody bothers now. The difficulty for myself is, no Epidemiologist or politician has come out and said it's now at the endemic stage. Im just going to enjoy my summer and take things a day at a time.

MayBee70 Tue 03-May-22 11:35:23

I hadn’t realised how many people on gransnet, having escaped covid for so long, have recently had it. I’m still staying at home and being very careful but am beginning to feel very miserable with my self imposed exile and feel that I want to get back to the sort of normality that everyone I know seem to be living. But I feel there’s no escaping omicron if one ventures forth out into the world. Both DH and I admitted yesterday that we were both feeling rather depressed, and he does go out more than I do. People I have spoken to whilst walking the dog say they’ve had covid but don’t know how they caught it but then go on to say that when they go to the pub they sit at a table away from other people. But then people that I know take every precaution catch it too. I don’t know what to do. I really don’t want long covid.

MissAdventure Tue 03-May-22 11:34:19

I have to be careful about taking anything as the "thing" that I have had/may have/didn't have has damaged my liver (probably exacerbated by dismissive gps telling me it was stress for 2 years)

Pepper59 Tue 03-May-22 11:25:06

Thank you Nanee49. I will try your remedy. Unfortunately, like Marydoll I have Chronic Acid Reflux due to GORD, so am on permanent Omeprazole but at a low dose. The dr has just increased the dose due to my issues and Im just about drinking Gaviscon like juice . It's such a hellish condition Acid Reflux. My late MIL swore by Apple Cider Vinegar for a lot of things. Marydoll that sounds rough what you are going through. I hope you and everyone else on here can get respite from their symptoms. I gave up on doctors long ago, though the chap I saw recently was very nice. Unfortunately I've seen the other side like the poster whos doctor was rude about tea and coffee. It really puts you off going. Take care everyone and really wish you all get/ feel a bit better. Re tea and coffee, Ive found drinking decaffeinated helps and there are some lovely herbal teas now.

Joane123 Tue 03-May-22 10:29:40

Thank you for this thread. Nannee49 thank you also for your input, I really appreciate it.
I am convinced I had covid at the end of 2019 (I had a positive test for an infection) and had it again at the end of March (positive LFT tests for 6 days) the symptoms you state all ring true with me. It just drags on and on.

MissAdventure Tue 03-May-22 09:40:23

Thank you.
I shall give him a look. smile

Nannee49 Tue 03-May-22 09:37:27

flowersflowers*Marydoll and Missadventure * such a rotten thing to be suffering constantly. I've given up on getting any sense help from the GP and rootle around the internet for info.

There's a lot of woo woo stuff out there but also genuine, new research and helpful ideas that you can evaluate yourself as not being dangerous to incorporate into your day to give it a go.

If anyone's interested dr mark hyman/the doctor's farmacy podcasts is a good starting place. Apart from anything else, it's amazing what new clinical research is going on for all sorts.

MissAdventure Tue 03-May-22 08:32:53

Ah, yes.
I had a phone appointment with a real charmer like that on Saturday.

I'm getting a bit fed up with it, actually.

MerylStreep Tue 03-May-22 08:29:48

My friend had another investigation for her acid reflux.
The doctor was very aggressive with her.
He asked her if she was still drinking tea and coffee. She answered, yes. His reply to her was if your going to carry on drinking them your wasting my time

MissAdventure Tue 03-May-22 08:14:03

I'm still on them and feel hellish. sad
As far as I know, I havent officially had covid, but I went through a terrible spate of acid reflux for a while.
My flat is awash with indigestion remedies, alongside omeprazole.

Marydoll Tue 03-May-22 08:05:36

Pepper59

Does anyone know if Long Covid has a symptom that is awful acid reflux? Or worsening acid reflux ( if you have it already)?

I suffer from chronic acid reflux, but since having Covid three weeks ago and requiring an infusion of anti virals, the reflux has been horrendous. There is no respite from the hacking cough and it isn't responding to my usual strong medication.

