thank you

What a beautiful spirit you have wills. I wish you and your family so many more happy times together.

We had a carpenter in today to put shelves up in the spare bedroom. He said he had been nominated for the MNDA icebucket challenge but he wasn't sure what motor neurone disease was. He knew I had lost my voice but didn't know why. Over the weekend, my daughter video'd me doing the challenge and sent it to MNDA. I didn't have the ice because the shock could take my breath away but I did attempt to speak and then recorded a message on my text to speech IPAD application. It went on Facebook so if any of you are on Facebook and want to see it look up 'Joyce Williams' Anyhow, the carpenter watched this and when I looked up, he was in tears. Quite overcome with the emotion of it all. So he said he is doing the challenge now. I was really surprised - don't usually have this effect on good looking middle aged men! Ha! Ha!Q

Willsandco Thanks for telling us how you are, take care and keep on enjoying yourself.

I admire your positivity and bravery and I hope your calm outlook will help others with MND to cope.

just for the record, the two above messages from me were OK. I just quoted you all a website link and it was no longer there. Didn't want to waste your time looking for it. Thanks so much, moderators, for being on the ball! x

So inspiring and such a brave lady sending you all my love and respect.& oh and a large xx

Message deleted by Gransnet for breaking our forum guidelines. Replies may also be deleted.

Message withdrawn at poster's request.

Not sure what I can add that others haven't already said Wills. I only hope that your positivity IS infectious as we could all sometimes do with a little bit of it ! You are certainly a brave and inspiring lady. and to you and yours.

You are an inspiration Wills. I wish you the time to enjoy many more adventures and happy times with your family.

Good to hear you had such a wonderful trip Wills I love your positive spirit.

We are home now. It was lovely We drew the motorhome up in the drive, our neighbours opposite came out, pleased as punch because we were home and invited us in for drinks. It has put off the unpacking but it has been worthwhile! We have regaled them with our repertoire about the amazing fun we have had on holiday. Any, yes, Durhamjen, we will be up in Consett again soon. I have two wonderful daughters up there and three super grandchildren so it is a wrench leaving them. But it is good to be home (DH has commandeered the remote control again, I see!) Much love to you all xx

Willsandco, what a wonderful, inspiring lady you are, you make me ashamed of my moans and groans.

Thanks for the info, wills, and sorry I got it a bit wrong.
I hope you always have bananas with you, if you know what I mean.
I'm sure you'll be up in Durham again. We moved up here to be near family when my husband was losing his balance too often. He was determined not to use the wheelchair, though, and only needed it for the last three months. Hope your husband makes a good walking stick.

What an amazing lady you are willsandco. May God bless you with many more happy days to come

willsandco what a truly inspirational and wonderful woman you are. We have a hospital appointment today to find out when my husband's radiotherapy will begin for his prostate cancer. I woke this morning full of apprehension and fear. Your post has made me realise how lucky we are and that our troubles are not so bad. You are amazing.

Hello all. Just replying to Durhamjen really. The strain I have of MND is bulbar onset MND. It is fast moving and definitely terminal. I will die probably within months, not years. (Some people struggle along with MND for years, like Stephen Hawkinge, but he has a different strain from mine) There is no treatment and absolutely no cure. The professionals say that the average life expectancy from diagnosis averages out at 16 months. I was diagnosed mid March 2014 so I should see this Christmas out but probably not the next one. But, whatever, I am not despondent, not gnashing my teeth. God sends you these challenges and I am just decided to live with MND, not die with it. Today I feel really well and I thank God for every day that I do. Thank you so much all for your good wishes. xx

My very best wishes to you willsandco. DS and DIL live just up the road from your DD.

Willsandco how lovely to hear from you. I was just thinking the other dsx of xour beautiful wedding pics! You are one heck of a lady and I can only wish you and your family all the joy and love in the world.

Dear Willsandco

You are truly a person with a most generous heart. I think your words are beautiful.

wills, I'm 8 miles away from your daughter, along the Lanchester Valley railway.

My husband had cerebellar ataxia, which has the same prognosis as MND. Like MND, you do not have to die of it, and you can live for years, not months. Hope you do.

I remember you wills I have a different terminal illness and have been fortunate to have had a long time to get used to things. I still struggle at times so I'm full of admiration and can relate to your thoughts. I wish you many happy times to come.

Wonderful to have heard from you, and may your final months be peaceful ones. x

POGS this terminal illness has focussed my whole being on the joys of what is around me and intensified the love I have for family and friends. I feel somehow privileged that God has given me this time to thank Him for all the happiness I have had in my life and for the tremendous relationships I have with everyone. Not everyone has that time. Sometimes in life, death comes so fast no one has time to tell anyone how they feel. Everyone in my life knows exactly how much I love them. xx

Willsandco

Your new post is like a breath of fresh air. It is a pleasure to reply to you.

You sound an absolutely lovely person and if you are finding fun with all your woes that must be purely down to your view on life and that has rubbed off onto those who meet you. You have to give out love, humour and kindness to get it back and it sounds as though you do just that by the bucket full.

It is rare to find someone who shows no outward sign of self pity and facing up to the hardship life has cruelly dealt them with such an obviously amazing courage alongside the ability to find laughter, joy and good friendships which keep you going I'm sure.

I have a dear friend with a similar outlook, although different health issues. She inspires us all and I am so proud to be her friend and I can only assume that is how your friends and family think of you.

I think those of us who have either taken part in the Ice Bucket Challenge or donated to your charity will be so pleased they took part.

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wills you are amazing! Wonderful to have an update

Keep popping back.