update re slurring speech

thank you all so much xx

So glad you have your lovely family and fiance to help you through this Wills, I hope you have a really wonderful Wedding Day and the sun shines for you in more ways than one in the months and years ahead.

Good luck wills and very best wishes for a special wedding day to a wonderful caring man Stay strong and positive

I am glad that you have finally got to the bottom of it all and that you can focus your considerable courage on coping with a known situation - a state of indecision, speculation and absence of knowledge is so difficult to handle, and you have dealt with this infinitely trying time with enormous patience.

There are good times ahead - your wedding to your wonderful loyal partner, and fulfilling times with your family and friends, who cannot fail to be inspired by your determination and courage.

I salute you.

Sorry to hear about this, Wills. My husband was diagnosed with cerebellar ataxia when he was 60, the slurred speech being one of the signs. We always used to say it was like motor neurone disease, as that's what people know about.
As you say, you just get on with it, as there's nothing you or the doctors can do except monitor it. Speech therapy helps a bit, as it teaches you not to panic.
We were told that most people who have it die of something else as it can be very slow to progress. If it's affecting your handwriting, make sure your new husband has power of attorney for financial affairs. The diagnosis was a relief to him as at least he knew there was a reason for his symptoms.
Do what you want to do now, don't put things off.

Good luck to you. {{hugs}} winging their wat to you. Stay brave.

Hi wills I was thinking about you this morning and wondering whether you had had the follow up.

Sorry re the diagnosis but you are such a positive person, I think you should change your name to where-there's-a-will-there's-a-way.

and hugs and I can just picture you beaming four weeks from now in those lacy stockings!

Wills -lovely girl !
Good Karma across the miles to you !
((hugs)).

I'm so sorry to hear this willsandco. Your positive attitude is an inspiration to all of us, I'm sure. I hope you have a wonderful wedding and I hope you stay well for a long time yet

Respect willsandco ! You are an example to us all and I think I can see some of the qualities which have drawn your lovely new man to you! I wish you both all possible happiness and look forward to pics of your wonderful wedding

wills&co I'm sorry to hear that, but you are clearly a positive person with a lot to look forward to, so I wish you every happiness in the future.

Sorry to hear that news wills&co every good wish to you and I hope the diagnosis of it being mild will give you a long time of being active and positive.Good luck on your wedding day.

You are so brave and positive. Sending my respect to you both for your courage and all good wishes for a lovely wedding.

Thank you for letting us all know the diagnosis, willsandco. My very best wishes to you and your fiance on your wedding day.

Stay strong and positive

wills&co I am sorry to hear your diagnosis. I hope you can keep reasonably mobile for a good while yet. I am impressed by the courage you have been showing during the months of investigations.

I am sending and a a big ((((hug)))). Do enjoy your wedding and send us some pictures.

Love and hugs to you willsandco keep positive and have a lovely wedding xxx

For all those of you who have been keeping in touch with me, I now have a diagnosis: We saw the Professor of Neuroscience yesterday and I have bulbar onset motor neurone disease. It isn't a shock particularly as there were so many signs and symptoms that I lived for a long time with the suspicion that that is what it was. But it still bowls you over to hear it from a medical specialist. There is no cure, it is progressive and debilitating although they will prescribe medication which can help. The signs are that it is mild and not aggressive so lets hope it stays that way. Anyway, I am getting remarried four weeks today. I have told my lovely fiancé that, in view of the circumstances, I would understand completely if he pulled out. However, he is insistent that we travel the road together and he will look after me. (What a little star he is!) But then I would do the same for him, no doubt at all. I am very positive by nature so we just have to grit our teeth and get on with it. Take care, all of you xx

Sending best wishes for the best possible outcome

Every possible good wish to you!

Thanks for the update wills. will be thinking of you on the 14th and glad you have family support. (((hugs))) and

Good luck, wills - this last week of waiting will be hard, I guess, so sending you a virtual hug for every day from now till the 14th.

wills you're absolutely right; what cannot be changed must be endured, preferably with as positive a mindset as possible. Love your attitude, but hoping that the results will bring good news.

I am very nattered about it but my take on it is that if I have got motor neurone disease, I can't do anything about it. There is no cure, it is only time and tide! There are three alternatives really, go into denial, go into a life filled with anxieties, or get out there and live life as best you can, while you can. I have always been a very positive soul, glass half full and I have the most marvellous family and friends (and all you guys!) When I was in hospital having tests and scans, I had over 120 messages of support on facebook. What a lucky gal I am! But, anyway, it might not be MND after all, might it? Wedding on 12th April and there is so much to do with one thing and another to be organised. Lots to take my mind off it! Thanks to all of you for your concerns and best wishes. Will let you know.

and best wishes for good news on the day.

Best wishes for Friday, wills. Hope you have some reassuring news.