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Brain hemorrhage

(28 Posts)
Jaberwok Thu 03-Sep-20 15:58:51

Last week completely it of the blue our daughter suffered from an AVM! For about three days things looked very bleak. then she very slowly improved until yesterday when she was allowed out of hospital. I have spoken to her this morning and we seems okish, though very tired and tearful. Luckily she has three teenage children, a wonderful devoted partner and a circle of good friends so care isn't a problem. Has anyone on here had any experience of this traumatic event? If so, perhaps you can give me some idea of her long term prognosis ? She may have another AVM in her spine and the other side of her head! A scan in 5 weeks should tell us of any other damage. To say that we are worried is an understatement, as I'm sure anyone reading this will understand.

kittylester Thu 03-Sep-20 16:08:57

Hi jaberwok. What a shock for you all. How is her physical recovery? She will be awfully tired for a long time, I think, even if there are no other physical problems.

Our eldest son had a dissecting aneurysm 15 (ish) years ago. He was 35 and had just got married. He was living in Japan and was covered by his work health insurance. He had phe mental care in Japan including 3 sessions of physio per day so stayed in hospital for nearly 4 months. He still gets really tired.

Jaberwok Thu 03-Sep-20 16:27:47

Hi kittylester, thank you so much for your post. Her general health is pretty good and at least she has no other underlying condition which is something! I'm so sorry about your son. My uncle suffered an aneurysm many years ago which was repaired, and he was eventually ok, but like your son, it was a nasty, frightening episode. I think we are in for a long haul and can only take things day by day.

Luckygirl Thu 03-Sep-20 16:29:44

I am so sorry you are having to deal with this.

I used to work as a social worker for a brain injury service during the latter part of my career and finding ways of helping people in this situation was what we did.

When you have had a bleed in the brain it can cause some subtle changes that make life more difficult for people than it was before. It can affect your emotions, and this may be part of your DD's tearfulness. Depending on where in the brain the bleed takes place, it can have different effects.

You might like to follow this link: www.headway.org.uk/about-brain-injury/individuals/effects-of-brain-injury/

It contains worst case scenarios as well as your DD's situation, so do not panic. But it might be helpful for you to know and understand some of the more subtle effects that can follow. In this way you might be able to recognise some of the problems that she may have and be able to support her in the best way.

When I was working, we used to run rehab clinics and meetings where people who needed a helping hand to get over this were able to get what they needed. Her local Headway might be able to help, at least as far as giving you advice, even if your DD does not want to get in touch with them herself.

Some of the neuro-psychological changes can be quite subtle, but a big nuisance to the person suffering them, and sometimes difficult for relative to understand. It is not unusual for people to be sent home from hospital because they are walking, talking and eating etc., but there can still be subtle changes that need addressing., for example tiredness, finding it hard to deal with planning of simple activities or actions, finding they lose their temper more easily etc. It is not just the motor effects that can happen.

I am so glad that she has supportive family and friends around her - that is so important. I send you all good wishes in this worrying situation for you all.

midgey Thu 03-Sep-20 16:50:43

My husband had an aneurism that burst many years ago. It did a great deal of damage so your daughter is comparatively lucky. He was a different man afterwards and got very tired, but he went back to work though he was self employed, he would work for a few hours (later days) but needed to rest and recover for several days afterwards. Do hope things improve for your daughter. And you!

kittylester Thu 03-Sep-20 17:19:56

I can back to suggest Headway lucky. After Matt came home he was referred to Headway and I can't praise them enough.

tanith Thu 03-Sep-20 17:29:57

My daughter had a bleed on the brain 18mths ago she was 50. She was very ill for a few days but was discharged after six weeks recovery and physio. Now she is well recovered although still some problems on the left side, considering she couldn’t walk for a month it’s minimal. Her greatest problem is fatigue if she over does it she has to rest the next day, lost her job just as she was about to return part time due to Covid. I think part time is all she could manage at present but in this climate it’s not likely.
We hope that she doesn’t have a recurrence as they couldn’t find any cause for her bleed and said it may happen.

I hope your daughter gets good news from her scans and continues to recover. It’s very scary I know.

Harris27 Thu 03-Sep-20 17:33:28

I have a friend whose husband was only 39: and he was very I’ll two aneurysms and four weeks in hospital two ops an da few setbacks. To see him now you would never believe he had one he’s fab. A little more serious than he used to be and gets a little agitated but he’s doing great back to his high powered job and loving life . Regular checks and a healthy lifestyle he’s doing good.

