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Urge Incontinence

(38 Posts)
Coolgran65 Sat 15-Apr-17 16:01:53

I'd reckon that some of us ladies suffer from Urge Incontinence. I would at a time have had stress incontinence - for a few years, had to take care with a cough etc. but nothing I couldn't more or less deal with.

Then it changed. About 6 months ago I had what i assumed was cystitis, 3 times in succession. Each time I bought the over the counter remedy from the pharmacy but although it sort of helped, the pain and burning came back within a couple of weeks. So off to the GP who confirmed an infection and prescribed antibiotics. This certainly cleared up the burning painful cystitis type symptoms but the constant urge to run to the toilet remained.

It was more than just the urge for the toilet, it was such an instantaneous need that I more often than not cannot make it to the toilet. On occasion I'd stand up to do something and whoosh.... an overflow without warning.

A month ago via my GP I attended a Urinary Incontinence Clinic and the nurse did a physical check, nothing untoward to see (or feel). She talked about the usual, pelvic floor exercises, use the rear muscles because it's often a better effect. Don't have caffeine. And do the exercises. I have another appointment with her in a few days.

I've separately had an ultra sound scan done on urinary tract and abdomen but haven't heard any results as yet although the technician was able to tell me that I was emptying my bladder fully. That was fun scan, drink 4 large glasses of water one hour beforehand and retain it.

Today, and every day I wear protection, Always Discreet or Tena Lady, and always the super duper model. Sometimes I can last 3 hours, other times I can't make it for a half hour and the 10 steps to the toilet.

Thus I know where all the good/clean toilets are located locally and I never miss the opportunity to use a department store or restaurant bathroom. This is wrong, it teaches the bladder bad habits. But ..... so be it, rather than risk an accident. Especially if out in someone else's car !!

The nurse mentioned that there was of course medication but they were reluctant to prescribe that. And also (just by way of conversation) some people may indeed be eventually in need of corrective surgery. I've spoken with a few people who felt their corrective surgery wasn't as corrective as they'd hoped for.

Do any of you have this difficulty? How do you cope?
Any good ideas.

janeainsworth Sat 15-Apr-17 17:37:23

Sympathy, coolgran.
Why are they reluctant to prescribe medication?

Luckygirl Sat 15-Apr-17 17:39:50

Join the clan! It is a total pain - but I seem to manage it. Usually by drinking less than I should - I know, I know!.....

Iam64 Sat 15-Apr-17 18:36:24

It's a B isn't it. Drinking less is Not Good Luckygirl, as we all know. I've cut back on tea and coffee. I only drink coffee first thing and stop tea mid day, or for a treat I'll have one about 3 - 4 pm then it's either water or camomile/mint tea. I find it helps.

gettingonabit Sat 15-Apr-17 19:03:52

I feel for you. I have had OB for 15 years but my symptoms are nowhere near as bad as yours. I don't drink enough either. I take Regurin which helps but I get very anxious.

Why are you not being prescribed medication?

Handynan27 Sat 15-Apr-17 20:19:37

I had a TOT (transobdurator tape) operation a few years back following a prolapse repair and hysterectomy. It has been liberating by curing my stress incontinence - I can run around with the grandchildren and no longer have to cross my legs when I sneeze! I don't know if this would benefit you but it may be worth asking your GP. More info available on Google (of course)

Coolgran65 Sat 15-Apr-17 20:32:39

Clinic nurse says surgery is bottom of the list. The tick list I reckon starts with the pelvic exercises. She reckons medications all have side effects.

When I needed the loo, nurse checked with scanner and I had 40 mls when bladder should comfortably hold 350 mls.
It was GP who referred me to this clinic nurse so I guess we have to go through the tick list.

gettingonabit Sat 15-Apr-17 20:48:46

Could private treatment be an option?

TriciaF Sat 15-Apr-17 21:23:37

I've had similar symptoms recently, including an infection for which I took antibiotics. The symptoms mostly cleared up, but still some discomfort which seems to be linked to my regular use of vaginal HRT ie I wasn't using enough.
Not saying that's your problem, but just an idea.

glammanana Sat 15-Apr-17 22:20:32

I suffered the problem for a long time until my Consultant gave the option of Botox to the bladder 6yrs ago and what a difference it made,I had surgery prior to that which failed twice due to the fact the neck of the bladder was to weak to hold the stitches after a couple of months,I now go every 9/12 mths to the Womens Hospital and the procedure is carried out under local anesthetic it does not need the Consultant to do it it can be carried out by a Nurse Practioner trained in Urology.I also to make sure of no infections do the rocking motion when going to empty my bladder which is sitting and rocking back & forth a few time after you think your bladder is empty where you will find more urine will dispel thus saving it stagnating in the back of the bladder and causing infection.I know when the Botox needs replacing as I can feel the urge to go on a more regular basis I then ring my NP and she books me in for the procedure when I need it,I would be really firm with your Consultant and insist on the treatment I did and its the best thing I ever did,certainly not a ladylike procedure but it works so well.

