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Polymyalgia rheumatica

(31 Posts)
annodomini Wed 21-Oct-20 17:34:00

My PMR started when I was 70 in 1971. I'd felt a bit stiff and achy for a month but one day I woke up and had trouble turning over in bed, then had to head-butt the light switch because I couldn't lift my hand. My GP diagnosed it from the symptoms and the blood test showed massively raised inflammation markers and I was put on pred right away. Within just a few days I could walk 6 miles. Steroids have that effect. However, my inflammation markers took years to go down to normal and I took my last pred tablet after 6 years. A helpful web site is www.pmrgcauk. Lots of advice from fellow sufferers.

Lyndawads Wed 21-Oct-20 16:29:34

KUPARI45- Im not even sure if it is Poly R as my blood tests came back negetive- but the GP said that this can happen!!
Im only 58 and I understand that Poly R is usual in people a little older. My arms and shoulders are painful all day- if im getting dressed, doing my hair, reaching for things and cannot put my arms anywhere near going up my back!!! Are these symptoms similar to what you had?

ElaineI Wed 21-Oct-20 16:20:09

My Mum who is 85 had it twice. She also got prednisolone on a reducing dose according to her blood test results. Same as Kupari took about a year. Her skin thinned while on it and she got lots of bruises which still happen though she has been of it for over a year.

Kupari45 Wed 21-Oct-20 15:49:02

Yes I suffered with " Poly R" a few years ago.
I was prescribed quite a high dose of PREDNISOLONE. It helped ease the pain after a few days, however it took over a year before I could function without steriods. You have to reduce the dosage very very gradually, or the pain returns.

PinkCakes Wed 21-Oct-20 13:40:49

I haven't had it, but I know a lady in her early 80s who had it last year - she was fit, healthy, walked everywhere and did her garden, etc. Then she had a lot of pains and stiffness, which her GP said was Arthritis and that she should expect it at her age! The lady even struggled to get dressed each day.

I suggested she asked for a blood test to be done, which she did, and it was found to be Polymyalgia Rheumatica. She had a course of PREDNISOLONE (steroids) and was feely better after only a few days! The dosage was reduced gradually, over weeks, and she was back to her old self. Good luck.

Lyndawads Wed 21-Oct-20 12:26:25

Ive just been referred by my GP to a specialist to help diagnose if i have PR. Just wondered if any of you gransnetters have any experience of this condition re diagnosis and treatment. Thanks