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Running out of positivity....beginn ing to struggle.

(48 Posts)
Katek Sun 09-Aug-15 21:51:27

As some of you may recall I've been fighting a particularly nasty exacerbation of my long term asthma over the last few weeks. It's the worst I've been in 30 years and due to difficulties at my GP practice I feel it's not been addressed as it ought to have been.

Since our 'old' GPs retired some 3 years ago the practice has been staffed by a selection of locums, sessional and part time doctors. We do now have 3 female partners who all work part time, but two of them are currently off on maternity leave for a year each.

In the 6 weeks or so since this started I have seen 5 separate GPs at the practice, 1 out of hours GP at the cottage hospital, had 3 different courses of antibiotics, 2 x 5 day courses of steroids and am currently in the third week of an 8 week extended course of steroids. I'm still coughing, sweating, wheezing and at times can hardly walk the length of myself. I've also had protracted email communication with the practice manager over a lack of same day/emergency appointments ( fairly essential when you're dealing with breathing issues.) I saw another doctor on Friday who said I'm still showing signs of infection ( no surprise there ) and we need to do a sputum sample to identify bacteria instead of the scattergun approach with antibiotics. About time I thought, but it's going to take until Friday for results so I remain in my current state until then as I have no antibiotics.

I'm trying to carry on as normally as possible as I don't tend to give into things too readily, but I'm beginning to run out of optimism that this is ever going to be resolved. DD1 and I are looking after dgs this week as well as dd2 is back to work and he's still on holiday, I'm away next week to visit my brother/sil in Shropshire ( haven't seen him in 18 months) and tickets are all bought but I don't know how I'm going to manage. I really don't know what to do anymore-I just keep looking at this array of medication and wondering whose advice to follow. I'm running out of resolve and determination, in fact I feel quite low spirited about it all at the moment.

Liz46 Mon 10-Aug-15 12:51:30

Katek, my asthma seems to have been worse this year. The asthma nurse seemed quite happy with my tests but when I said I felt worse, she mentioned that one of the GPs specialises in respiratory problems. I made an appointment to see her and she said my chest is clear. I am coughing frequently and cough up a clear froth (sorry, tmi) and then feel better for a while. The GP wasn't worried about me at all.

I don't feel at all well today and don't know what is causing it. Maybe there is some pollution or pollen. I don't know. I hope you feel better soon.

Tegan Mon 10-Aug-15 13:05:06

Have you ever tried taking Singulair tablets? [apologies if you have mentioned it before and I've forgotten].

ffinnochio Mon 10-Aug-15 13:31:05

I'm pleased to read you're feeling more positive, Katek, and couldn't agree more about you taking charge of your health in the manner you describe. Go to it! smile

Katek Mon 10-Aug-15 16:18:37

Our lovely beach today-balm to the soul.

Katek Mon 10-Aug-15 16:20:36

Sorry it's sideways-it's right way round on my phone.

Katek Mon 10-Aug-15 16:42:52

Hmm. Was sideways in preview

Crafting Mon 10-Aug-15 19:20:44

katek your surgery should have an asthma nurse. Ask if you can have an urgent appointment as you are seriously worried about your difficulty breathing. If you get to see a GP ask if you can have a referral to a chest specialist as you don't seem to be getting any better. Make a nuisance of yourself until you get the sort of service you need. Be more pushy (I work in a GP surgery and we would not let someone like you pass through the system untreated).

loopylou Mon 10-Aug-15 19:33:04

I'm shocked and saddened by your trials and tribulations Katek, the lack of consistency and care is appalling.
If it's possible I'd demand an urgent referral to a Respiratory consultant and, if you feel poorly to go to your nearest A+E, as clearly you're not getting the best treatment from your surgery.

I do hope things improve quickly, you must be so fed up with it all.

Katek Tue 11-Aug-15 08:44:24

Just called for routine appointment to request referral........9th September! Email to practice manager sent-I don't actually need to see doctor for referral so have asked for it to be processed anyway as they have all info they beed. Outwith their norm so will see what happens now.

Katek Tue 11-Aug-15 08:46:15

*need

Katek Fri 14-Aug-15 15:33:24

This is getting beyond a bloody joke!! Still have wheeze and rattle so doc decides last Fri to do sputum sample to check for infection. Sample went in on Mon. Results back today. Phoned at 12....doc hasn't looked at them, call back later. Called back 5 mins ago....doc just back from emergency and still hasn't looked at results. I suggest calling back at 5 'oh no, she says, it will be Monday now, doctor has so many emergencies to deal with' I point out that I've been waiting/suffering for a week so I'm actually at front of the queue (apart from life threatening illness) and what are they going to do about it. We are now off to see if she can chase doc up. What do I do in the face of this? Register as temp patient elsewhere? Go to private GP? At wits end.

Luckygirl Fri 14-Aug-15 15:41:18

It sounds as though your GP practice is stretched to its limits. If the results are there, it should be possible for someone to ring back with them - even if it is to ask the receptionist to say it is all clear - and if it is not, the GP should be initiating treatment today. I am afraid that you will just have to continue badgering them today. It is an impossible situation, as I am sure your realise their pressures - but the bottom line is that you need treatment for something that has been going on a long time now.

I am surprised that the GP is going out to emergencies - I thought that those were all dealt with via 111 and finished up blocking corridors in A &E!

Anya Fri 14-Aug-15 16:17:51

It's appalling that someone who is unwell has to go through all this. Well done for persevering.

Yes, we understand that GPs are overstretched, but this cannot be allowed to interfere with the well being of their patients - for which service they are paid handsomely.

There is a good argument that certain routine GP duties could be passed on to experienced nurse practitioners to alleviate the pressure.

Katek Fri 14-Aug-15 16:59:10

Just called again....still hasn't looked at them. My bp has gone through top of my head.

Luckygirl Fri 14-Aug-15 17:05:18

Just keep on ringing! - a pain I know, but what else can you do? Can you go round and sit there - if you fill the waiting room with steam they might notice you!!

Anya Fri 14-Aug-15 17:28:02

Good idea.

Katek Fri 14-Aug-15 17:56:18

Steam out of ears more like!

Luckygirl Fri 14-Aug-15 18:00:17

It was your ears I was thinking of Katek - certainly no other orifice! grin

Katek Fri 14-Aug-15 18:05:03

Finally....results inconclusive. What does that mean?? Clearing infection? Threatening infection? It's been but gone infection? I got hold of nurse practitioner who has booked me in for appointment on Monday with new locum covering maternity leave as I'm still wheezing

Shoot me now.

Katek Fri 14-Aug-15 18:06:40

Pahahaha!! grin Thought you meant I should take steam inhalation with me to prove a point!!
Brain is addled obviously.

Ariadne Fri 14-Aug-15 20:22:15

Katek I do hope you can get this sorted out soon - no advice to offer, but a shoulder to lean on. flowers

Tegan Fri 14-Aug-15 21:24:12

Katek; do ask about Singulair if you've never used it. I think your Dr must have been the duty doctor today and Fridays are always horrendous..the duty doctor still has to leave the surgery straight away if there is an emergency sad.