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Grade 4 rectal prolapse.

(615 Posts)

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soop Sat 20-Nov-21 16:45:20

Hello, I wonder if any one is suffering with this ailment. I am eighty. Have been treated at a variety of hospitals over a period of ten years. First surgery carried out in 2003. Am between a rock and a hard place. Can have a colostomy at a private BMI hospital for £25,000, or wait indefinitely on the NHS waiting list with no date for the foreseeable. Every day is a challenge. I appreciate that there are countless people far worse off than I am. I would however be most grateful of any first hand information that can help me to manage this dire situation. Thank you.

Germanshepherdsmum Sat 27-Nov-21 16:23:37

That’s wonderful news soop. Very encouraging.?

soop Sat 27-Nov-21 15:55:40

mumofmadboys I shall do as you suggest. Thank you.

We are eagerly awaiting a visit from our pal who can open a crowdfunding site for us. We have had generous offers of help from family and our friends in the village. We will not therefore need to ask for the original sum. £10, 000 less in fact. smile

Aldom Fri 26-Nov-21 18:28:17

Dear Soop I hope you are able to follow up the advice given by MOMB. It really would be wonderful if the Clinical Commissioning Group could help you.
Hoping you are a little more comfortable. Holding you in my thoughts. flowers

Germanshepherdsmum Fri 26-Nov-21 17:19:27

Another day nearer your appointment soop. I hope today has been better than yesterday.?

soop Fri 26-Nov-21 12:49:37

smile flowers Thank you.

mumofmadboys Thu 25-Nov-21 20:57:30

I retired 7 years ago so am not up to date with funding issues in medicine. However I wonder if you contact the head of the Clinical Commisioning Group and ask if your case can be discussed. Perhaps you can discuss it with your GP. Certain expensive drugs are discussed , often for cancer treatment. I don't know whether it would be the right place to discuss availability of operations that are not available locally on the NHS and whether they would fund a private op.

kittylester Thu 25-Nov-21 20:34:33

That was meant for the kitchen but the sentiment is the same.

kittylester Thu 25-Nov-21 20:33:28

Just popping in to see how everyone is. we are really busy at the moment but I am keeping an eye.

soop, your attitude is phenomenal!!

Germanshepherdsmum Thu 25-Nov-21 18:13:47

So sorry to hear that soop. I’m sure you’re counting the days, as am I. Fifteen now I think? KBO dear friend, knowing we are all thinking of you and wishing you well again. x

TillyTrotter Thu 25-Nov-21 16:35:45

A gentle hug for you soop.
I hope you get the crowd-funding going soon; this “drop-bot”beast needs to be taken by the horns now and action taken a.s.a.p.
I wish you well ?

soop Thu 25-Nov-21 16:30:58

Germanshepherdsmum, every hug matters. Thank you.

Today has been a very difficult day. I have spent more time in the bathroom than elsewhere in our home.

Mr Soop phoned a tech savvy pal in the village. He has kindly agreed to call in to take us through the crowdfunding system. I shall keep you posted.

Germanshepherdsmum Thu 25-Nov-21 13:54:12

More hugs for you today soop?. Just so you know you’re not forgotten.

soop Thu 25-Nov-21 12:59:29

Dogsmakemesmile I am grateful for all the support and suggestions that I have received since starting this forum. x

Dogsmakemesmile Wed 24-Nov-21 20:34:13

I've popped up here soop. Hope that is ok. So good you are getting such wonderful support and suggestions. Wishing you strength and sending a hug.x

soop Wed 24-Nov-21 14:18:56

Germanshepherdsmum I'm hugging you back. I shall return a little later.

Germanshepherdsmum Wed 24-Nov-21 13:41:19

Oh soop, I wish I could give you a big hug. I think about your plight so much and each night I pray for a solution. I wish I could wave a magic wand. Could Mr Chong from Ross Hall help as he does NHS work too? He might be able to pull some strings for you and would know all about your case from the surgeon you’re seeing. Or might a combination of private (so far as affordable) and NHS be possible? No-one could expect you to wait two years to get your dignity and quality of life back. If I were your surgeon I couldn’t turn you away for want of money, I know the hospital facilities have to be paid for but I would gladly give you my expertise for free. You are in the thoughts of so many, please remember that. ?x

soop Wed 24-Nov-21 13:14:57

I cannot thank you enough for caring sufficiently to engage with this aged lady with drop-bot. If I didn't make fun of myself from time to time, I would cry a lot.

The NHS would provide me with stoma bags and support should I go down the private surgery route. I am compiling a list of pertinent questions that I shall discuss with the surgeon when he phones in sixteen days time.

Since the first operation in a private hospital twenty years ago, we have taken out equity release on two occasions to cover the costs. We have enough left to be able to afford a further six thousand pounds for the colostomy. A heck of a long way short of the sum needed.

Alternatively, I could wait up to two years for NHS treatment, by which time, I shall be extremely incapacitated.

It is true that health is wealth. Possessions count for little when health deteriorates. flowers

Germanshepherdsmum Wed 24-Nov-21 12:40:06

How are you today soop? Is your husband making headway with the paperwork?

Luckygirl3 Tue 23-Nov-21 20:48:58

I have had an initial private consultation and then been swapped to the same consultant on the NHS - the private ap[ointment set the ball rolling.

Stoma supplies will come via a GP prescription I believe.

I have to admire someone who, in such dire straits, can write Bottoms Up with a smiley - good on ya!

Charleygirl5 Tue 23-Nov-21 19:11:29

Riverwalk thanks for that- that would make a huge difference to soop because I doubt if any of it is cheap.

Riverwalk Tue 23-Nov-21 17:59:13

GSM unfortunately £25K is just the start because there is the equipment to buy post surgery. I doubt if you will get it on the NHS but I do not know any longer how the Scottish system works. In England one can no longer mix and match private and NHS.

Charleygirl yes you can.

As long as you are registered with an NHS GP, all supplies e.g. stoma, incontinence, PEG feed equipment and medications are supplied.

Germanshepherdsmum Tue 23-Nov-21 16:56:59

Thanks CG.
KBO soop. Accidents don’t matter among friends.?

Charleygirl5 Tue 23-Nov-21 16:50:07

GSM unfortunately £25K is just the start because there is the equipment to buy post surgery. I doubt if you will get it on the NHS but I do not know any longer how the Scottish system works. In England one can no longer mix and match private and NHS.

Is anybody on GN au fait with crowdfunding? I personally do not have a clue but believe me if £25K is reached, every penny will be spent and a lot more. Could you add in Mr. Soop's cataract surgery to get him on the road again? It is a nightmare.

soop Tue 23-Nov-21 16:33:15

THANK YOU. I appreciate every thoughtful post. Today has been a bummer. We went for a short walk and an "accident" occured. I now have to rely on the protection of adult nappies.

It is what it is. We will survive. A solution will be reached. Three weeks in which to investigate so many options before I clarify position with the private surgery route.

Bottoms up! wink

Please carry on posting. It helps me enormously.

Germanshepherdsmum Tue 23-Nov-21 16:18:13

I’m really hoping the £25k covers everything but I have no experience of this other than some investigations covered by insurance in the heady days when I had it courtesy of my employer.