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My daughter died ten days ago

(501 Posts)
AlieOxon Fri 15-May-15 15:04:21

Of acute pulmonary oedema, we have just heard.
She hadn't seen her consultant for four years for her kidney condition
She probably wasn't taking her potassium pills.
We didn't know she was risking her life. She probably didn't.
.....and I am really angry.

There is a black hole in the middle of our family.

But what I really want to say is that although the condition she had is very rare (Gitelman's Syndrome, if you want to look it up) that I have found there is a similar risk in people with heart conditions who are taking some diuretics.

We should have known that she was at risk. From what I find, this is only recently realised by the medical profession about GS patients - there may be only 1500 in Britain. I don't know if heart patients are warned.
I feel this should be better known.

Galen Fri 05-Jun-15 17:53:09

We're all here for you. You know that.

annodomini Fri 05-Jun-15 18:14:07

A lot of wisdom from Hilda, Alie. flowers

Anya Fri 05-Jun-15 19:31:16

What you are experiencing Alie is perfectly 'normal' given what you've been through, and are still going through. No one can tell you how to grieve, everyone is different.

Lona Fri 05-Jun-15 19:37:38

HildaW is right.

kittylester Fri 05-Jun-15 20:15:38

(((Hugs))), Alie. We are all here with you. Look after yourself. Xx

NfkDumpling Fri 05-Jun-15 22:14:59

I wish there were words of wisdom I could add to help ease the heartache but like everyone else I can only send ((((hugs)))) and supporting vibes in the hopes it gives you strength to face the day.

MariClaire Sat 06-Jun-15 06:04:43

I hope today brings you a small, warm ray of sunshine sunshine AlieOxon I'm thinking of you and sending heartfelt wishes that just for a while today you find strength to bear the loss of your dearest Jayne flowers As Mishap says, one day at a time. Hugs

AlieOxon Sat 06-Jun-15 17:57:29

I wrote a very melancholy poem, which seems to have helped.....think I let something out.
My grandson at school doesn't want to talk about it to anyone there. He just wants 'to be normal'. Normal is just going to be a bit different.

Thank you everyone for your thoughts. Some of the time I have my head above water and even find something funny.....odd.

loopylou Sat 06-Jun-15 18:03:25

NOT odd, that's normal in the surreal situation you're in, finding something funny is a good thing.

DGS is managing in his own way too.

Big hug AlieO, just wish I could do something to help x

annodomini Sat 06-Jun-15 19:22:43

It's good to write in stressful times, Alie. As you say it 'lets something out'. There's nothing odd about finding something funny. Grief doesn't mean you lose your sense of humour, even at a time when everything is gloomy. x x x

glassortwo Sat 06-Jun-15 20:34:49

I agree anno No two people deal with grief in the same way, big {{{hug}}} Alie

absent Sun 07-Jun-15 07:40:15

Alie Every day at the moment you are in a place you never expected to be with no experience of how to handle it. If you found a moment of humour, well that was what you needed and good for you. I cannot imagine how you must feel at the moment and how you are getting through each new day, but I am full of admiration that you are getting through each new day and my heart goes out to you.

kittylester Sun 07-Jun-15 08:31:37

Well said absent. I just wanted to say 'hi' Alie and I hope you have a peaceful day! brew

AlieOxon Mon 08-Jun-15 09:38:26

I do appreciate all your responses.

Today I am slogging through things like returning a defective alarm clock (it rang once and then stopped completely, and I need to return it before the time runs out!) and getting a new washer for a hose tap otherwise I can't water and will lose plants.......etc etc

All of which is a drag, I am tired and miserable today after a Sunday on which I coped fine until the evening, when I found myself playing solitaire on the PC and running with tears at the same time.
Best to do something.

Tomorrow I go back to Oxford again.

kittylester Mon 08-Jun-15 09:47:59

Glad to see you post Alie, you know we are still here. You are doing really well, I'm sure. It is so hard for you. flowers

AshTree Mon 08-Jun-15 10:05:15

Alie I wish I had words that would help, a magic wand, all of that. Dealing with the minutiae of daily life, the alarm clock, new washer and so on, are all part of the healing process, getting you through the days. It must be unbelievably hard, and my heart aches for you.
But I too am pleased that you are posting here, reaching out to all of us, who will continue to be here for you. (((hugs))) flowers

AlieOxon Mon 08-Jun-15 13:42:56

I did those things and went shopping too.
I have found some black canna lilies (plants which Jayne loved) in of all places Aldi! and now have to decide what to do with them for the funeral.

Either I plant them in some container I don't have and which will be heavy.......or I cut the flowers and make a bouquet, but I can't do that until Thursday. I think I can put it together ok.

I talked to K on the phone when I came in and he seems to be dealing with a lot of the stuff he needs to do, which is good.

Trying not to think about Friday too much.

Tegan Mon 08-Jun-15 14:07:21

We'll be thinking of you on Friday Alie; I hope that the collective thoughts from all of us can give you some strength, not just on Friday but for the journey that you're on flowers.

Judthepud2 Mon 08-Jun-15 17:38:14

((Hugs)) Alie will be thinking about you especially on Friday.

loopylou Mon 08-Jun-15 17:46:19

Definitely thinking of you Alie x

Iam64 Mon 08-Jun-15 18:34:21

Sending loving thoughts Allie flowers

AshTree Mon 08-Jun-15 19:05:25

Will also be thinking of you on Friday Alie, and beyond xx

Marmight Tue 09-Jun-15 06:20:18

Alie . Thinking of you still. Friday will be so difficult for you all. flowers

Anya Tue 09-Jun-15 07:15:58

Black Canna Lilies are beautiful Alie aren't they? flowers

Juliette Thu 11-Jun-15 06:48:13

Thinking about you Alie especially today.
flowers sent with love from Juliette.