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cancer

(312 Posts)
etheltbags1 Tue 28-Apr-15 21:41:14

I have on many occasions asked for advice on these forums but this time it is really serious, my cancer is not responding to chemo and has not been killed in my lymph glands. Any advice how to cope with this situation, I don't feel ill or weak or ready to depart this life and will fight with all guns blazing but what can I say to myself in the small hours when I am scared.

Charleygirl Thu 04-Jun-15 12:13:24

ethel you are trying to run before you can walk! When I had my knee replaced it took 2 months before I could change my bedding to give you some idea! I was totally exhausted and like you had little help.

Take each day as it comes- it used to take me 60 minutes to have a shower and get ready for bed to give you an idea. You are not giving yourself a chance.

It is silly to say that you are regretting having surgery. As others have said, find things to occupy yourself even if it means watching TV until you are square eyed.

etheltbags1 Thu 04-Jun-15 16:02:25

I know you are right charleygirl but its not so easy when I had lots of visitors the first few days, my best friend promised to come every day even stay over for the first week but I got 2 visits and an email.
Got another infection going to the docs yet again. Arrgghhh (scream).
my other friend is the same I rang her today and she was in bed havig had a hip replacement 3 weeks ago.

whenim64 Thu 04-Jun-15 16:17:29

Pace yourself, ethel You're learning new things about how you cope and you'll find some shortcuts and other ways to make life more interesting in the days and weeks to come. If you've ever wished for more time to relax and just appreciate being alive, now's your opportunity. flowers

etheltbags1 Thu 04-Jun-15 16:29:15

trying hard whenim64 hmm

Falconbird Fri 05-Jun-15 15:00:28

How are you today Ethel, I think you're doing a grand job. My son had a similar operation but he had a wife to support and help him and two little kids to take his mind off things. Friends can be disappointing at times as I know too well.

flowers flowers nice ones from the florist. smile

loopylou Fri 05-Jun-15 15:18:21

I can empathise ethel I was pretty much confined to the house for 4 months with a very painful leg in plaster and I nearly went potty. I couldn't focus on anything for more than 10 minutes (thanks to very strong painkillers and pain) and the highlights of my day were confined to watching TV and bedtime hmm

I found it very tedious but got through it by promising myself various treats when I was mobile again- a massage, trip to the hairdresser etc.

((Hugs)) and a big bouquet of wild flowers x

etheltbags1 Fri 05-Jun-15 16:47:04

thank you for the flowers, I am worried now that I will not be very fit as im just sitting around, ive not been out today and im getting used to just flaking out in front of the tv. How can I excersise as I cant do anything even just walking in garden has me knackered.

Falconbird Fri 05-Jun-15 17:08:48

Hello Ethel,

Can the doctor or the nurses give you advice about recuperation? You hear so much about it on the TV.

Any luck with the Macmillan team?

I'm not sure exactly what support my son had because he didn't say much (typical bloke.)

etheltbags1 Fri 05-Jun-15 17:17:37

will wait till I get my results next week then I need to start getting fit.

Gagagran Fri 05-Jun-15 17:29:11

Ethel you have to be kind to your poor body - it's doing it's best to tell you that it needs to rest so it can heal and recover from the major trauma it has had.

You will not regain your former fitness levels for some time - just do a bit each day and then a bit more, but slowly,until you start to feel stronger. If going round the garden is too much then go half way. Next day a bit more etc etc. I hope you are managing to eat - remember strength goes in through the mouth (as my Mum used to say).

Lots of us are thinking of you and lots of us are available to chat via emails if that would help the boredom. Keep your chin up - you will get there. sunshine and flowers

loopylou Fri 05-Jun-15 17:39:05

Fitness-wise stop worrying, you'll very quickly build it up again once you get over this stage. It took me some months to get back to 12 mile walks (in the Dolomites so pretty strenuous) mainly because of the ankle being crocked, you'll be much quicker!

etheltbags1 Sun 07-Jun-15 14:22:11

I am so scared again, going for my results tomorrow. I don't know why I need to , I know what Ive got and they told me it was not curable so I think it must be worse than they thought. I cant stop shaking.
Im depressed at the thought of more chemo in the next few weeks.

I also feel Im not getting better quickly, I still walk with a stoop and sometimes clutch my belly, I have a car worker to put my stockings on and just have no energy.

etheltbags1 Sun 07-Jun-15 14:23:00

I am so scared again, going for my results tomorrow. I don't know why I need to , I know what Ive got and they told me it was not curable so I think it must be worse than they thought. I cant stop shaking.
Im depressed at the thought of more chemo in the next few weeks.

I also feel Im not getting better quickly, I still walk with a stoop and sometimes clutch my belly, I have a car worker to put my stockings on and just have no energy.

etheltbags1 Sun 07-Jun-15 14:24:04

btw I meant a care worker. I pressed the post button twice and made another gaffe yesterday as Im so worked up.

Alygran Sun 07-Jun-15 14:51:42

Ethel be kind to yourself today. Hugs and flowers

Elegran Sun 07-Jun-15 15:02:34

Don't be too downhearted, ethel. They don't cure anyone's cancer 100% guaranteed-or-your-money back, anyway . Everyone who has had cancer is in remission - many many people had cancer ten, twenty, thirty years ago and have been "signed off" after they have been clear for whatever the standard time is for the type they have - you would never know that they have been so ill - , but no-one ever says that they will be clear for ever. Join the club! At least half of Gransnet is in it, so are at least half their spouses. It doesn't stop them joking and arguing.

Of course you worry - but don't let worry take over your whole life. Tomorrow will soon be here.

KatyK Sun 07-Jun-15 15:34:52

ethel flowers What Elegran said is so true. My DH had cancer last year. Although the radiotherapy 'worked' and the cancer is in remission and he is fit and well, he still has cancer and we are grateful but not complacent. We know that when he goes for his 6 monthly checks, things could change but we hope for the best. Good luck to you.

Gagagran Sun 07-Jun-15 15:46:17

My late Dad had bowel cancer aged 63 and had a colostomy for a year. He then had it reversed and lived till he was 93 and only died then because he got a gangrenous leg ulcer leading to amputation. He died on the operating table. So the cancer didn't get him is what I'm saying plus treatments have advanced hugely since then. Keep strong ethel flowers

Judthepud2 Sun 07-Jun-15 22:24:12

Ethelbags good luck for tomorrow. It is a bit harrowing going for post cancer surgery results. You just don't know what you are going to hear. Will be rooting for you. Let us know how it goes ..... And for goodness sake, be gentle with yourself. Allow your body to work on recuperating by resting up.

Mishap Sun 07-Jun-15 22:43:38

Good luck for tomorrow.

etheltbags1 Tue 09-Jun-15 15:04:57

My results were good, they think they have caught all the malignant bits but I must wait for a scan which will tell me what further treatment I must have. I am not raising my hopes till the scan results.

KatyK Tue 09-Jun-15 15:43:30

That's good news ethel. Very positive flowers

Lona Tue 09-Jun-15 16:16:31

That sounds like a good result ethel, try to relax a little now.

Ana Tue 09-Jun-15 16:21:45

Yes, good news ethel! smile

loopylou Tue 09-Jun-15 16:45:12

That's really good news ethel!
Worth all the angst and pain I imagine, to hear that smile