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Delayed communications - this is starting to worry me!

(37 Posts)
grannyqueenie Fri 11-Mar-16 00:46:30

How frustrating for you luckygirl, that's a lot waiting and wondering, it's not surprising you're feeling so worried. I hope your GP gets back to you asap and one way or another you manage to find out what's going on very soon and in the meantime are able to stay positive. Good to hear you're on the road to recovery harrigran flowers flowers for you both

merlotgran Thu 10-Mar-16 23:24:08

Best Wishes to you both flowers

harrigran Thu 10-Mar-16 23:11:16

I am recovering well Luckygirl and am getting out for walks and to the shops. I started chemo on Tuesday and that will last until September.
Try not to worry, I am sure they will sort you out.

Luckygirl Thu 10-Mar-16 18:23:02

Thanks harrigran - it is just difficult not knowing. It all seems the wrong way round, getting the appointments for further investigations before telling me what they are looking for and what they found. I really have no idea what they are looking for. I am guessing that the original scan was inconclusive, but I would like to know what they are looking for.

How are you getting on now? I do hope that you are recovering well and will be able to enjoy the spring - when it decides to arrive!

harrigran Thu 10-Mar-16 18:11:53

I found that the consultant was brutally honest about what investigations I was having and exactly what he was going to do during the operation. He even wrote everything on the consent form and had me read it and sign it. If he is not telling you anything maybe it is because he has not reached a diagnosis, maybe the scans were inconclusive.

Luckygirl Thu 10-Mar-16 16:10:39

I am holding on to the fact that my bloods are normal, I am eating and I am not losing weight. But what they are looking for I cannot imagine. If it was anything related to my osteoporosis then I guess they would just do a DEXA. I am holding my breath here. I wish someone would tell me what the heck is going on.

annsixty Thu 10-Mar-16 16:04:29

This is tantamount to cruelty.
I can only try to imagine what is going round in your head.
Your GP must do something to get an answer.

Luckygirl Thu 10-Mar-16 15:17:47

But I am!!! grin

jinglbellsfrocks Thu 10-Mar-16 15:14:47

If they had found anything untoward in your previous scan, they would have contacted you more urgently. It does sounds perhaps, as if they are covering all bases. I don't think you need to worry.

jinglbellsfrocks Thu 10-Mar-16 15:08:19

At the very least, speak to your GP direct. Phone again during his/her next surgery time.

jinglbellsfrocks Thu 10-Mar-16 15:07:18

I would demand to speak to the specialist himself! Make one helluva fuss! They can't do this to you. It is downright cruel. angry

Luckygirl Thu 10-Mar-16 14:48:28

I saw a neurologist in a hospital over an hour away in November because of my balance problems. He already had a previous brain scan there (normal) and ordered a full spine MRI which happened in January, since when they have sent me an appointment for a CT of thoracic spine on April 1st. I have spent much time trying to chase up the consultant to find out why they think I need this - what have they found? - what are they looking for?

His secretary is lovely and pleasant and has had the letter to me and the GP all typed for the last 3 and a half weeks, but she cannot send it till it is signed. Every time I ring her she says it has not been signed yet.

This morning a letter arrived from them and I thought - hooray, at last! But no - I opened it and it is yet another appointment - this time from the nuclear medicine department for a full body scan (with radioactive injection) for March 23rd!

Having worked in hospitals all my life I am beginning to think the worst, as I know these scans are often used when looking for metastatic tumours.

I have tried the secretary again, but he has still not signed it and I fully understand that there is nothing she can say - I feel a bit sorry for her really. But it does not seem reasonable that I am being called for these investigations without my knowing what they have already found and what they are looking for. I have left a message with my GP asking if she could possibly ring and they might tell her what is going on. I wish they would tell ME - it is my body!