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Chest X ray fear /low bone density in spine

(42 Posts)
Rowantree Wed 13-Mar-19 16:33:55

Hi 'Netters,
I'm scared.
I've noticed increasingly that when I am walking/trying to run uphill I get very breathless, my throat feels like it's closing up, I feel panicky and struggle to catch my breath. Same going up stairs sometimes.
OH says i've been like it since he's known me but I had a nasty 'attack' of it last summer, running to catch a little steam train with DGS, DD and SIL and felt really out of breath. 3 weeks ago, after listening to my chest, GP gave me puffers to see if they made a difference, but didn't offer x ray. Returned this week and it was a different GP. She looked at my legs and ankles (have mild odema but have had it for decades).. Referred me for xray. I asked if she was looking for COPD (I smoked when I was a student and then intermittently as a young adult when under stress but haven't for over 20 years ). She replied,'Yes, amongst other things.' I'm now really anxious. Googling COPD I now see myself with 5 years to live and it could be worse still - could equally be lung cancer. Please don't laugh: I am suffering a bit of a relapse of anxiety recently, and though I've been doing really well having a very good healthy diet for the last few years in particular, it could all be for nothing. I'm very overweight and have struggled with my weight for years. In addition, after my recent wrist fracture, a DEXA scan confirmed osteopenia in the spine (hips are fine) and GP said you cannot build bone again by exercise. That isn't quite what my research told me, but I'm going to try to find specific exercises to help my spine.
It#s the xray I'm worried about most though: will be away when I can phone for results and don't know if I should ruin my 3 day break with DH by being told I have COPD or cancer!

Sorry - just needed to vent and feeling a bit sorry for myself right now. And frightened.

Suki70 Thu 14-Mar-19 18:53:15

Rowantree I think your GP was just covering all eventualities and it will turn out to be something minor. Other posters have given you good advice. I too have osteopenia for which I'm prescribed AdCal tablets - VitD and Calcium - and try to walk for half an hour everyday.
I've sent you a pm.

trisher Thu 14-Mar-19 19:04:05

Rowantree the osteopenia is not too bad. You need supplements and excersise.You also need monitoring to make sure your condition does not deteriorate. But even if it does there are excellent treatments now. I was diagnosed with osteoporosis about 15 years ago. I had drug treatment, calcium and Vit D and do tai chi and walk. My condition has improved and I now have osteopenia and I am on a drug holiday. So your GP is wrong you can build bone density. I hope your X ray gives you a positive result. Panicking can cause breathing problems so that may be a conributing factor. Hope all goes well.

Jalima1108 Thu 14-Mar-19 20:03:34

Rowantree, I'm very overweight and have struggled with my weight for years Could that be contributing to your breathlessness?

As for the problem with your bones - your GP will surely be prescribing medication to help with this. Would exercise not help both with weight loss and with helping with the osteopenia?

I have Osteocare tablets. They include magnesium and vit D and calcium
We take those Gonegirl, not regularly. but I did take two a day for months after I had a fracture. Now I take one when I remember.

Panicking can cause breathing problems so that may be a conributing factor. that could be a cause, the more anxious you get (don't Google!!) the worse you may feel.

I could not run up our hill even if someone offered me £1m.

Rowantree Fri 15-Mar-19 16:29:55

Gonegirl I take a multivitamin plus extra vitamin D but you're right, also SParklefizz, I do need to have a look at specific supplements for helping bones. I wouldn't have trouble remembering to take them - I already have a cocktail of pills each morning, so a couple more won't be a problem (though I need to make sure I'm not overdosing on anything).

Rowantree Fri 15-Mar-19 16:30:49

Jalima Yes, you're quite right, it could. I am trying hard to lose weight, but progress is slow.

Gonegirl Fri 15-Mar-19 16:32:16

It's not easy. sad

Sparklefizz Fri 15-Mar-19 16:57:40

I reversed my osteoporosis to osteopenia with supplements, then developed a completely separate pancreas illness whereby my pancreas stopped making digestive enzymes, and I ended up suffering with malnutrition which meant I lost a lot of hair and my nails, and my bone density deteriorated again back down to osteoporosis.

However, I'm now prescribed replacement digestive enzymes and am working hard to get my bone density back up the scale. I've done it once so I know I can do it again .... it's hard, of course, but I'm a very determined person and it will be worth it.

