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My daughter died ten days ago

(501 Posts)
AlieOxon Fri 15-May-15 15:04:21

Of acute pulmonary oedema, we have just heard.
She hadn't seen her consultant for four years for her kidney condition
She probably wasn't taking her potassium pills.
We didn't know she was risking her life. She probably didn't.
.....and I am really angry.

There is a black hole in the middle of our family.

But what I really want to say is that although the condition she had is very rare (Gitelman's Syndrome, if you want to look it up) that I have found there is a similar risk in people with heart conditions who are taking some diuretics.

We should have known that she was at risk. From what I find, this is only recently realised by the medical profession about GS patients - there may be only 1500 in Britain. I don't know if heart patients are warned.
I feel this should be better known.

Lona Tue 02-Jun-15 19:53:04

Alie flowers my thoughts are with you too.

petallus Tue 02-Jun-15 19:55:05

What has happened is so profoundly sad and it's hard to know what to say.

I hope you and your family can find some comfort in each other and find strength in the coming months.

Keep on posting on GN.

AlieOxon Tue 02-Jun-15 20:31:45

I just found online 'A Letter to People in Pain: The Early Days of Grief Are a World of Their Own'
www.huffingtonpost.com/megan-devine/a-letter-to-people-in-pai_b_4894079.html

Sometimes I am still in there. Sometimes I can just begin to see out.
But Jayne's partner is still there.

loopylou Tue 02-Jun-15 20:34:53

It's such early days for you all, seeing beyond one day at a time must be difficult. ((Hugs)) and love to you all x

pinkprincess Tue 02-Jun-15 23:09:22

I have just read your thread AlieOxen

My thoughts are with you.

harrigran Tue 02-Jun-15 23:28:28

Every morning when I wake I think of you Alie, you are in a position that no mother should ever be in and my heart goes out to you flowers

Faye Tue 02-Jun-15 23:34:50

I am so sorry Alie, I have just read your posts. flowers

Could you pre arrange to pull over somewhere easy when you are close and phone someone to meet you so they could do the parking for you.

Bellanonna Wed 03-Jun-15 08:35:51

Alie, as so many have said, my heart goes out to you, and words seem so useless, but along with everyone else I am thinking of you and shall keep reading your thread. On a practical level a couple of good suggestions were made about the parking. I am sure somebody could come and collect you from somewhere you can find to park. Otherwise ring for a cab? I'm sure it will all work out in the end. Thoughts and prayers. X

AshTree Wed 03-Jun-15 09:29:05

Oh Alie I just read your Huff Post link. We're all holding your hand while you're standing there. flowers

AlieOxon Wed 03-Jun-15 20:16:50

Spent the day in Oxford trying to help sort things out.
Parking worked out this time!

Jayne's partner is snowed under and even the Social Services have got in on the act now about the kids - so we are going to try and get a solicitor tomorrow, he needs someone on his side to help out!
My sister has sent the name of one who is supposed to be good on the family law side.

Going back there tomorrow.....

loopylou Wed 03-Jun-15 20:20:51

((Hugs)) Alie you must feel like a boomerang, I hope someone is looking after you too, x

Anya Thu 04-Jun-15 06:55:10

X

absent Thu 04-Jun-15 06:57:35

Still thinking of you each day. Still wishing you well and strong.

baubles Thu 04-Jun-15 07:55:41

Alie - still in my thoughts.

whitewave Thu 04-Jun-15 14:44:50

How are YOU doing Alie?

AlieOxon Thu 04-Jun-15 17:51:46

You know, my sister just phoned and SHE didn't say that....

I'm very tired, just back from Oxford again but feel something has been achieved today - getting the Order of Service off K's back!
Everything has been handed over to the helpful woman at the funeral place and hopefully will result in a decent printed thingy.
So I am relieved, and less tense.

whitewave Thu 04-Jun-15 17:59:15

Good - a step forward. But don't be surprised if you sort of go into a decline later as it would be so normal after having to keep everything together at the moment - hopefully GN can help keep you going.

AlieOxon Thu 04-Jun-15 18:41:12

I am up and down anyway. Little things can start me off crying. I found a Mother's Day card from last year.....

I know from the past that the only way to treat depression is to fight it. The worst downs can only get better, but it's difficult to remember that.

Lona Thu 04-Jun-15 19:16:33

Alie, you are doing so well, don't lose heart.flowers

Tegan Thu 04-Jun-15 19:30:08

Just to let you know that there isn't a day that goes by when I don't think of you, Alie.

Mishap Thu 04-Jun-15 19:49:39

We are all with you in spirit. One day at a time.

harrigran Fri 05-Jun-15 00:38:07

Alie flowers

Anne58 Fri 05-Jun-15 15:36:04

Alie I don't entirely agree with you that the only way to treat depression is to fight it, you have to acknowledge the beast first and look it squarely in the eye. THEN you can begin to fight the bugger!

Much love to you all.

AlieOxon Fri 05-Jun-15 16:52:35

Yup.

HildaW Fri 05-Jun-15 17:38:23

Oh Alie, am so sorry, what you are coping with is quite beyond me.
Just like to say that viewing some of what you are going through as depression. although technically true, it might not always be helpful.

You are coping with so much and will feel overwhelmed. You have every right to be depressed, down and feeling that its all too much....because basically it IS too much.

A wise lady who has been helping me reminds me to view my emotions with compassion. Its perfectly natural and to be expected to have all these raw emotions. Accept that and acknowledge the feelings but try not to see it as a battle. Battles create casualties and you are definitely not one of those. You are going through something unimaginable to many of us so please do not see it as winning or loosing....you are coping, and dealing with it...and you will feel down and exhausted. Take great care, accept all offers of help and accept that its going to be hard work. All the very best and we are all thinking of you.