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Little friend with brain tmour

(40 Posts)
Mishap Wed 19-Mar-14 10:35:19

My DD's best friend has a 19 month old son who had just been diagnosed with a brain stem tumour, which is being operated on as I write. It is too sad for words and we can hardly bear to think about it.

The family have set up a donations website, as the parents are self-employed and will have to take time off for several months during his recovery. This is the link: http://biggie.ereal.net/bill/

Any money that is left over after their expenses will go to maintaining the charity-run hostel where parents can stay to be near their children.

I hope you do not think it is inappropriate to post this; in which case please ignore it and accept my apologies. But we are all so upset that we just want to do all we can.

jinglbellsfrocks Wed 19-Mar-14 10:47:46

Poor little boy. sad

glammanana Wed 19-Mar-14 11:08:09

So sad Mishap my heart goes out to the family and this little boy,we raise funds for Ronald McDonald House where families can stay with their children it also provides overnight stays for mums & dads who have prem children and a quite room for the children and their parents when they need time to themselves such a good cause,god bless this little man and I hope things go well for him to-day.

grannyactivist Wed 19-Mar-14 11:28:40

Mishap - what a sad situation.
Please try again with your link; it's not quite right.

Nonu Wed 19-Mar-14 11:31:03

What a tragedy , poor little boy and family ! sad

Nelliemoser Wed 19-Mar-14 11:44:02

Mishap that is worrying it sounds a very nasty and delicate place to do any surgery.

posie Wed 19-Mar-14 12:47:49

How terrible, poor little boy, poor family! sad Hope it all goes well.

Mishap Wed 19-Mar-14 13:09:06

I had trouble with the link to start with and had to copy and paste it before it would work ga. Here it is again: biggie.ereal.net/bill/

No news yet.

Aka Wed 19-Mar-14 23:04:23

What a terrible thing for him and his poor family. I do hope he come through this safely. Please keep us updated Mishap sad

posie Wed 19-Mar-14 23:32:27

Just had a peep on their facebook page & 3hrs ago it says he's come through operation & said Mummy!

More tests to come but such good news!

Aka Thu 20-Mar-14 07:13:15

Fingers crossed

DebnCreme Thu 20-Mar-14 07:42:01

Thanks posie that is good to read. My fingers crossed too.

Mishap Thu 20-Mar-14 10:42:26

News so far is good - he is able to move his arms and legs and recognises people and can speak - so it really does look as though they have managed to remove the tumour and to preserve many of his functions. I believe there is a wait of a few days to confirm the nature of the tumour and the next stage of treatment will depend on those results. Everyone was on tenterhooks yesterday and so relieved when he came round and the news was good.

merlotgran Thu 20-Mar-14 10:48:53

Hoping for continued good news, Mishap The family must be encouraged by his progress so far.

Mishap Thu 20-Mar-14 15:30:07

Apparently he has been sleepy all day, just making noises and wriggling about, but the staff do not seem worried. It will no doubt take him several days to recover from such a long and traumatic operation.

grannyactivist Thu 20-Mar-14 18:17:58

Mishap - thanks for sorting the link. He looks such a gorgeous little chap and this must be a horribly worrying time for his parents and family. I do hope the news remains positive and that he soon recovers.

Mishap Thu 20-Mar-14 18:27:34

We have to hope that he is in no discomfort. It set me thinking about how little ones have no yardstick by which to judge what is normal or not - they just accept what comes. It is a blessing really as all he will know is that his mum and dad are there, but will have no anxieties about all that is happening - just one more strange thing that adults do, and no reason to think about the future or the seriousness of what is happening - that has to be a good thing. An older child would be likely to be more distressed.

Nelliemoser Thu 20-Mar-14 19:21:17

Mishap I am glad to hear his progress is good so far.

penguinpaperback Thu 20-Mar-14 23:08:45

What a beautiful little boy he is.

Mishap Fri 21-Mar-14 09:04:06

It would seem that he has been a bit distressed since coming round and the parents are finding this hard to watch. Another MRI planned for today. Who knows what this wee man is going through? - he cannot tell anyone. I guess it is all a matter of time. His mum and dad have hugely appreciated the positive thoughts and donations that have come their way.

DebnCreme Fri 21-Mar-14 09:09:08

More positive thoughts, prayers and best wishes winging his way today.

bikergran Fri 21-Mar-14 13:26:14

hope the little man starts feeling better soon.

Charleygirl Fri 21-Mar-14 15:33:23

Best wishes for that happy, handsome young man. He is fortunate to have such caring parents.

Mishap Fri 21-Mar-14 17:18:57

MRI shows no tumour left. Cerebro-spinal fluid is being monitored in case shunt might be needed. Ten day wait for histology result when they will know whether cancerous or not.

grannyactivist Fri 21-Mar-14 17:21:13

Thanks for keeping us informed Mishap - sounds like encouraging news.