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Anyone heard of keracotonus.Not sure if I've spelt it correctly.

(7 Posts)
mojoman Fri 08-Jan-21 16:40:20

One of my sons has recently been diagnosed with it in only one eye and is waiting for an eye clinic appointment. I would be grateful if someone knew anything about it.

Scribbles Fri 08-Jan-21 17:37:32

mojoman, you may find this helpful:

www.rnib.org.uk/eye-health/eye-conditions/keratoconus

Bobbysgirl19 Fri 08-Jan-21 17:47:29

I hadn’t until my son was diagnosed with it too. There’s lots of information on the web about it, if you google it, much more informative than what I could offer. I only know it’s quite a rare condition!

Best wishes

Reading50 Sat 09-Jan-21 18:49:37

Hi, my daughter has this in both eyes. Diagnosed 23 yrs ago. Aged 25.It was very upsetting to begin with for her as well as us. However over the years she has learnt to live with it. She attends hospital appointments every six months to keep a check on things. She has contact lenses made to suit the condition which are updated as and when needed. She is able to still drive providing she wear the lenses. I’m sure your son will get all the possible help. Best wishes to him and yourself.

Susan56 Mon 11-Jan-21 00:52:12

My uncle and cousin both have keratoconus.

JohnRNIB Mon 11-Jan-21 14:43:54

Scribbles

*mojoman*, you may find this helpful:

www.rnib.org.uk/eye-health/eye-conditions/keratoconus

As mojoman says, there's information about keratoconus on the RNIB website, or if you want to talk to someone about it, you can contact our Eye Health Information Team, who will be happy to answer any questions.

Marian1412 Mon 11-Jan-21 15:29:08

I have it but thankfully it does not seem to have progressed and causes me no problems. I was told it can run in families but none of my children or siblings have it.