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OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

blossom14 Sun 02-Feb-20 15:39:50

I also followed your story and admired your staunch fight to get the best care for your DH.
My condolences and take very good care of yourself.

Curlywhirly Sun 02-Feb-20 15:38:58

So sorry to hear your sad news Lucky, my condolences to you and your family thanks and a thanks to Scribbles too. Take care. xxx

vegansrock Sun 02-Feb-20 15:24:29

This so sad. I hope you find comfort in the knowledge he is at rest and you did all you could. “There is a land of the living and a land of the dead and the bridge is love”. Is a lovely quote from Thornton Wilder.

Bellanonna Sun 02-Feb-20 15:20:02

RIP Mr Lucky. Condolences to you and the girls, Lucky.
?

Katyj Sun 02-Feb-20 15:13:51

Been following your story Luckygirl,so sad. Take comfort in the knowledge that you did your very best for him, he couldn’t carry on bless him. Rest in peace xx

Ginny42 Sun 02-Feb-20 15:07:42

Luckygirl, so sorry to read your sad news. Your love for your erudite, witty, musical man shone from your posts. That is a very special love and one to treasure. Love to you and the family. flowers

Sparklefizz Sun 02-Feb-20 14:33:04

So sorry to hear your sad news, Luckygirl . My condolences to you and your family. Take care of yourself. flowers

Oopsminty Sun 02-Feb-20 14:25:58

Thinking of you, Luckygirl

Grannybags Sun 02-Feb-20 14:25:14

Luckygirl I have been following your long and difficult journey, although haven't commented very often, and have been filled with admiration for how you have tackled every problem which has been thrown at you. You obviously loved your husband very much.

I hope you find peace now and enjoy the happy memories which will gradually come back to you flowers

GrannyLaine Sun 02-Feb-20 14:04:48

So very sad for you Luckygirl I imagine you will be physically and emotionally exhausted so take all the time and space you need to grieve. Life is just so unfair sometimes. flowers

SueDonim Sun 02-Feb-20 13:55:47

I’m so sorry, Luckygirl. flowers Even when death is expected and a relief, it still comes as a shock. Xxx

nanaK54 Sun 02-Feb-20 13:49:01

Sincere condolences flowers

Susan56 Sun 02-Feb-20 13:42:44

My condolences luckygirl to you and your family.Keeping you in our thoughts and prayers?

Septimia Sun 02-Feb-20 13:41:12

Condolences from me, too, Luckygirl. I know just what you mean about it being a mix of relief and loss.

He was a very fortunate man to have you to fight his corner.

I hope that the happy memories will, in due course, outshine the difficulties of the more recent past for you and your family.

Nannylovesshopping Sun 02-Feb-20 13:40:07

Dear luckygirl your loving husband is now at peace, the loss in your life now immense, but hold on to him in your heart, you have been the very very best loving wife ever?

Bathsheba Sun 02-Feb-20 13:37:23

Oh Lucky I am so very sorry for you and your girls. It’s been a long time coming, but it doesn’t make the loss any easier to bear, does it? In time you will remember all the good times, and these last months of pain and confusion will fade from your memory. Sending love to you all flowers

Sar53 Sun 02-Feb-20 13:37:10

Luckygirl my condolences to you and your daughters at this very sad time. I'm sure your emotions are very mixed today. Look after yourself and each other. Xxx

loopyloo Sun 02-Feb-20 13:34:22

Dear Lucky girl,

Many condolences to you. May I say, you did so well looking after him so well for so long.
Look after yourself now.

grannyactivist Sun 02-Feb-20 13:28:55

Lucky my condolences. I expect your emotions are mixed just now; feeling relief in this situation means you're glad your husband's suffering has ended. You didn't want him to leave you, but given his current existence, you wanted his suffering to end. In time better memories will be recalled and you can remember him as he was before the illness took him.

'Tis but the bed, the peaceful bed,
Where rests the weary pilgrim's head,
'Til dawn the joyful day,
Which, when the shades of night are fled
Shall all his toil repay.

MawB Sun 02-Feb-20 13:24:29

Scribbles flowers to you too - life can be bloody hard can’t it.
??

crazyH Sun 02-Feb-20 13:17:28

Luckygirl and all in similar situations flowers

Beechnut Sun 02-Feb-20 13:17:10

Sending my condolences to you Lucky and your family ?

Scribbles Sun 02-Feb-20 13:14:42

Luckygirl, I can only send you love. I'm sitting here crying for you, for me, for our husbands and for all who have lost the one they love most.
Be glad he slipped quietly away. All we can do for them is to be there at the end and hope they know how much we love them.
I wish you peace and comfort.

midgey Sun 02-Feb-20 13:07:06

Peace at last for your DH, may you get some comfort that he is out of pain at last. flowers

Auntieflo Sun 02-Feb-20 13:06:50

Oh Lucky, so sorry for you and the girls, but he will be peaceful now.
You fought so long and so hard for him and his care.
Love and hugs to you, and take care of yourself.
flowers