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update re slurring speech

(59 Posts)
willsandco Wed 05-Mar-14 20:56:15

just to let you all know that my two days of neurological tests and scans are over now and I have an appointment to see Professor of Neuroscience for the results and, possibly, a diagnosis on Friday 14th. It is another anxious wait but I haven't been right since early May so it is time we got to the bottom of it all. My other half is going with me and my daughter is coming down by train from Durham, so we will all hear it together, whatever she has to say.

Nonu Sat 15-Mar-14 17:36:59

Wills -lovely girl !
Good Karma across the miles to you !
((hugs)).

Grannyknot Sat 15-Mar-14 17:43:11

Hi wills I was thinking about you this morning and wondering whether you had had the follow up.

Sorry re the diagnosis but you are such a positive person, I think you should change your name to where-there's-a-will-there's-a-way.

flowers and hugs and I can just picture you beaming four weeks from now in those lacy stockings!

Galen Sat 15-Mar-14 17:48:05

Good luck to you. {{hugs}} winging their wat to you. Stay brave.

durhamjen Sat 15-Mar-14 17:50:28

Sorry to hear about this, Wills. My husband was diagnosed with cerebellar ataxia when he was 60, the slurred speech being one of the signs. We always used to say it was like motor neurone disease, as that's what people know about.
As you say, you just get on with it, as there's nothing you or the doctors can do except monitor it. Speech therapy helps a bit, as it teaches you not to panic.
We were told that most people who have it die of something else as it can be very slow to progress. If it's affecting your handwriting, make sure your new husband has power of attorney for financial affairs. The diagnosis was a relief to him as at least he knew there was a reason for his symptoms.
Do what you want to do now, don't put things off.

Mishap Sat 15-Mar-14 17:53:22

I am glad that you have finally got to the bottom of it all and that you can focus your considerable courage on coping with a known situation - a state of indecision, speculation and absence of knowledge is so difficult to handle, and you have dealt with this infinitely trying time with enormous patience.

There are good times ahead - your wedding to your wonderful loyal partner, and fulfilling times with your family and friends, who cannot fail to be inspired by your determination and courage.

I salute you.

moomin Sat 15-Mar-14 17:59:30

Good luck wills and very best wishes for a special wedding day to a wonderful caring man flowers Stay strong and positive

janeainsworth Sat 15-Mar-14 18:08:26

So glad you have your lovely family and fiance to help you through this Wills, I hope you have a really wonderful Wedding Day and the sun shines for you in more ways than one in the months and years ahead. sunshine

willsandco Sat 15-Mar-14 18:39:07

thank you all so much xx

baubles Sat 15-Mar-14 19:08:30

I'm sorry to hear that wills. Very best wishes for a lovely wedding day with your family around you. flowers

ffinnochio Sat 15-Mar-14 20:25:41

,,,and thank you wills for sharing your strength, determination and positive view for your coming years. Have a marvellous wedding day with friends and family, and I wish you good times ahead with your man. flowers x

JessM Sat 15-Mar-14 21:04:18

Thanks for letting us know. I was wondering. This was presumably on the list of suspects after so many other things had been eliminated, but still a shock for you all. Very best wishes.

glassortwo Sat 15-Mar-14 23:43:18

Thank you wills for letting us know, I have thought of you often over the last few days.
Good wishes to you and your lovely partner, have a fantastic wedding day.

harrigran Sat 15-Mar-14 23:49:31

wills, just want you to know that we are all here holding your hand flowers
Wishing you a wonderful wedding day.

Sook Sun 16-Mar-14 00:14:55

To a very brave lady flowers. Wishing you love and happiness on your wedding day and the years to come x

FlicketyB Sun 16-Mar-14 06:59:24

flowers

Mamie Sun 16-Mar-14 07:31:01

Wishing you bon courage from across the channel. flowers

DebnCreme Sun 16-Mar-14 08:02:53

So sorry to read that your fears have been confirmed Wills you are a very positive person; an inspiration. Have a wonderful marriage flowers xx

Gally Sun 16-Mar-14 08:51:14

What an amazing, brave lady you are. flowers

KatyK Sun 16-Mar-14 09:53:23

Sending you all good wishes wills flowers. You sound like a wonderful person.

Marelli Sun 16-Mar-14 09:54:10

willsandco, I wish you and your partner the very best of love, luck and happiness in your future together. Your positivity is a lesson to us all. flowerssunshine xx

willsandco Sun 16-Mar-14 13:33:29

I have adopted that song from Chumbawanga Tubthumping lyrics:

"I get knocked down
But I get up again
You're never gonna keep me down!"

I have my wedding to Peter to attend in 27 days time.
and I haven't bought the underwear yet!
For goodness sake - get a move on, WillsandCo!

Thanks, each and everyone of you, for your posts and your lovely comments.

We will crack on with life and deal with it as it comes.

xx

mrshat Sun 16-Mar-14 15:56:03

wills&co - what a tough call. Wishing you all the best for the future - keep positive, keep strong. flowers

kittylester Sun 16-Mar-14 16:51:57

in the face of adversity - wills&co - what a blow. You seem determined in the face of adversity though but use GN if you need to - we are good at support and hugs to say nothing of wine

kittylester Sun 16-Mar-14 16:53:22

Ignore the first bit of my last post - my laptop is playing silly whatsits!! smile

annodomini Mon 07-Apr-14 22:43:09

For some reason this news escaped me at the time. I am sorry to hear the diagnosis, willsandco. You are showing and have shown great courage and you and your fiancé deserve every happiness together. ((((hugs)))) flowers