do you have a friend or relative with ME watch this video

I admit to not reading all the thread so apologies if it has been mentioned, and by that I mean The Lightning Process. My GS has CFS and a friend told us about this programme. It is or was expensive and my D was reluctant to commit to something without knowing more. Has anyone tried it or has experience of others trying it?

annsixty I read up on it a few years ago and was not impressed!!! Very expensive and hyped up and the reviews at that time were off putting! Perhaps it's horses for courses and works for some people.

That's interesting MiniMouse. I'll look out for that type of yoga. Used to go to a class especially for folk with any type of illness or pain which was both gentle and helpful. Can't find one in my present location and a bit scared of a more robust class. It used to help. I'd love to try again. Agree with you about The Lightning Process. Not for me but as we're all different it may help some. Think I'd try other things first though.

thank you jogginggirl, same to you for your DD. mine has a very difficult [autism] child to deal with, as well.She also gets the tingling, mini stroke feelings and also has terrible migraines.

jogginggirl and MiniMouse Thank you for your lovely words of encouragement. I do have my son at home, but he won't go with me and probably makes my condition worse as he can be verbally abusive which leaves me dumbfounded and in tears.

I am having a bad week as my daughter gets married on Saturday and I am not invited due to me wanting to have a part in it and being told where to go (she's paying for it apparently so she gets to choose who is important), even after I was a sole parent most of her life, so that's not helping. Also, next weekend I will be visiting the grave of my baby brother who lived for 12 hours.

I do think dealing with these sort of things (and a dementia dad) and no support or someone to lean on makes this condition worse. I'm ready now for my son to leave home and then I can maybe start to get some sort of better but he is at home for another 12 months yet to finish college. I really will need you all during this time. Thank you.

Oh flip ruby - so many things in your post are not helping your health conditions. Perhaps your son does not understand how you feel, it can be difficult for people to get their heads around an 'invisible illness' - have you tried to talk to him about it?

I'm so sorry that you will not be there to see your daughter get married and you also have the sad task concerning your baby brother Just one of these issues, never mind all of them, will add stress to your life and exacerbate your health issues. MiniMouse seems to be getting some positive results from her yoga nidra - do you have anything similar close by that you could join?

You are not alone xx

Ruby with so much pressure no wonder you feel unwell. How complex families are and how sad you must be right now. Sending good wishes and my hope that there can be some space for you.

Thank you ladies. I've ordered a little bottle of champers and taking it, along with a picnic tea (egg mayo sandwiches, no "do" is complete without) to my dad's on the wedding day where we will have a "reception" of our own and a toast. My dad would probably have been too unwell to go too, and he says he has never had champagne before, so it will be nice anyway. I don't know if she has invited the rest of the family, my siblings or my mum but shameful if not.

Yes, I have tried to explain to my son about how I am affected but he doesn't want to know. I started getting worse when he was about 10 years old so he is probably fed up of it now. Plus he did look after me a lot in the early days of it affecting me. Now he drags his feet if I ask him to do anything. Never mind, he's back at college on Monday so I'll have some peace after him being off for seven weeks, which is far too long in my opinion at teenage age.

Anyway, I hope you all have a lovely weekend and the sun continues to shine.

Just to add - does anyone else think my DGS will be tired out tomorrow when he started in reception class this last week, I think his first experience of schooling of any kind as my daughter was against him going to a nursery. Surely if he has done something so different all week and I remember mine being tired after that first week, then he is going to be shattered and his parents are going to be getting married and expecting him to be in a good mood all day, poor lamb. But as it was the day they started courting (and moved in together may I add!) then that is the day they had to get married on, regardless of what their little son had done the week before. Surely he should have come first and as he wasn't at school for the weeks before, they could have booked it in any time then, giving him this weekend to recover for Monday. But that's just me.

How did Saturday go rubylady - I was thinking about you Did Dad enjoy the bubbles?
Regarding your DGS - try not to worry, children seem always to find the energy to deal with these evvents and I'm sure he was excited as well. If he's grumpy because he's tired - well, they will have to deal with it

I really hope you can find some peace with this situation and begin to concentrate on your own well-being. You have enough to deal with, I know from watching my own DD how important it is to focus on those things you can do something about and conserve energy to help you through your days
All good wishes to you X

So sorry rubylady - I've just seen your new post. I will follow that one now to keep up with any news. Sending warm hugs and - your dad may be right, it might help xx