Rowantree Fri 15-Mar-19 18:17:42

Oh, Sparklefizz, that sounds awful but well done for overcoming osteoporosis. You do sound very determined and strong! When you say you're going to get the BD up again, are you doing it with supplements alone and if so, which? How long did it take before?

Sparklefizz Fri 15-Mar-19 18:59:47

Hi Rowantree I'm not sure how long it took me last time to raise my bone density because they don't keep giving you DEXA scans all that often. I might have raised it within 18 months but did not have a repeat scan for 3 years, when I discovered I was into the osteopenic range and out of the danger zone.

Yes, I am raising it with supplements alone because the side effects from the drugs can be horrendous, and the reason I have been in this mess is that I had breast cancer twice, and the 5 years of various drugs gave me a horrible time and messed me up in a number of ways including contributing to wrecking my bone density. I am not going to take drugs again unless I really have to, which of course I may in the future.

I take all the minerals individually in order to get higher doses and in order to separate them as I've read that calcium and magnesium can compete for absorbency. Not sure how true that is but I take them separately just to be sure. I vary the brands I use as well.

Magnesium is very good for Restless Leg Syndrome and also Insomnia, so I take Magnesium Citrate at bedtime with some supper. I take some decent Wholefood Calcium which is made from calcified seaweed and isn't as cheap as the Calcium Carbonate tablets, (which is another name for chalk, and not absorbed well by the body so in my view it's pretty useless.)

I also take Vit K2, high doses of Vit D3 (have not had a single cough, cold or 'flu since taking a lot of Vit D3 despite all around me catching viruses, so it's helping in more ways than one), a good multivitamin which also contains Boron, extra zinc, and high strength Omega 3.

I am juggling 8 illnesses and have multiple food allergies and intolerances so have to eat a very restricted diet. I hope to be able to tolerate more foods in the future, but have to supplement to compensate for not getting the basics from my food like so-called normal people would grin hence this sounds like an overwhelming list of extras but to my mind it's worth it.

I am desperate to avoid taking the drugs and have not been able to have a holiday for 9 years because of my food problems, so I spend every penny on my health in the hope of being able to eat away from home more easily in the future.

Hope this info helps. smile

luluaugust Fri 15-Mar-19 21:58:43

Rowantree I don't think you will be given the 'nasty' drugs for Osteoporosis as at present you don't have it but as I said the GP should give you at least the Calcium and Vitamins D3, the Vitamin K is supposed to be help too and possibly Magnesium. If you do have to take the Alendronic Acid not everybody gets bad side affects.

SueDonim Fri 15-Mar-19 22:14:13

I've taken Alendronate acid for osteopenia for almost five years with no side effects. Better that than another fractured leg!

As I understand it from the bone clinic information, the drug and supplements don't so much build up your bone density as prevent your body from losing more bone. As you get older your bone density will hopefully match your chronological age so say at 60yo you are found to have the bone density of a 65yo. The aim of treatment is to prevent any more bone loss so that by the age of 65 you will still have the bone density of a 65yo and not a 70yo.

Sparklefizz Sat 16-Mar-19 07:32:03

I've taken Alendronate acid for osteopenia for almost five years with no side effects. Better that than another fractured leg!

I quite agree, SueDonim ... definitely better than a break.

Sorry, didn't mean to worry anyone who is going to take the drugs just because I am very "anti" after my own experiences. Sometimes needs must!

Anja Sat 16-Mar-19 13:36:03

I think that is the problem SueDonim ie that rather than building up new bone to replace the old (part of the natural cycle) alendronic acid retains the old. This may not always be the best option.

SueDonim Sat 16-Mar-19 16:07:33

Yes, it may not be ideal, Anja. They don't have all the answers yet, unfortunately.

LadyGracie Sat 16-Mar-19 17:50:41

I was diagnosed with osteopenia in my spine and hips after I broke my wrist and prescribed Accrete D3, I had a follow up dexa scan after 2 years, my osteopenia is no worse.

Rowantree Sat 16-Mar-19 18:54:38

I'm just continuing to eat as healthily as possible, and garden for exercise (I would like to do Pilates or Tai Chi if I can find a class). I have dug out a book I forgot I had blush about bone-strengthening exercises, so I'll make a start on doing some of those. I'd prefer to have a teacher though to ensure I'm doing them correctly. Maybe You Tube has something :-)