Coolgran65 Sun 16-Apr-17 04:42:59

I haven't reached the consultant stage yet. The plan at present is to do the usual tick list and see how it progresses. Consultant would be down the line a bit. When/if it gets to that stage I could go private for a speedy consultation but not private for treatment

Thanks everyone for your suggestions

gettingonabit Sun 16-Apr-17 10:27:00

I hope it works for you, OP, and that you get the treatment you so urgently (no pun intended) need.

I can't believe that this distressing condition is not treated with the seriousness it deserves. I wonder how many people it affects?

Wake up, NHS!

Handynan27 Mon 17-Apr-17 19:21:05

I was lucky to have had my op six years ago. In the current financial climate, the NHS is having to target its resources at the most urgent cases such as heart disease, cancer etc so patients with less urgent problems face a long wait. To be fair, I had a health scare last year and can't fault the NHS for the speed with which my tests were arranged but it's hard on those with non-urgent conditions, such as bladder problems or arthritis, which aren't life-limiting but do have a big impact on quality of life.

GrandmaMoira Mon 17-Apr-17 19:39:02

I have a mix of stress and urge incontinence, both mild. I've had hysterectomy and prolapse repair. The consultant prescribed Oestrogen cream which is for vaginal atrophy. I take it two or three times weekly and my symptoms are much worse if I don't. This may help you. I thought I had cystitis before I had the prolapse and your cystitis symptoms could be partly atrophy as mine were.

Coolgran65 Mon 17-Apr-17 20:40:23

I do use Vagasil and Replens for comfort because of dryness. At one time I was prescribed an oestrogen cream but GP then stopped it. Can't recall why. Examination has ruled out a prolapse.

Coolgran65 Mon 17-Apr-17 20:44:40

I read somewhere that wearing a super sized tampon can help ease the urgency somewhat. Don't know how efficient that would be. Perhaps on a specific occasion. I'm dry enough, feel I'd need a good supply of KY jelly to use a tampon. confused

Nelliemoser Mon 17-Apr-17 22:06:55

Coolgran65 That is miserable Commiserations.

Iam64 Tue 18-Apr-17 08:48:21

HRT - given the latest research debunks some of the earlier anxieties, I suspect it would help with all these horrible problems.

petra Tue 18-Apr-17 09:40:52

Did anyone see the Victoria Derby programme this morning? The subject was, Vaginal mesh implants. I cried at what I was hearing from the women who's lives have been ruined by this procedure. It's horrendoes

margrete Tue 18-Apr-17 09:53:19

There is medication possible but it causes constipation, which can make the problem worse. With a dodgy bladder/pelvic floor, constipation is definitely not what you want or need.

Greyduster Tue 18-Apr-17 16:39:58

I didn't see the programme but I was discussing this with a gynaecologist I went to see in January and he said he absolutely never used mesh in repairs. Nice don't recommend them either because they cause so many problems.

Daisyboots Thu 20-Apr-17 21:49:10

About 14 years ago I had the TVT operation for stress incontinence. It worked but I then had urge incontinence. I took to wearing pads and just
got on with it until a close friend said she was taking tablets for her urge incontinence. I spoke with my doctor who was willing to prescribe them. They worked for a while but then became ineffective. I was referred to a private hospital (I live abroad) who had a gynaecologist who specialises in incontinence problems. Over the past year I have tried different tablets until we found the best one for me. Now I find that certain drinks seem to irritate my bladder. I cannot drink something like Fanta as that makes it worse and having had a problem the last few days it would seem that ice tea has the same effect. So something else to avoid. The first medication was around €50 a month but the one which is working well is only €3.50 for a months supply. Obviously being a pensioner they would be free in the UK

Luckygirl Thu 20-Apr-17 21:59:44

GP has referred me to the incontinence nurse.

Coolgran65 Thu 20-Apr-17 22:03:26

Luckygirl I am due my second appointment with the incontience nurse next week. It will be interesting to hear if your appointment provides anything more positive than mine did.

Coolgran65 Thu 20-Apr-17 22:03:46

** than my first appointment did....