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Psoriasis is causing pain and embarrassment, any help?

(53 Posts)
hildajenniJ Fri 09-Sept-16 11:53:27

Not psoriasis, but two of my DGS's have a genetic condition called X linked ichthyosis (XLI). It causes very dry, scaly skin which sheds large fish like scales. The boys are under the care of a dermatologist and are prescribed creams. They have Zerobase, Diprobase, Balneum plus, Aveeno, and these are just the ones I remember. None of them are really effective but stop them itching to some degree. They also have steroid ointment for use when they have an eczema flare up. The problem with them is that they also have ASD's and don't like the feel of the creams and ointments on their skin. It's a constant battle for my DD to keep their skin hydrated.
The only thing I would suggest is that you ask for an appointment to see a dermatologist, if this hasn't already been done.

rosesarered Fri 09-Sept-16 11:53:01

Yes, he needs to be referred straight away to a consultant, GP's can't prescribe much for psoriasis.In fact, whatcwirks for one won't work for another, there is no general ideal treatment.If you have psoriasis, don't smoke, drink much and try and reduce stress.Coal tar soap ( Wrights) helps a bit when washing.
There is a real risk of cellulitis, with open weepy psoriasis.

Solitaire Fri 09-Sept-16 11:27:48

My DS has suffered for over 4 years with what I consider to be severe psoriasis. He has patches everywhere, some around 20 sq ins. It bleeds and affects what he can wear and also as some dries there is a lot of skin shedding which embarrasses him. His gp has prescribed cream but I really think after this length of time he needs something which actually works. Anyone have experience of this?