I'm finding that the organisations that I thought were there as advocates for the patients seem as evasive and uncooperative as the NHS. I recently emailed the Patient's Association and Healthwatch asking for advice on how best to present a complaint, Healthwatch just said ring the helpline, and the PA didn't reply at all.
Generally, it's best to summarise and keep complaints short and to the point, but in this case even a summary would run to several pages, and I'm not sure whether they allow you to add further information after they respond. I have a list of 120 questions, and that's without explaining the background to them first.
I spoke to the PA on the phone some time ago, but it was evident that she didn't believe a word of it, and the AvMA told me that I'm paranoid even though I made it plain that I have proof of what I say. After I spoke to a heart charity I found out that my consultant is their patron, so everything I said 'in confidence' has gone straight back to him.
Being called a frequent flyer isn't the half of it, I even had them flatly deny that I was ever taken to A&E at first. Now I'm supposedly on the waiting list for an operation, but my records say that I've already had it, so it's anyone's guess whether the appointment letter will ever arrive. I'm in no hurry, I've reached a point where I would never trust the NHS again, don't believe anything they say, and see no further point in trying to communicate with them.
The NHS constitution says:
"The NHS commits to ensure that you are treated with courtesy and you receive appropriate support throughout the handling of a complaint; and that the fact that you have complained will not adversely affect your future treatment."
but nobody can tell me what policies they have in place to ensure this.
Shingles and pneumococcal vaccines side effects
no wonder the service is overwhelmed. 