I have just got back from the hospital - it has truly been a nightmare - the indignities and poor care are legion - I could not even list them - it just goes on and on.
Someone arrived on the ward - a "discharge nurse" - and informed me that he was being discharged today within the next hour to a community hospital for rehab. Just like that! No prior discussion.
I talked with the PD nurse (whom I trust) and she recommended the unit where he is going - about 40 mins from us.
So..........a young man came and took all his medications from his locker. I asked him who he was and he said he was from the pharmacy. Why are you taking his meds? - to organise the ones to take with him. Fine. About half an hour later I went to the nurses' station and he was still there with OH's meds in front of him and laughing and joking with everyone.
And then......the ambulance men arrive and say that they have to take him in the next 15 mins as the unit will not accept patients after 6 pm. Ah...but now it seems he can't go because he has no meds to take with him - they are all in the pharmacy. Right - so I offer to wait for the meds and follow on with them - no, that is not allowed. Ambulance men take pity on us and say they will wait an extra 15 minutes to see if the drugs appear.
In the meantime, because his meds are in the pharmacy along with the drugs card, he misses his PD meds time and no-one seems able to retrieve them so he can actually take what he needs.
So, then I am trying to hold a rigid, trembling man in the chair where he has been put - this continues for more than an hour. He is jack-knifed over in a heap.
We have a long and tense wait for the meds to arrive, while the frustrated ambulance men have a cup of tea. I then see them vanishing down the corridor - trip aborted apparently - does anyone tell us? - not for a very long time.
I then ask that he be put in bed; and that his sacrum be creamed - he was in pain from it. I wait, and I wait and I wait and eventually a lovely HCA comes and says she is trying to get a turn with the hoist; half an hour later she has bagged the hoist, but it takes 2 to operate it. Half an hour later she has both hoist and second person - hooray!
They lug him into bed and place a bottle on his penis with him lying on his side and clinging to the bed rail as he is frightened he is going to fall. He remains like this with me supporting him for half an hour at least, during which time I nip out 3 times to tell them he is in distress and needs help. Eventually they appear and we get him lying comfortably. And then he needs his PD meds - he needs them when he needs them and not when someone is free to try and find them. So another half hour passes whilst these are tracked down and I give them to him.
He has been quite paranoid all day and has a new prescription for a small dose of an anti-psychotic (something he would not want to be taking, I know) - I am utterly convinced that the reason he is in a muddle is partly because of the chaos that surrounds him, but also because he is dehydrated.
I am sorry to ramble on - I am tired and overwrought and have been there nearly all day fighting his corner. What a mess. I just have to hope that the new unit will be better.