As for the anti virals, they have made me feel very unwell, sometimes the cure is worse than the illness. I am already on a biologic drug for RA, which is being used in Covid ICU and the anti virals are from the same family, so I can empathise with those suffering from the long term effects of being medicated in ICU.

I agree with the comment about steroids, as a lifetime user of large doses of Prednisolone or Kennilog, you can feel great on them, but once you come off, its hellish!

Susan56 Tue 03-May-22 07:26:20

We had Covid at the very beginning of the pandemic and like Nannee49 it was two years before the cough finally went.I also had bouts of breathlessness and we both still have aching legs but that could just be us getting older.We have also noticed that we seem to catch every bug/virus doing the rounds which we never did before.As DH says it’s lucky we are retired so can go with the flow.I feel so sorry for people suffering these symptoms and trying to keep working.

Nannee49 Tue 03-May-22 07:05:34

Yes Pepper59 that was one of my main symptoms. It came with a funny little persistent cough which I thought at first was respiratory but turns out to be caused by acid reflux exacerbated by covid...I'd very, very rarely suffered with it before.

For me, apple cider vinegar is the way forward - half a tablespoon in a tumbler of water in the morning or when sypmtoms start (maybe after not chewing food sufficiently or eating stuff like pastry). It may work for you. If you do try it, it's recommended to drink through a straw.

I'd be wary of taking the PPI type of medication such as Omeprazole as it reduces stomach acid production when apparently what we need as we age is to be producing more stomach acid not making even less but that's only my research and experience, I'm sure there was another thread recently about PPIs and some people had a different opinion.

It does ease up long covid wise as I don't have the cough any more and bouts are fewer in between now. Hope this post helps as it's a bloody miserable thing to be constantly dealing with.

Pepper59 Tue 03-May-22 03:10:50

Does anyone know if Long Covid has a symptom that is awful acid reflux? Or worsening acid reflux ( if you have it already)?

FarNorth Thu 28-Apr-22 12:33:48

I have a relative whose ME has improved a lot but who was originally told by doctors, about 20 years ago, to push herself. Doing that caused huge worsening of her condition.
I hope doctors no longer tell people to do that, in these types of illness.

MayBee70 Thu 28-Apr-22 12:10:59

That sounds exactly what my friends with ME have said. They aren’t taken seriously because on a good day no one would believe they had a problem but if they push themselves they suffer for it afterwards.

Nannee49 Thu 28-Apr-22 12:01:07

FarNorth & MayBee it's mainly the unhospitalised in my group, a rough ratio of 60-40%. Some have been completely asymptomatic then gone on to develop some of the wide range of symptoms.

Some are only months in, some, like myself, a couple of years. It is heartening that, although I'm having a flare up at the moment, there's longer inbetween recurrences and that seems to be true of most of my group.

The main takeaways really are to accept LC as a recognised condition, not to push yourself no matter how frustrating it is on a good day when you feel on top of things and want to do too much and keep doing your own research with threads like this being super helpful to help normalise the often frightening feelings it churns up. The physical aspects are rotten but it's the fearful, what I imagine are dementia like symptoms which are the worst when they kick in and it's good to know you're not suffering alone.

MayBee70 Thu 28-Apr-22 10:34:56

FarNorth

Nannee49 the people I've heard of, irl, with long covid had not been in hospital.
Do you know whether those in your group had mainly been in hospital, or not?

I hope that long covid is taken seriously, unlike the dismissive approach usually taken to M.E. and similar illnesses.

Having known several people with ME I’m not holding my breath on that one. Even when people say how poorly covid has left them without it actually being long covid they seem to be ignored.

FarNorth Thu 28-Apr-22 10:27:57

Nannee49 the people I've heard of, irl, with long covid had not been in hospital.
Do you know whether those in your group had mainly been in hospital, or not?

I hope that long covid is taken seriously, unlike the dismissive approach usually taken to M.E. and similar illnesses.

MissAdventure Mon 25-Apr-22 17:48:11

There was a thread on here a while ago, where people wondered if perhaps they may have had covid before it was known about.
A lot of the problems they have had since are similar.