We had a huge amount of help from the local Parkinsons nurse, who was able to put us in touch with all sorts of groups etc. The local PD Society was very active, and they funded a carer scheme directed at helping carers of those in the advanced stages to get out and about - they were very welcome, and helped my OH very sensitively while I was out.
The local PD society also had a chat thread on their website which was quite upbeat; and they ran all sorts of social occasions and a singing class too.
We found that my OH ticked along with minimal symptoms for many years; then various bits of meds were gradually added and kept things successfully at bay.
I am sorry you have had this diagnosis and wish you success in finding the support you need.
The Putney Pusher has been arrested……9 years on!
Disappearing Contributors part 3
