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Linx Reflux management system

(32 Posts)
petra Sun 11-Oct-15 13:31:05

I have silent acid reflux. This has been going on for 4 months. I've had it diagnosed from the hospital and I'm now on the third different antacid tablet. Nothing is working. I'm watching what I eat and drink.
I was reading today about a system called: Linx Reflux management system. It is a bracelet type thing that is put round something in your gut. That sounds very technical, doesn't it. Lol.
Obviously it is a private procedure. Just wondering if anyone's had it done, because I really am at the end of my tether now. I don't do being unwell.

tanith Sun 11-Oct-15 14:43:18

My husband used to get terrible acid reflux all the time but he recently had a serious surgery and had lots of meds to take afterwards and they gave him a stomach protecter to take before he ate breakfast (it was long lasting) and he hasn't suffered any problems with reflux since he started taking them.
Just a suggestion that you could ask about maybe. He was always taking all sorts of antacid meds nothing worked till this.. I hope you get some relief soon .

petra Sun 11-Oct-15 14:56:21

Thanks for that, Tanith.

Katek Sun 11-Oct-15 15:12:40

I have a hiatus hernia and take 20mg omeprazole twice daily. I don't really have any major problems with reflux-have you tried this?

Nelliemoser Sun 11-Oct-15 15:19:53

I have not had reflux but I did have bad indigestion for a while and after a gastroscopy they found I had a heliobacter pylori infection (the one that causes ulcers).

I had the antibiotic along with omemprazole and the discomfort continued. I tried Ranitidine and the Esomeprazole. When the Esomeprazole ran out I did not order any more and just used the Gaviscon.

Lo and behold the discomfort cleared up very quickly once I stopped omeprazole. I really do think that the omeprazole was starting to cause me further problems. I am not saying stop taking it but be aware.

Ana Sun 11-Oct-15 15:27:58

Nelliemoser, I'm inclined to agree with you!

My silent reflux symptoms started about five months ago, and my GP immediately prescribed lansoprazole, which acts in a similar way to omeprazole, and doubled the dose when it didn't seem to be having much effect, in fact my throat was getting worse.

I was then prescribed Ranitidine, and began having coughing fits, earrache and sometimes toothache! I decided to take myself off all meds and just take Gaviscon Advance after meals and at bedtime, and touch wood it seems to be working.

It's taken many weeks to settle down though, the damage done to the throat lining can apparently take months to heal. Good luck petra, it's a miserable affliction.

Katek Sun 11-Oct-15 15:32:50

Oh help! I've been on this med for 15 years.....!!!

Ana Sun 11-Oct-15 15:37:01

If you're having no problems with it there's no need to worry Katek! grin

petra Sun 11-Oct-15 15:37:16

Katek. I am on 20mg omeprazole twice a day. I have just come off lansoprasole 30mg a day. I forget the first one I took. None of these tabs do a thing, I don't know why I keep hoping they will.
It doesn't matter weather I eat what I should/shouldn't it doesn't get any better.

Ana Sun 11-Oct-15 15:45:53

Have you tried Gaviscon Advance, petra?

Nelliemoser Sun 11-Oct-15 15:52:03

Ana That is interesting. It's not just me then.

Have a thought about that folks the Gaviscon sodium Alginate stuff which is largely just a barrer might do better.

It contains Sodium Alginate, potassium bicarbonate. Omeprazole and other PPIs (Protein pump inhibitors) will interfere with your body system in a far more complicated way.

Coolgran65 Sun 11-Oct-15 16:14:03

I had feelings of nausea, had an endoscopy done which discovered inflammation but no hp infection.

Some time after ... taking omeprazole one daily.... had several bouts of severe chest pain, really thought I was having a heart attack. GP sent me off to a & e to be xrayed, all was ok and I was told to double my omeprazole. All ok for a while, then it was a cough for months which GP reckoned was reflux, so was changed to Lansoprazole 2 daily but I tried to reduce and soon discovered that I did need the 2 daily.

Over the last 6 weeks I've had another couple of bouts of chest pain, sore gullet, not quite a sore chest/throat but something going on, and nausea. I have myself upped my lansoprazole to 3 daily.

However, I don't know if 3 Lanso daily is ok, or if I should actually be trying something else.

I made a doctor appointment for tomorrow afternoon.
In the past couple of days the 3 Lanso daily appear to have helped somewhat and now that it is a bit better wonder if I should consider cancelling the appointment.

