Health file

If, as your user name suggests you were born in 1953 Lizxy I’m so sorry to read of health issues in one so young. You must do as you see fit, but it might help too if you created a file of things you want to do in the next few years while you still can.

I also have a chronic condition and keep a file. It's easy to forget some things that are said. My husband comes with me to the consultant and makes notes. I also get a copy of the letter that the consultant sends to my GP.

When I have an appointment, I made a brief list of anything I want to ask and hand it over, keeping a copy for my file of course!

I keep the hospital letters for about the last year but bin anything older otherwise I'd disappear under a pile of letters. The Hospital told me last time I was admitted they can access my file electronically so there's no need to keep any of it.

This is a good idea and I remember my late husband writing everything in his diary each year from the diagnosis up until 6 years later on the day before he died. This was in 1988/89 until 1994.
It's surprising how many things were missed or even forgotten on the part of the hospital ! They weren't computerised until 1990.

Because I'm tested every year for my ongoing medical problems I rely on dates/tests/results being with the GP. My daughter is up to speed with my health problems too as she used to work for BUPA as an agency nurse.

FlexibleFriend Please keep some details at home in case you need an ambulance. Paramedics can’t access all your notes and it’s hugely helpful to have a recent discharge letter or something detailing conditions and medications, allergies etc just in case you’re not in a fit state to pass that info on.

Smart idea!
Hope that it will help you!

dizzyblonde

Well as I said I keep everything for a year obviously Ihave some paperwork, I just can't see the point of having a 6" thick file of crap.
I've called ambulances on many occasions and can always tell them the required facts, if not whoever called the ambulance is very aware of my condition.

I have a pocket diary specifically to record appointments, BP readings and medication changes. I also note all RA flare-ups as Rhematology often ask for dates and frequency. I also carry in my handbag the yellow card onto which I write my monthly blood test results.
Hospital letters, reports and leaflets are kept in an A4 wallet. I do take them on hospital visits but don't have to refer to them as they are on my computer record.