Jaberwok Thu 03-Sep-20 17:37:09

Thank you again for your kind words, and thank you Luckgirl for your advice and information. I will certainly bear Headway in mind. We hope to go to see her next week as we haven't been able to because of the virus. She's was in hospital in Oxford which, like all hospitals was very strict, only allowing one visitor for 1 hour a day which of course was her partner. It is quite a long way (70 miles from us) so we were happy with that. Her home is about 50 miles, so not too bad! Tbh, I feel better talking to people other than family, as they are emotionally involved which is great but a bit exhausting!!

Lucca Thu 03-Sep-20 17:39:42

I have no helpful knowledge to impart but hope that things work out well for your daughter.

My DIL had a stroke at age 40 so I know what a shock this sort of thing can be. (shes well now)

Knittynatter Thu 03-Sep-20 17:52:35

I had a brain haemorrhage three years ago and had surgery. I was in hospital for three weeks and off work for five months. I’m as good as new now. At first I slept a lot and couldn’t bear bright lights (could have lights on the Christmas tree the first year!)
I wish your daughter well 💐

BlueSky Thu 03-Sep-20 18:37:09

So shocking that younger people get this sort of thing, bad enough if it happens in our older age group, but our children's generation! All the best to your daughter Jaberwok flowers

Urmstongran Thu 03-Sep-20 19:11:52

So sorry to read this thread. What a frightening experience for anyone to have.

I hope your daughter makes a good recovery Jaberwok you must be so worried.

Tommy16 Thu 03-Sep-20 21:03:02

I had a sub arachnoid aneurism 40 years ago ,took a couple of years to get back to normal ,I'm 68 now and still working

Iam64 Thu 03-Sep-20 21:22:30

How frightening and distressing for you all Jaberwok. I haven't much experience other than my mum who had her first mini stroke in her early 60s and a cluster in her late 70's. She made a full recovery and lived a good life into her late 80's. A close friend had a fairly significant stroke at 48. She is early 60's now and very well. I hope your daughter has a similarly positive outcome and send positive thoughts to all of you.

Jane10 Thu 03-Sep-20 22:12:24

Sounds like she might have several AVMs. These will be closely watched by the local Neurologists I expect. A young friend has several AVMs and is checked over very regularly. Unfortunately there is a genetic element and her little daughter has been found to have several too.

brook2704 Thu 03-Sep-20 22:22:49

I haven’t any advice or knowledge jaberwok but just wanted to send my very best wishes to your DD for a speedy recovery. What a worry for you all

SueDonim Thu 03-Sep-20 23:04:13

I’ve no advice or knowledge to contribute but send my wishes for your daughter’s recovery, Jaberwok. What a frightening time you’ve all had. flowers

maddyone Thu 03-Sep-20 23:17:06

Jabberwok, I haven’t any experience of this and so have no advice to offer, but I couldn’t leave this thread without saying how sorry I am that this has happened, and I know you must be beside yourself with worry. I hope that your daughter continues to recover and gets back to her usual self. flowers

Curlywhirly Fri 04-Sep-20 07:12:09

Two people I know had a stroke when they were in their 40s. Both were back to normal within months and very lucky. Jabberwok it must have been such a shock and send you my best wishes for your daughter's recovery. thanks

Jaberwok Fri 04-Sep-20 10:23:32

Again, many thanks for all your kind comments. I feel a bit better and more positive today! Gardening is wonderful therapy!!

eazybee Fri 04-Sep-20 11:23:56

I had a subarachnoid haemorrhage when I was fifty-nine. Although I was in hospital for nine days under close observation it healed itself and I made a full recovery with no apparent side effects. I returned to teaching and worked full-time until I retired at sixty-five.
It was unpleasant and frightening, but I am sure your daughter will make a full recovery. Plenty of rest, and her strength and confidence will return.

Yiayia4 Fri 04-Sep-20 17:33:21

My husband had a subarachnoid aneurism many years ago, at the time he was given a thirty percent chance of surviving!but he did after having brain surgery. He’s 76 now and you would never know.
I hope this helps A little and your daughter also has a good outcome.

Jaberwok Fri 04-Sep-20 17:53:38

She's sounds more cheerful today, Grandchildren are rallying round and luckily she has got a wonderful partner. We are going to see her next week which we're looking forward to. So onwards and upwards!!

Luckygirl Fri 04-Sep-20 22:11:56

So pleased to hear she is more cheerful.