I saw a neurologist in a hospital over an hour away in November because of my balance problems. He already had a previous brain scan there (normal) and ordered a full spine MRI which happened in January, since when they have sent me an appointment for a CT of thoracic spine on April 1st. I have spent much time trying to chase up the consultant to find out why they think I need this - what have they found? - what are they looking for?
His secretary is lovely and pleasant and has had the letter to me and the GP all typed for the last 3 and a half weeks, but she cannot send it till it is signed. Every time I ring her she says it has not been signed yet.
This morning a letter arrived from them and I thought - hooray, at last! But no - I opened it and it is yet another appointment - this time from the nuclear medicine department for a full body scan (with radioactive injection) for March 23rd!
Having worked in hospitals all my life I am beginning to think the worst, as I know these scans are often used when looking for metastatic tumours.
I have tried the secretary again, but he has still not signed it and I fully understand that there is nothing she can say - I feel a bit sorry for her really. But it does not seem reasonable that I am being called for these investigations without my knowing what they have already found and what they are looking for. I have left a message with my GP asking if she could possibly ring and they might tell her what is going on. I wish they would tell ME - it is my body!