Feel a bit of an idiot..... sort of... ""I'm here to see you, but think I might be ok now ?? ""

Coolgran65 Sun 11-Oct-15 16:15:13

Also.... however, I do have a condition which is negatively affected by PPI medication so I suppose that could be one good reason to try something other than a PPI.

Greyduster Sun 11-Oct-15 16:27:17

I sympathise with you. I have had acid reflux for a number of years. Started taking omeprazole; when that started to lose its effectiveness, I was prescribed lamsoprazole but it didn't agree with me, so I am now on ranitidine. It is effective, by and large, but I do have odd days when it is not and I get horrendous reflux. I would like to stop taking it altogether, but my GP doesn't seem to think it's a good idea, so it looks like I'm stuck with it until my toes turn up! I have heard of some sort of band that fits around the valve at the base of the oesophagus and controls the leakage of acid that causes the problems, but I'm afraid I don't know a great deal about it other than that, or how effective it is.

Ana Sun 11-Oct-15 16:28:05

It's worth telling your GP that you're taking the 3 tablets daily instead of the 2 he/she prescribed so it can go on your notes, whether you decide to carry on with it or not.

Ana Sun 11-Oct-15 16:28:56

(sorry, that was to Coolgran)

petra Sun 11-Oct-15 16:56:38

Coolgran. My Dr says no more than one lansoprasole a day. That's why he's put me on Omeprasole, so that I can get more of the 'stuff' that's supposed to kill the acid, which it's not, if that makes sense.

The trouble is I let this acid thing get a hold. I've never had heartburn in my life. This awful sore throat/ lump in throat came on at exactly the same time as I started statins, so there was time wasted (a month) to see what happened. Then he put me on antibiotics, although I knew it wasn't that sort of sore throat. Then it's try this, try this.

Greyduster. The 'band' thing is the Linx system. I've done a lot of reading up on it. You can get it on the NHS but you have to prove to NICE that you deserve it.

annodomini Sun 11-Oct-15 17:00:45

I had several laryngoscopies in the ENT dept of a local hospital, which diagnosed silent reflux causing inflammation of the vocal chords - almost permanent laryngitis. A three-pronged approach was prescribed: Omeprazole (an hour before breakfast), Ranitidine and Gaviscon Advance - the last two to be taken at night after everything else. It has worked well for about six years and I haven't lost my voice for a long time. And no reflux silent or otherwise.

petra Sun 11-Oct-15 17:24:12

Annodomini. That sounds interesting. My voice is so low that my friends suggest that I make some money making those saucy phone calls.
When I went to ENT that's the first thing he said: how long have you been talking like that.
I think I'm going to have to sort this out for myself. Gone are the days when a Dr had time to sort out acid reflux. It's not their fault, it's the way it is.

petra Sun 11-Oct-15 18:42:56

Ana. I know this isn't the right thing to say, but you have no idea how pleased I am to see somebody else has the earache and sometimes, teeth.
I thought I was going crazy. That alone has made me feel better.

Ana Sun 11-Oct-15 18:49:35

And do you sometimes retch when you cough? That doesn't happen so much now, but the whole business makes you not want to go out to eat anywhere in case of an attack. I know exactly what you mean, it does help to know you're not the only one this happens to.

There was a thread about reflux a while ago and I can remember being so relieved that others had similar problems too! smile

harrigran Mon 12-Oct-15 00:25:45

I was on Lansoprazol for years and I was still getting reflux and heartburn, I told the GP I wanted to come off it because the lack of acid was allowing me to get a lot more tummy bugs. I usually just take Gaviscon at bedtime and it works.

jinglbellsfrocks Mon 12-Oct-15 10:35:15

I have silent reflux too. Hate the horrible taste. Can't taste chocolate anymore. Hate the white tongue too. Doc tried upping my Omeprazole. Didn't help, so now I take my previous usual dose of 10 mgs only and just try to keep to a simple plain diet.

I swear mine started with a virus. I will not stop believing it will go away soon.

I will not risk surgery of any kind.

jinglbellsfrocks Mon 12-Oct-15 10:38:13

My voice does sound croaky sometimes.

Only retch when I scrub my tongue with separate toothbrush and Corsodyl toothpaste. (Which I do every morning)

jinglbellsfrocks Mon 12-Oct-15 10:39:24

I get the earache too.

Sorry for multiple posts.