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thank you

(40 Posts)
willsandco Mon 01-Sept-14 17:04:23

A year ago, I was on this forum trying to understand why my health was playing me up, Eventually in mid March 2014 I was diagnosed with bulbar onset motor neurone disease and will never forget the support I got from so many of you. The Icebucket Challenge is all around us and if anyone of you did the challenge or donated, I would just like to thank you on behalf of all us folk with MND, our carers and our family and friends. I have almost lost my ability to speak now, I have a text to speech application on my IPAD, I have a magic stick to help propel me along and a wheelchair waiting in the garage for the future. But I am not downhearted. While I am relatively mobile, we have been dashing up and down the country visiting special family and friends and special places. In fact, we have had a really good time with lots of fun and laughter. So, for anyone who has got involved, thank you so much xx

Bellasnana Tue 02-Sept-14 11:11:41

What an amazing lady you are willsandco. May God bless you with many more happy days to come flowers

durhamjen Tue 02-Sept-14 19:53:20

Thanks for the info, wills, and sorry I got it a bit wrong.
I hope you always have bananas with you, if you know what I mean.
I'm sure you'll be up in Durham again. We moved up here to be near family when my husband was losing his balance too often. He was determined not to use the wheelchair, though, and only needed it for the last three months. Hope your husband makes a good walking stick.

numberplease Tue 02-Sept-14 20:53:30

Willsandco, what a wonderful, inspiring lady you are, you make me ashamed of my moans and groans.

willsandco Tue 02-Sept-14 21:44:58

We are home now. It was lovely We drew the motorhome up in the drive, our neighbours opposite came out, pleased as punch because we were home and invited us in for drinks. It has put off the unpacking but it has been worthwhile! We have regaled them with our repertoire about the amazing fun we have had on holiday. Any, yes, Durhamjen, we will be up in Consett again soon. I have two wonderful daughters up there and three super grandchildren so it is a wrench leaving them. But it is good to be home (DH has commandeered the remote control again, I see!) Much love to you all xx

baubles Tue 02-Sept-14 21:50:38

Good to hear you had such a wonderful trip Wills I love your positive spirit.

dustyangel Wed 03-Sept-14 12:27:42

You are an inspiration Wills. I wish you the time to enjoy many more adventures and happy times with your family.

gillybob Wed 03-Sept-14 13:57:21

Not sure what I can add that others haven't already said Wills. I only hope that your positivity IS infectious as we could all sometimes do with a little bit of it ! You are certainly a brave and inspiring lady. flowers and sunshine to you and yours.

willsandco Wed 03-Sept-14 16:31:25

Message withdrawn at poster's request.

willsandco Wed 03-Sept-14 16:36:22

Message deleted by Gransnet for breaking our forum guidelines. Replies may also be deleted.

glammanana Wed 03-Sept-14 16:53:09

So inspiring and such a brave lady sending you all my love and respect.sunshine& flowers oh and a large wine xx

willsandco Wed 03-Sept-14 17:12:47

just for the record, the two above messages from me were OK. I just quoted you all a website link and it was no longer there. Didn't want to waste your time looking for it. Thanks so much, moderators, for being on the ball! x

Nelliemoser Wed 03-Sept-14 17:23:43

Willsandco Thanks for telling us how you are, take care and keep on enjoying yourself.

I admire your positivity and bravery and I hope your calm outlook will help others with MND to cope. flowers sunshine

willsandco Wed 03-Sept-14 18:55:15

We had a carpenter in today to put shelves up in the spare bedroom. He said he had been nominated for the MNDA icebucket challenge but he wasn't sure what motor neurone disease was. He knew I had lost my voice but didn't know why. Over the weekend, my daughter video'd me doing the challenge and sent it to MNDA. I didn't have the ice because the shock could take my breath away but I did attempt to speak and then recorded a message on my text to speech IPAD application. It went on Facebook so if any of you are on Facebook and want to see it look up 'Joyce Williams' Anyhow, the carpenter watched this and when I looked up, he was in tears. Quite overcome with the emotion of it all. So he said he is doing the challenge now. I was really surprised - don't usually have this effect on good looking middle aged men! Ha! Ha!Q

Agus Wed 03-Sept-14 19:09:20

What a beautiful spirit you have wills. I wish you and your family so many more happy times together.