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Grandparenting

Tourette's

(4 Posts)
AmazingGran Sun 31-Mar-13 09:35:54

My 8 year old grandson has just been diagnosed with Tourette's syndrome.
Do any other Grandparents have any experiences/tips they'd like to share with me?

Nelliemoser Sun 31-Mar-13 11:46:32

This can be difficult for the child and the family but recently there have been a lot of programs about the condition.

There have been several recent programs on the television about young people talking about having Tourettes. It has probably raised awareness and helped that these young people have been brave enough to show their situation.

I feel all such publicity helps to raise awareness and demisitfy a condition that seems very scary.

www.bbc.co.uk/programmes/p00ydm8r

www.google.co.uk/search?source=ig&hl=en&rlz=&q=tv+programs+about+tourettes&btnG=Google+Search

There is a now a fair bit of information about on the internet but I have no direct knowledge of the condition.

AmazingGran Sun 31-Mar-13 13:59:10

Hi Nelliemoser, thanks for your message!��
I watched the ITV programme the other night, I've also looked on the 'net'.
It is interesting & informative, but I'd love to chat to someone with personal experience as well!

kidsarehardworkbutgoodfun Fri 21-Jun-13 13:47:56

Hi
I know this is an old posting- so forgive me! But I sometimes search for questions about Tourettes - just to see what turns up
Two of my kids have T. For them it started suddenly and was severe. Do they're on medication. They're both doing well.
I think it's great you're asking for help. Not everyone is supportive. Tourette's is a very complex illness
For me - the hardest thing is that the kids always suppress their tics in public - so people don't realise just how hard it is- for all of us. We get very little sympathy or support. So be kind to the parents ! Especially the mum- I find I bear the brunt of angry tics
It helps our kids to do hobbies that occupy their brain. Tics happen because the brain can no longer choose when to act or speak in a certain way- it just bursts out. If they're doing something they enjoy they tend not to tic.
But their concentration can be limited - so it really needs to be something they have an aptitude for. My son is musical - drums help him. My daughter finds sport helpful.
Kids with Tourettes can become very tired - even when they're looking normal. This can be because of the energy it takes to control their body and speech.
Tourette's can come with other features- which can be worse than tics. My son has obsessive tendencies, my daughter can go into a rage.
Hope that helps.
Hope you get this!