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update re slurring speech

(58 Posts)
willsandco Wed 05-Mar-14 20:56:15

just to let you all know that my two days of neurological tests and scans are over now and I have an appointment to see Professor of Neuroscience for the results and, possibly, a diagnosis on Friday 14th. It is another anxious wait but I haven't been right since early May so it is time we got to the bottom of it all. My other half is going with me and my daughter is coming down by train from Durham, so we will all hear it together, whatever she has to say.

Nonu Wed 05-Mar-14 21:05:17

Many, many good wishes across the miles to you WILLS .
flowers

Mishap Wed 05-Mar-14 21:10:54

Good luck with this appointment. So glad that you have your family beside you during these worrying times.

glassortwo Wed 05-Mar-14 21:17:05

wills we will all be with you flowers

MiceElf Wed 05-Mar-14 21:20:38

Thinking of you. Glad you have family to help you through the next few days.

mollie Wed 05-Mar-14 21:27:35

All good wishes for a positive outcome...flowers

annodomini Wed 05-Mar-14 22:19:18

I was wondering, wills. I'll think of you next Friday and virtually holding your hand as will many other grans. It's such an anxious time for all of you. And it can't be long now till your wedding. flowers

Soutra Wed 05-Mar-14 22:24:36

My thoughts will be with you too willsandco and I am glad your family will be with you as you have carried these worries on your own for too long. Obviously hoping for a positive outcome, but as I see it, the worst thing must have been the waiting and worrying. As you say, time to get to the bottom of it. flowers

merlotgran Wed 05-Mar-14 22:37:57

Best wishes for Friday, wills. Hope you have some reassuring news.

Grannyknot Wed 05-Mar-14 22:44:51

flowers and best wishes for good news on the day.

willsandco Wed 05-Mar-14 22:47:05

I am very nattered about it but my take on it is that if I have got motor neurone disease, I can't do anything about it. There is no cure, it is only time and tide! There are three alternatives really, go into denial, go into a life filled with anxieties, or get out there and live life as best you can, while you can. I have always been a very positive soul, glass half full and I have the most marvellous family and friends (and all you guys!) When I was in hospital having tests and scans, I had over 120 messages of support on facebook. What a lucky gal I am! But, anyway, it might not be MND after all, might it? Wedding on 12th April and there is so much to do with one thing and another to be organised. Lots to take my mind off it! Thanks to all of you for your concerns and best wishes. Will let you know.

grannyactivist Wed 05-Mar-14 22:59:19

wills you're absolutely right; what cannot be changed must be endured, preferably with as positive a mindset as possible. Love your attitude, but hoping that the results will bring good news. flowers

Dragonfly1 Wed 05-Mar-14 23:04:56

Good luck, wills - this last week of waiting will be hard, I guess, so sending you a virtual hug for every day from now till the 14th.

DebnCreme Wed 05-Mar-14 23:37:57

Thanks for the update wills. will be thinking of you on the 14th and glad you have family support. (((hugs))) and flowers

Anne58 Wed 05-Mar-14 23:39:31

Every possible good wish to you!

harrigran Thu 06-Mar-14 00:35:45

Sending best wishes for the best possible outcome flowers

willsandco Sat 15-Mar-14 16:54:16

For all those of you who have been keeping in touch with me, I now have a diagnosis: We saw the Professor of Neuroscience yesterday and I have bulbar onset motor neurone disease. It isn't a shock particularly as there were so many signs and symptoms that I lived for a long time with the suspicion that that is what it was. But it still bowls you over to hear it from a medical specialist. There is no cure, it is progressive and debilitating although they will prescribe medication which can help. The signs are that it is mild and not aggressive so lets hope it stays that way. Anyway, I am getting remarried four weeks today. I have told my lovely fiancé that, in view of the circumstances, I would understand completely if he pulled out. However, he is insistent that we travel the road together and he will look after me. (What a little star he is!) But then I would do the same for him, no doubt at all. I am very positive by nature so we just have to grit our teeth and get on with it. Take care, all of you xx

Flowerofthewest Sat 15-Mar-14 17:00:06

Love and hugs to you willsandco keep positive and have a lovely wedding xxx flowers

Nelliemoser Sat 15-Mar-14 17:06:04

wills&co I am sorry to hear your diagnosis. I hope you can keep reasonably mobile for a good while yet. I am impressed by the courage you have been showing during the months of investigations.

I am sending flowers and a a big ((((hug)))). Do enjoy your wedding and send us some pictures.

merlotgran Sat 15-Mar-14 17:13:40

Thank you for letting us all know the diagnosis, willsandco. My very best wishes to you and your fiance on your wedding day.

Stay strong and positive smile

MiceElf Sat 15-Mar-14 17:21:55

You are so brave and positive. Sending my respect to you both for your courage and all good wishes for a lovely wedding.

annsixty Sat 15-Mar-14 17:22:12

Sorry to hear that news wills&co every good wish to you and I hope the diagnosis of it being mild will give you a long time of being active and positive.Good luck on your wedding day.

Lona Sat 15-Mar-14 17:26:55

wills&co I'm sorry to hear that, but you are clearly a positive person with a lot to look forward to, so I wish you every happiness in the future.

Soutra Sat 15-Mar-14 17:30:03

Respect willsandco ! You are an example to us all and I think I can see some of the qualities which have drawn your lovely new man to you! I wish you both all possible happiness and look forward to pics of your wonderful wedding flowers

nightowl Sat 15-Mar-14 17:30:17

I'm so sorry to hear this willsandco. Your positive attitude is an inspiration to all of us, I'm sure. I hope you have a wonderful wedding and I hope you stay well for a long time yet flowers