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Little friend with brain tmour

(41 Posts)
Mishap Wed 19-Mar-14 10:35:19

My DD's best friend has a 19 month old son who had just been diagnosed with a brain stem tumour, which is being operated on as I write. It is too sad for words and we can hardly bear to think about it.

The family have set up a donations website, as the parents are self-employed and will have to take time off for several months during his recovery. This is the link: http://biggie.ereal.net/bill/

Any money that is left over after their expenses will go to maintaining the charity-run hostel where parents can stay to be near their children.

I hope you do not think it is inappropriate to post this; in which case please ignore it and accept my apologies. But we are all so upset that we just want to do all we can.

Aka Fri 21-Mar-14 17:45:20

Looking hopeful smile

kittylester Fri 21-Mar-14 17:54:03

Thanks for updating us Mishap sunshine

DebnCreme Fri 21-Mar-14 18:35:08

Thanks Mishap

kittylester Fri 28-Mar-14 11:46:11

I've just seen on FB that Bill does not have cancer. sunshine

Mishap Fri 28-Mar-14 12:00:28

I too have just read this when I came in - it is excellent news! And quite unexpected as tumours in that site in children are nearly always cancer - this is one lucky little chap!

He has a few problems with cerebro-spinal fluid not draining as i should, but they are to try and get on top if that later.

He has been through so much, and I have no doubt that there will be more to come for him, but let us hope against hope that the long term results will be positive. Everything crossed!

kittylester Tue 08-Apr-14 07:54:46

Resurrecting this ( and presumably Mishap knows loads more!) to say that Bill and his family got home to discover that their house and been 'broken into' and had lots of decorating done, the garden tidied, a new shower and a new kitchen fitted! Aren't people wonderful!!!!

I'm not sure of the details but I think Bill has a permanent drain in his brain!

(A fb friend of mine is a friend of Bill's father so I see some posts - Mishap is much more in the loop than I)

DebnCreme Tue 08-Apr-14 08:49:34

Oh that's wonderful. Somehow managed to miss recent posts on this so only now catching up. It all sounds really good and thank you both for the updates flowers

DebnCreme Tue 08-Apr-14 08:55:52

Just looked back to my last post - amazing how much can happen in thee posts smile sunshine

Aka Tue 08-Apr-14 09:03:43

So pleased to hear the news that the tumour is benign.

annodomini Tue 08-Apr-14 09:14:34

kitty - how kind people are when 'the chips are down'. So glad to hear that the tumour proved to be benign and that treatment has been effective.

Mishap Tue 08-Apr-14 09:29:10

Yes - it is all good news.

He went home yesterday and was delighted to be there - I am sure they all were! The tumour was benign and was totally removed - a very lucky little boy. The only downside is that he has a shunt now in his brain to drain the cerebro-spinal fluid into his stomach, as his head kept swelling up. He will have this for life, but I am sure that they will all adapt to the challenges that these can occasionally cause, and it is a small price to pay for his life.

My DD had a hand in the house surprises. Lots of those jobs that needed doing but there was never time for are now done and it was a lovely surprise for them.

We are all so delighted that there has been such a good outcome, when a few weeks ago it looked as though they might be facing the worst.

whenim64 Tue 08-Apr-14 09:51:07

What relief the family must be feeling after such terrible worry. I hope things will be plain sailing from now on. flowers

Nelliemoser Tue 08-Apr-14 10:07:55

What a lucky little boy. I hope he continues to do well.

Deedaa Tue 08-Apr-14 22:02:08

So wonderful to have a happy ending! I hope everything continues to go well - and what wonderful friends and neighbours smile

Grannyknot Tue 08-Apr-14 22:29:38

So glad this has had a good ending. When I read about the house refurb and jobs done, I thought "Oooh, sounds as if the DIY SOS gang with Nick Knowles have been there" smile. How kind people are.